Made possible by charitable contributions from
Bayer , Astellas / Pfizer , Accuray . Thank You!

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Greetings!

As Prostate Cancer Awareness Month winds down, we’re pleased to provide you with the October 2018 issue of the
Hot SHEET newsletter . The intent of this monthly newsletter is to feature current published articles that provide important prostate cancer information. You’ll notice a controversial article about the value of PSA screening on page one. While we respect the studies and analysis behind the article, we encourage informed decision making specific to PSA testing – especially for men who are at high risk for developing the disease. And we encourage you to read Us TOO International Guidelines for PSA‐Based Screening for Prostate Cancer

Also attached to this Hot SHEET is the second issue of Between the Sheets – a new advice column created by experts to help men and women with answers to questions about sexual health and intimacy challenges that can result from prostate cancer treatment. This content is in response to results from a recent survey to support group leaders that identified intimacy and sexual health as underrepresented prostate cancer educational topics. Let us know what you think by emailing us at ustooBTS@ustoo.org .
There's still time to register for our next FREE educational event and webcast on Saturday, September 29, in Englewood, NJ. Attend in person, or watch the online webcast with live audio and video from the event on prostate cancer topics including the impact of treatment on sexual health and intimacy, integrative medicine, advanced disease, immunotherapy, acupuncture and meditation; and learn about the most common health risks for men over 50. Get answers to all of your questions from the experts: Dr. Mazyar Ghanaat, Dr. Tracy Scheller, Dr. Stacy Loeb, Dr. Anne Katz, and Dr. Charles G. Drake. Those attending the event in person will receive a  free lunch free aromatherapy kit , and  free books  on sexual health and intimacy related to prostate cancer (while supplies last).  CLICK HERE  to register today.

Check out the new Us TOO web page on Sexual Heath & Intimacy and the new Us TOO web page on incontinence . Information provided on both topics can be helpful in managing potential side effects of prostate cancer treatment.

Because prostate cancer can be a couple’s disease, a woman may be subject to her own concerns in addition to those she shares with her husband/partner. A Forum for Her is a regular conference call series (and invitation-only Facebook group) from Us TOO which provides women with important peer-to-peer support. Calls are free and participants are not required to share their identity with the group.  Find more information and register to join a call .

Change Together, an online resource managed by the Astellas Stakeholder Engagement team, will be presenting a prostate cancer advocacy webinar featuring leadership from ZERO, PHEN and Us TOO discussing advocacy initiatives that address the needs of the community. The event is on Thursday, October 11, at 11.00 am EST / 10.00 am CT. Registration for the webinar also provides post-event access to the recorded content. 

For information on managing advanced prostate cancer, visit My Prostate Cancer Roadmap . Content includes symptoms of advanced prostate cancer, treatment options, disease management and the impact on patients and their loved ones.

Now through October 15, 2018, eligible men ages 40 and older may register for free or discounted prostate-specific antigen (PSA) tests at LabCorp locations in the United States. Cancer Treatment Centers of America® (CTCA) is partnering with the NFL Alumni Association in recognition of Prostate Cancer Awareness Month to spread the word about the importance of prostate cancer screening. 

Cancer.com is a new website with educational content on several types of cancer, including prostate cancer. Information covers diagnosis and multiple topics on prostate cancer at various stages of the disease.

LivingWith is a new FREE app for mobile devices . It’s designed to help manage life with cancer by connecting with loved ones, asking for help, improving communication with doctors, and staying organized – all in one place. 

CLINICAL TRIAL:
The GALAHAD clinical research study from Janssen Research & Development is now enrolling men in the U.S. who have metastatic castration‐resistant prostate cancer and DNA‐repair anomalies to participate in a clinical trial of an oral investigational medication for prostate cancer. All participants will receive daily investigational medication. To learn more about the GALAHAD study and find out if you may be eligible, please visit: www.clinicaltrials.gov , Study Identifier: NCT02854436

We’d like to thank all participants, donors and sponsors of the 14th Annual SEA Blue Chicago Prostate Cancer Walk and Run that took place on September 9. It was a beautiful day of building camaraderie in the community and honoring prostate cancer survivors/“warriors,” while raising awareness for the disease and funds for Us TOO. SEA Blue donations will continue to be accepted through September 30 at www.seablueprostatewalk.org .  

Mark your calendar and watch for details on the next Prostate Cancer Pathways educational event and webcast in Chicago, IL, on Saturday, November 3 . Pre-register for the event by contacting Terri Likowski at terril@ustoo.org .

Take care and let us know how we can help provide you with educational resources, support services and personal connections to others in the prostate cancer community.


All the best, 



Chuck Strand, Chief Executive Officer
Jackie Konieczka, Office Manager
Terri Likowski, Program Director - Support Group Services
Tim Mix, Communications Manager
Amy Woods, Director of Development