When Natasha and Will Burgess’ daughter Daisy was diagnosed with Pitt-Hopkins Syndrome, they didn’t know where to turn. Pitt-Hopkins is a rare genetic disorder affecting less than 1,300 children around the world, with little information and resources available online. So when the Burgess’ saw that UCSF Benioff Children’s Hospital was doing a clinical trial for the disorder, they traveled from their home in Canada to San Francisco, and came to Family House. From the moment the Burgess’ came to stay at Family House in October, they felt a sense of community. “Family House is so inclusive and understanding. There’s zero judgement if you need anything. It makes us feel like a part of a community, rather than taking advantage of something. We feel like part of a family here.” Read their story.