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Greetings!

We hope that the September 2019 issue of the Hot SHEET newsletter finds you doing well. Please join us in recognizing September as Prostate Cancer Awareness Month . Here are some quick facts about the disease:
  • Nearly 175,000 men will be diagnosed with prostate cancer in 2019
  • More than 31,000 men in the U.S. will die this year from prostate cancer; it’s the second largest cancer killer of men following lung cancer
  • Prostate cancer has no symptoms until it’s advanced
  • The disease is always treatable; but if detected early, prostate cancer is often curable
Find more information at:  www.ustoo.org/Facts-And-Stats

We are saddened by the passing of Jim Kiefert , Us TOO Director Emeritus, and founder and former leader of the Us TOO support group in Olympia, WA. Diagnosed with advanced prostate cancer nearly 30 years ago, Jim’s positive approach to life, built on a balance of mind, body and spirit, helped him beat the odds and serve as a life force for many. He passed away from a stroke on August 5. A Celebration of Life honoring Jim Kiefert will be held at 1:00 pm, September 14, 2019, at the Unity Church, 1335 Fern St. SW, Olympia, WA 98502. We extend our prayers and condolences to his wife, family and friends.

Every issue of the Hot SHEET is a collaborative effort of many. We’d like to send a special shout-out to long-time Us TOO Hot SHEET volunteer James Branch , along with columnists and prostate cancer medical experts Dr. Gerald Chodak and Dr. Mark Moyad . Thank you, gentlemen ! We appreciate your ongoing commitment to the Hot SHEET, Us TOO and the prostate cancer community.
 
We’re looking forward to hosting the  15 th Annual SEA Blue Chicago Prostate Cancer Walk & Run on Sunday, September 15, in Lincoln Park! SEA is an acronym for S upport, E ducate and A dvocate; and blue is to prostate cancer as pink is to breast cancer. Register to join us at the event, if possible; or donate or register at SEABlueChicago.org as a virtual mover at no charge if you will not attend in person but want to help fundraise.
 
If you are in the Seattle area on September 22, please join us for a walk around beautiful Greenlake Park!  CLICK HERE to attend or donate to the SEAttle Satellite SEA Blue Prostate Cancer Walk .

Recently,  Congress expanded the geographic limits for exposure to Agent Orange . Veterans who served on vessels within 12 nautical miles seaward from the demarcation line of waters of Vietnam and Cambodia as defined in Public Law 116-23 (Blue Water Navy) between January 9, 1962, and May 7, 1975, are presumed to have been exposed to herbicides such as Agent Orange and may be entitled to service connection for conditions related to that exposure.   CLICK HERE to read more and find additional information including a LIST OF CONDITIONS .
 
Consider adding to your prostate cancer knowledge with a new book by leading expert Dr. Jeffrey Albaugh, who is also a regular contributor to the Hot SHEET Between the Sheets column. Featuring patient stories about hope and guidance for those facing prostate cancer, Reclaiming Sex & Intimacy After Prostate Cancer, A Guide for Men and Their Partners, 2nd Edition helps men cope with the challenges of a prostate cancer diagnosis. CLICK HERE for more information .
 
Free registration is now open for the Us TOO Pathways educational event series. Plan to attend in-person or watch the webcast with live audio and video. To register for the Pathways event in Detroit, on Saturday, Oct. 12, send an email to pathways@ustoo.org . To register for the Pathways event in Chicago on Saturday, Nov. 9, CLICK HERE .

Inspire Patient Pulse  recently featured AN ARTICLE about the recognition of  prostate cancer being a “couple’s disease”  relative to the potential impact that treatment side effects can have on the sexual health of a man, intimacy with his partner, and overall quality of life.

The Prostate Cancer Foundation has recently updated their patient guide to reflect the very latest research and discoveries for prostate cancer patients.  CLICK HERE to download the updated digital copy .

BRCA Blue  is an initiative to help educate patients and caregivers about the  connection between BRCA gene mutations and prostate cancer.   While some people may have heard about BRCA genes and their relationship to breast and ovarian cancers, research has shown a connection to other cancers as well – including prostate cancer. Men who have a BRCA mutation are at a higher risk for developing prostate cancer than men without a BRCA mutation. To learn more about this important gene visit BRCABlue.com .

IRONMAN is a registry recruiting 5,000 men with advanced prostate cancer from nine countries. More than 366,000 men die of prostate cancer globally every year. Research on a man's type of prostate cancer, treatment and side effects will help inform what causes prostate cancer, how to stop or slow its progression, and how to provide the best possible care to enable men to live the best quality life possible. CLICK HERE for details. 

The Metastatic Prostate Cancer Project is a nationwide genomic research study for men with metastatic and/or advanced prostate cancer. Patients can join online and participate by sharing their medical information and samples. The project’s goal is to release new data to help researchers better understand metastatic and advanced prostate cancer, and accelerate discoveries.  CLICK HERE to learn more.

Join PCRI from September 6-8 for the 2019 PCRI Prostate Cancer Patient Conference and get face to face with prostate cancer experts in every field. Hosted at the Los Angeles Airport Marriott, the PCRI conference is a full-featured educational experience for prostate cancer patients and caregivers. Each day consists of straightforward presentations, extended Q+A sessions, individualized small-group sessions, and a variety of fun and enriching activities to facilitate camaraderie. You can expect to gain a comprehensive knowledge of your disease and become empowered to make the best decisions for your life. Choose your strategy and win the fight!  Watch the new PROMOTIONAL VIDEO ; and REGISTER using the code "ustoo" for a discounted patient registration rate of $30.00.

Malecare is hosting a Prostate Cancer Patient Conference  on October 5. Presentations throughout the day will feature 12 physicians, including six from Memorial Sloan Kettering, breakfast, lunch, snacks and drinks. Discounted rooms are provided at the Intercontinental Barclay hotel in Manhattan.  REGISTER with the promotion code "UsTOO" for a 50% discount .
 
Check out the latest issue of the EUROPA UOMO newsletter for prostate cancer initiatives in Europe. And participate in the European Prostate Cancer QUALITY OF LIFE SURVEY from Europa Uomo. The success of this online survey depends on a strong response rate by its member organizations in 27 countries.
 
The 2019  Hope Is Like Air  campaign for prostate cancer awareness will involve displaying thousands of blue pinwheels across the U.S., as blue is the color chosen to represent the prostate cancer community. CLICK HERE for more information.

We encourage you to do what you can during September to raise awareness for prostate cancer! Take care and let us know how we can help you with educational resources, support services and personal connections to others in the prostate cancer community.


All the best,



Chuck Strand, Chief Executive Officer
James Hutson, Development Director
Jackie Konieczka, Office Manager
Terri Likowski, Program Director - Support Group Services
Tim Mix, Communications Manager