Made possible by charitable contributions from
Bayer , Astellas / Pfizer . Thank You!

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Greetings!

It’s hard to believe that the New Year is only days away and we’re already distributing the January 2019 issue of the Hot SHEET newsletter . We hope that you’re doing well and enjoying the holiday season. 

As you may know, Us TOO collaborates with the Patient Access Network (PAN) Foundation , an independent, national 501 (c)(3) organization dedicated to helping federally and commercially insured people living with life-threatening, chronic and rare diseases with the out-of-pocket costs for their prescribed medications. This includes financial assistance for patients with advanced prostate cancer. To do so more efficiently, PAN is introducing FundFinder , a new web-based app that instantly notifies users when a disease fund opens at any charitable foundation. Register online to receive notifications from FundFinder .

The Trump administration is proposing new cost reduction changes to Medicare coverage which would limit access to drugs . These changes would negatively affect anyone needing treatment in any of six protected classes of medications, which currently include cancer drugs, antidepressants, drugs to treat psychosis, anti-seizure medications, medications to prevent the rejection of transplanted organs, and HIV-AIDS drugs. Learn more and consider signing a petition to oppose these changes.

IRONMAN is a registry recruiting 5,000 men with advanced prostate cancer from 9 countries. More than 366,000 men die of prostate cancer globally every year. Research on a man's type of prostate cancer, treatment and side effects will help inform what causes prostate cancer, how to stop or slow its progression, and how to provide the best possible care to enable men to live the best quality life possible. Learn more and register.

The Metastatic Prostate Cancer Project takes a new approach to cancer research in which researchers partner directly with men with metastatic and/or advanced prostate cancer, who share their samples and clinical information in order to speed up important discoveries. The project invites participation from men around the country with metastatic and/or advanced prostate cancer to study their cancer using cutting-edge genomic and molecular research studies performed at the Broad Institute. Learn more and join.

Facing cancer isn’t easy, but LivingWith ™ may help. It’s a free app for people living with cancer and those who love them designed to help connect with loved ones, ask for support that’s needed, remember important information from doctors’ visits and stay organized, all in one place. Learn more and download the app on your smartphone. It’s available in English and Spanish.

If you haven’t already done so, check out the Us TOO Inspire prostate cancer online community and exchange information on 16 prostate cancer topics. Join more than 20,000 registered members who participate in this free service as another option for Us TOO prostate cancer support services. 

You may also be interested in Cancer.com , a website with educational content on several types of cancer, including prostate cancer. Information covers diagnosis and multiple topics on prostate cancer at various stages of the disease.

As we wrap-up 2018, we’d like to thank Us TOO officers for their leadership over the past year: Chairman Peter Friend, Vice Chairman Jim Schraidt, Treasurer Todd Ahrens, and Secretary Jerry Deans. Congratulations and thank you to our newly elected officers for 2019: Chairman Jim Schraidt, Vice Chairman Jerry Deans, Treasurer Alan Goldman, and Secretary Marty Chakoian. We extend our gratitude to Jim Rieder for his service as he leaves the Us TOO Board of Directors after nearly eight years, including leadership as Chairman of the Board. We appreciate the dedication and participation from all members of the 2019 Us TOO Board of Directors, which also includes: Todd Ahrens, Jeff Albaugh, Peter Friend, Stuart Gellman, Keith Hoffman, Jim Naddeo, Jon Poindexter, and William Seidel. Thank you, gentlemen!

The Us TOO Holiday Hope fundraising campaign is coming to a close. If you’ve already made a contribution, thank you so much! And if you’ve not yet done so, please donate to help Us TOO provide educational resources, support services and personal connections to the prostate cancer community at no charge. Special thanks to Jim and Mo Kiefert for sharing their story and photo as featured on the Holiday Hope digital materials and printed holiday greeting cards. We also thank everyone who shared quotes of holiday hope:

  • Mark and Peggy Richardson
  • Dave and Donna Evans
  • Bill Krellner
  • Kathie and Dave Houchens
  • Darryl and Deb Trinco
  • Jim and Mo Kiefert
  • Harvey and Miriam Orlov
  • Joseph and Debra Harrison
  • Rich and Brenda Jackson
  • Jeffrey Albaugh
  • Bob Wright
  • Jim and Rae Hight
  • Cliff Whall and Monique Davoust


Take care and let us know how we can help provide you with educational resources, support services and personal connections to others in the prostate cancer community. 

We wish you and your family a joyous holiday season and a New Year that's filled with new information, new opportunities and hope!

All the best,



Chuck Strand, Chief Executive Officer
Jackie Konieczka, Office Manager
Terri Likowski, Program Director - Support Group Services
Tim Mix, Communications Manager