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We hope that you’re doing well and enjoying the warmer weather and extended sunshine!
We’re pleased to provide you with the enclosed May 2019 Hot SHEET newsletter from Us TOO. In addition to multiple published articles specific to prostate cancer, What Works & What is Worthless column by Dr. Mark Moyad and Bottom Line column by Dr. Gerald Chodak, this issue includes the editorial supplement featuring Progress on Prostate Cancer Research from the Prostate Cancer Foundation with some of the latest research on immunotherapy; and Between the Sheets from Dr. Anne Katz with answers to readers’ questions on sex and intimacy.
We’re expanding the team at Us TOOand hiring our first full-time Director of Development. Please CLICK HERE for more information; and pass along this career opportunity to potential candidates. Resumes will be accepted through May 9th.
Prostate cancer support groups provide a valuable opportunity to connect with others for education, support and perspective on managing every aspect of the disease – from testing to active surveillance, treatment options and side effect management. Us TOO has a network of more than 200 support groups in the U.S. and abroad. We thank all of the support group leaders and encourage men diagnosed with prostate cancer tofind an Us TOO support group.
Us TOO partners with Answer Cancer Foundation, the first virtual real time audio/visual peer-to-peer support group platform providing online access from a computer, mobile device or telephone. In addition to calls each month focused on high-risk/recurrent/advanced disease, low-risk/intermediate prostate cancer, AnCan is now hosting an
Active Surveillance Prostate Cancer virtual support group. Calls will be on the
first Wednesday of every month at 8:00 pm Eastern.
The first call will be on Wednesday, May 1, 2019. CLICK HERE for details.
SEA BLUE EVENT
Summer will fly by and sooner than we think it will be September - Prostate Cancer Awareness Month!
Registration is now open at www.seablueprostatewalk.org for the 15th Annual SEA Blue Prostate Cancer Walk & Run. SEA is an acronym for Support, Educate and Advocate; and blue is to prostate cancer as pink is to breast cancer. Attend in person or register as a virtual mover at no charge if you will not attend in person and want to help fundraise. For a glimpse into what makes this event so special for so many people, check out the video. Register by May 5th with code EARLY19 for $15 off your registration!
CLINICAL TRIALS & REGISTRIES
The University of Washington and Us TOO International invite prostate cancer patients and their loved ones to participate in a survey to help drive new research for prostate cancer. With a goal of identifying the research questions that matter to you, we are asking prostate cancer patients and their loved ones to rank the most important research questions for a specific stage of prostate cancer. Survey results will be used to secure research funding. To learn more and participate in the survey CLICK HERE.
The Us TOO Prostate Cancer Clinical Trial Findersimplifies the process of identifying clinical trials by matching a patient’s profile with relevant clinical trials at no charge. We are excited to share that the site has been upgraded to the latest web application version and features a new layout with the option to “Pre-Screen Now” from within the Trial Summary; and a new questionnaire layout for better navigation and easier access from mobile devices.
IRONMAN is a registry recruiting 5,000 men with advanced prostate cancer from 9 countries. More than 366,000 men die of prostate cancer globally every year. Research on a man's type of prostate cancer, treatment and side effects will help inform what causes prostate cancer, how to stop or slow its progression, and how to provide the best possible care to enable men to live the best quality life possible.
The Metastatic Prostate Cancer Project is a nationwide genomic research study for men with metastatic and/or advanced prostate cancer. Patients can join online and participate by sharing their medical information and samples. The project’s goal is to release new data to help researchers better understand metastatic and advanced prostate cancer, and accelerate discoveries.
On June 8, The California Prostate Coalition and UCSF Helen Diller Family Comprehensive Cancer Center will present The 2019 Patient Conference on Prostate Cancer in San Francisco. CLICK HERE for more information.
Take care and let us know how we can help you with educational resources, support services and personal connections to others in the prostate cancer community.
All the best,
Chuck Strand, Chief Executive Officer
Jackie Konieczka, Office Manager
Terri Likowski, Program Director - Support Group Services