Drug development is a complex process which is why FAST has laid out a Roadmap to a Cure which visualizes the work we do into four pillars. These pillars guide decision-making and strategy in order to bring promising programs into clinical trials as quickly as possible for individuals living with Angelman syndrome. 

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A recent article came out from RareParenting.com titled the “Cost of a Rare Disease Cure” which sheds light on the drug development process and how rare diseases have an arduous journey compared to more common disorders. With mentions of several rare disease patient advocacy groups, including FAST, this is a helpful resource to understand the process and what it takes to bring a promising therapeutic from bench to bedside for rare diseases like Angelman syndrome. 

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We are just 9 days away from International Angelman Day (IAD) 2024. February 15th is a special day for the global Angelman syndrome community to come together — it’s significant because February is Rare Disease month and the 15th refers to the 15th chromosome, which is the chromosome impacted by AS. 

FAST has collected and created resources to help the community find a way to participate with others around the world on this special day. We look forward to seeing what everyone has come up with!

Remember to tag us on social media, use hashtags #IADFeb15 #cureangelman #angelmansyndrome or email us with photos of how your community got involved! 

Check out our IAD resources:

Our community often gets asked the same question from family, friends, and colleagues: “How can we help?” One simple way is to make a donation. 

Every page, every donor and every dollar raised gets us one step closer to a cure for Angelman syndrome. Start your personal campaign today or share the link below with your community who is eager to support you and your loved one living with Angelman syndrome.

Create your CAN fundraising page today:

Donate to support FAST: