Made possible by charitable contributions from
Bayer , Astellas / Pfizer . Thank You!

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Greetings!

We hope that the February 2019 issue of the Hot SHEET newsletter finds you doing well and staying warm!

We’d like to thank everyone who donated to the Us TOO Holiday Hope campaign , which generated funding for educational resources and support services provided by Us TOO at no charge. We’d also like to send a special shout out of thanks to support group leaders and others in the community who shared a quote or story of hope for the fundraising campaign.

Video is now available from the Us TOO Prostate Cancer Pathways for Patients and Caregivers Chicago event and webcast! The event was recorded on November 3 at NorthShore University HealthSystem in Skokie, IL. There are special presentations on Sex and Intimacy after Treatment, and Pelvic Floor Health for Incontinence in addition to great information about men's health risks, PSA testing, active surveillance, treatment options, and management of treatment side effects. Access short video segments specific to each topic in addition to the option of watching the entire presentation. 

If you are the wife or female partner of a man with prostate cancer, we invite you to join a conference call to connect with other women facing the same challenges. Because prostate cancer is a couple's disease, the woman is often subject to her own concerns in addition to those she shares with her partner. A Forum for Her is an ongoing series of conference calls that provides women with important peer-to-peer support. To register email at terril@ustoo.org or call 877-978-7866. 

If you haven’t yet done so, check out Between the Sheets , a supplement in the enclosed Hot SHEET. It's a regular column dealing with sex and intimacy after treatment for prostate cancer, with questions answered by experts. Find previous issues and submit your question for possible publication at ustooBTS@ustoo.org

As you may know, Us TOO collaborates with the Patient Access Network (PAN) Foundation, an independent, national 501 (c)(3) organization dedicated to helping federally and commercially insured people living with life-threatening, chronic and rare diseases with the out-of-pocket costs for their prescribed medications. This includes financial assistance for patients with advanced prostate cancer. To do so more efficiently, PAN is introducing FundFinder, a new web-based app that instantly notifies users when a disease fund opens at any charitable foundation . Register online to receive notifications from FundFinder.

The Us TOO Prostate Cancer Clinical Trial Finder simplifies the process of identifying clinical trials by matching a patient’s profile with relevant clinical trials at no charge. We are excited to share that the site has been upgraded to the latest web application version and features a new layout with the option to “Pre-Screen Now” from within the Trial Summary; and a new questionnaire layout for better navigation and easier access from mobile devices. 

If you’ll be near Fort Myers, FL, on Saturday, March 2, plan to attend the Prostate Cancer International Conference with panel discussions, audience Q&A, and breakout sessions at the Cohen Center of FL Gulf Coast University. Speakers include Dr. Eli Van Allen from Dana-Farber, Dr. Stephen Scionti, four radiation oncologists, Joel Nowak, MSW and Wendy Lebowitz, PhD of Cancer ABC's, and hosts Mike Scott and Jan Manarite. Find more info or call Jan at (239) 208-4400.  

Monday, February 4, is World Cancer Day , designated to raise international awareness of cancer and to encourage its prevention, detection, and treatment. This year the theme is “I Am and I Will.” Learn more at WorldCancerDay.org , check it out at #WorldCancerDay on twitter, or visit the World Cancer Day Facebook page

Be sure to catch the new public service announcement from Prostate Cancer Foundation on the importance of prostate cancer screening . It features Al Roker from TODAY and Craig Melvin with the New Jersey Devils!

Take care and let us know how we can help provide you with educational resources, support services and personal connections to others in the prostate cancer community. 


All the best,



Chuck Strand, Chief Executive Officer
Jackie Konieczka, Office Manager
Terri Likowski, Program Director - Support Group Services
Tim Mix, Communications Manager