Made possible by charitable contributions from
Bayer , Astellas / Pfizer , Accuray, Augmenix . Thank You!

Navigation Tip: Click on blue text that’s italicized, underlined and in bold for link to more information.


We hope that you’re doing well. Enclosed is the November 2018 issue of the Hot SHEET newsletter featuring Between the Sheets – a new advice column written by experts to help men and women get answers to questions about sexual health and intimacy challenges that can result from prostate cancer treatment. The content is in response to support group leaders voicing the need for more awareness and information about intimacy and sexual health after prostate cancer. Send us an email at to ask a question or let us know what you think about the content. And be sure to check out the new Us TOO web page on Sexual Heath & Intimacy at

Join us next Saturday, November 3, at Prostate Cancer Pathways for Patients and Caregivers – a free educational event and live online webcast at NorthShore Hospital in Skokie, IL , a northern suburb of Chicago. We’ll provide an educational overview of prostate cancer treatment options and side effect management for men who are newly diagnosed, as well as those managing recurring and advanced disease. This event will feature special presentations on erectile dysfunction and incontinence after prostate cancer treatment. In-person attendees will receive free lunch, free parking, and a free copy of Dr. Jeffrey Albaugh’s book, Reclaiming Sex & Intimacy After Prostate Cancer – A Guide for Men and Their Partners (both the first edition and brand new second edition will be available). Attend in person or watch the online webcast with live video and audio from the event. If you haven’t already done so, CLICK HERE to register .  

The GALAHAD clinical research study from Janssen Research & Development is now enrolling men in the U.S. who have metastatic castration‐resistant prostate cancer and DNA‐repair anomalies to participate in a clinical trial of an oral investigational medication for prostate cancer. All participants will receive daily investigational medication. To learn more, please visit: , Study Identifier: NCT02854436

Facing cancer isn’t easy, but LivingWith™ may help. It’s a free app for people living with cancer and those who love them . Designed to help you connect with loved ones, ask for the support you need, remember important information from doctors’ visits and stay organized, all in one place. Visit to learn more and download the LivingWith app for free on your smartphone. It’s available in English and Spanish. is a new website with educational content on several types of cancer, including prostate cancer. Information covers diagnosis and multiple topics on prostate cancer at various stages of the disease.

Throughout next month, grow your "mo" and watch for more men sporting a moustache (known as a “mo” in Australia) in support of the Movember campaign to increase awareness and funding for prostate cancer, testicular cancer, mental health and suicide prevention.

IRONMAN is a registry recruiting 5,000 men with advanced prostate cancer from 9 countries. More than 366,000 men die of prostate cancer globally every year. Research on a man's type of prostate cancer, treatment and side effects will help inform what causes prostate cancer, how to stop or slow its progression, and how to provide the best possible care to enable men to live the best quality life possible. Learn more at: .

The Metastatic Prostate Cancer Project takes a new approach to cancer research in which researchers partner directly with men with metastatic and/or advanced prostate cancer , who share their samples and clinical information in order to speed up important discoveries. The project was launched in January of this year by Count Me In, a non-profit stewarded by the Broad Institute of MIT and Harvard, Biden Cancer Initiative, Emerson Collective, and the Dana-Farber Cancer Institute in an effort to accelerate the pace of discoveries for men with advanced prostate cancer. The project invites participation from men around the country with metastatic and/or advanced prostate cancer to study their cancer using cutting-edge genomic and molecular research studies performed at the Broad Institute. To date, over 580 men have joined the study. Learn more and join: .

For information on managing advanced prostate cancer, visit the Us TOO website and My Prostate Cancer Roadmap with content that includes symptoms of advanced prostate cancer, treatment options, disease management and the impact on patients and their loved ones.

After being an integral player on the Us TOO team for the past 13 years, Amy Woods will be taking a hiatus . She has been a mainstay in developing and managing the annual SEA Blue Chicago Prostate Cancer Walk & Run since the inaugural event in 2005, and has been on the Us TOO staff part-time since 2014 as Director of Development and Fundraising. Amy’s first order of new business is to complete the top item on her bucket list as she and her husband, Larry, depart on an adventure to India next month. We thank Amy for all that she has done for the Us TOO organization and the prostate cancer community, and we look forward to working with her again as a consultant for SEA Blue in 2019.

We are saddened to share the news that long-time Us TOO volunteer Maurine Barinek passed away on Wednesday, October 17. Preceding her in death on May 9 of this year was her husband, Bob, who had advanced prostate cancer. For many years Bob and Maurine volunteered at the Us TOO home office each month to collate and mail the Hot SHEET newsletters. They were a very special couple and we dearly miss them. We extend our prayers and sincere sympathy to the Barinek family and loved ones grieving the loss.

Take care and let us know how we can help provide you with educational resources, support services and personal connections to others in the prostate cancer community.

All the best,

Chuck Strand, Chief Executive Officer
Jackie Konieczka, Office Manager
Terri Likowski, Program Director - Support Group Services
Tim Mix, Communications Manager
Amy Woods, Director of Development