IPUL's E-News for December 4, 2020
Here are the highlights of our recent activity online. Not all everything is included due to timeliness. If an advertised event already took place, we've left it off.
IPUL (Was) Live with the Idaho Family Caregiver Navigator Project
a screen capture from the event
We went live this week on Facebook to discuss the Idaho Family Caregiver Navigator Project

You can view it by clicking the image or this link, right here.
Family Voices Wants To Know What You Think!
(And you could be paid for it)
Family Voices Focus Group Flyer
FOCUS GROUP $125 STIPEND

For some families, finding a diagnosis for their child is a long journey. They consult multiple specialist, their child undergoes many diagnostic tests, they incur high medical bills, and still don't have answers .

What would it mean to have a program specifically designed to match families with world class multidisciplinary clinical teams to
  • Provide a comprehensive consultation
  • Help obtain a diagnosis, and
  • Even if unable to find a diagnosis, develop an improved plan of care

Family Voices is convening a focus group to understand how families would like to learn about a program like this.

  • The focus group will be virtual, in English, and will last 75 minutes
  • Participants will receive a $125 stipend in recognition of their time
  • The information learned during the focus group will be shared with an anonymous funder - Your name will not be shared or reported.

To be eligible to participate, you must be a parent/caregiver:
  • Of a child younger than 18 years of age with a high degree of medical complexity who has an undiagnosed condition
  • Who has consulted multiple specialists and/or health systems to help diagnose and manage their child's health

The Focus Group will take place on Tuesday, December 15, 2020 from 3 to 4:15 ET PM; 2 to 3:15 PM CT; 2 to 3:15 PM MT; 1 to 2:15 PM PT; 10 to 11:15 AM HT.

If interested please complete the survey at https://www.surveymonkey.com/r/DO_Focus_Grp
by 9 PM ET on Tuesday, December 8

Have questions now? Email: Cara Coleman at ccoleman@familyvoices.org

Work of Art - Boise
We recently finished our all-remote Work of Art session in Boise and shared this from it:

"Thank you Scott for joining IPUL's Work of Art Boise teaching team along with Amy Nack and Heather Bee. The students are having a blast!" - Heather Kirk
art from Scott  showing multiple anthropomorphic fruits and veggies
So, I've been teaching an art class lately for IPUL, Idaho Parents Unlimited. It's been actually really fun and puts me in a good mood for the rest of that day! The kids are great!! We have been concentrating on taking vegetables or fruits and making them into fun cartoons. Here are the ones I have done so far.
Survey on COVID-19 Stress and Autism
We know you're all receiving a lot of surveys, but your feedback is so needed. Please check this out:

Greetings Friends and Colleagues, researchers at the Center on Disabilities and Human Development have been working on a project to identify stress levels and specific stress-producing factors in parents or caregivers who have children of any age with autism living in their home.

We are specifically looking at stress-producing factors during the COVID -19 pandemic. To that end, we have created a survey. We are asking that you either complete the survey yourself as a family member, and/or that you share this email with other families/professionals who you may serve or know. The questionnaire includes a total of 26 items with 2 related questions for each item and should take approximately 20 minutes to complete.

The first page is a Consent Letter. Once you submit your consent to participate, the survey will be displayed. The arrow at the bottom right of the screen will advance you to the next page of the survey. All responses are anonymous. If you would like to receive a report once we have summarized the results- we would be happy to share. My contact information is below. Please forward this email to anyone living in Idaho that may be interested in completing or distributing the survey. Let me know if you have questions or concerns.

Thank you for your consideration, Julie


Julie A. Fodor Ph.D.
Director, Center on Disabilities
And Human Development
Associate Professor,
Curriculum and Instruction
College of Education, Health and Human Sciences
208 885-6128
jfodor@uidaho.edu

IPUL is Hiring!
Parent Education Coordinator

Idaho Parents Unlimited, Inc., (IPUL) a 501(c)(3) nonprofit organization, provides training, resources, support, and one to one assistance for parents of children with disabilities and special health care needs, as well as accessible and inclusive arts programming. IPUL is seeking a Parent Education Coordinator in our Boise office.

Necessary skills:
- Must represent Idaho Parents Unlimited and its guiding principles.
- Must have strong knowledge of and experience with Idaho Special Education and the Individuals with Disabilities Education Act as well as experience with health systems including Medicaid, Developmental Disabilities, and Behavioral Health.
- Must have an understanding of family-centered care, family-engagement, and the importance of parent and professional collaboration.
- Must have the ability to respond effectively to changes and challenges and make effective adjustments where and when necessary.
- Public speaking and presenting to large and small audiences in person and virtually is required.
- Must have strong verbal and written communication skills.
- Must be highly resourceful and self-motivated
- Must maintain daily confidential records of communication and interactions with families and professionals using our cloud-based database.
- Must be professional and adhere to privacy laws and ethical guidelines.
- Must be able to function in a flexible work environment that will include different locations and may require working from home.
- Must be able to operate a variety of up-to-date technology and systems with which to perform daily duties.
- Must possess a proven ability to work effectively and respectfully with a broad range of people from diverse cultural, ethnic and socio-economic backgrounds.
- This position will be working from our central Boise office, however due to current pandemic restrictions, applicants must have the ability to set up a confidential, professional home office.

Details:
While the general position hours are set between 9-5 on weekdays, due to training workshops and regional or national meetings and conferences, the position requires flexibility and will include evenings, weekends, and extensive travel both in-state and out-of-state. (when not in pandemic lockdown)
Approximately 30-40 hours per week/$14.00 per hour.

How to apply:
Please email your resume to jobs@ipulidaho.org

Please no phone calls.

Parents of children with disabilities strongly encouraged to apply
Bilingual in English / Spanish is a plus

Idaho Parents Unlimited is proud to be an equal opportunity employer and we value diversity and inclusion.
Next Week!

Positive Behavior Interventions and Supports
- IPUL's December 2020 Statewide Presentation
flyer showing a youth holding his head while someone comforts him and a crying toddler and young girl
This training will provide parents resources for addressing behavior. Additional information about functional behavior assessments and behavior interventions that can be used in home, school, and community settings will be provided. Information is also provided to help parents understand discipline for students with disabilities in schools and related placement decisions.

Our statewide presentation is webcast monthly live via Zoom Webinar. Registration is required.

Once you have registered, you will be sent an email with your registration confirmation as well as a link so you can join the webcast when it goes live.
Due to the ongoing COVID-19 pandemic, IPUL will only be offering this presentation online.

We will be offering this training on Wednesday, December 9, 2020 at 6:00 PM Mountain Standard Time

Phone: (208) 342-5884
Email: parents@ipulidaho.org
question ask here
Contact Idaho Parents Unlimited!

The best method to reach us for assistance is through our website:  
https://ipulidaho.org/connect-with-us#contact-us-here . You can also shoot us a question using the abbreviated version of that form at the bottom of every page on our website, although we may need to get more information from you.

We monitor our intake phone line (208-342-5884) several times a day, and will try to respond to any request there within 24 hours. We use an automated intake phone system, so you will be leaving a message.

For questions that are not about something in our scope of work, you can still leave a phone message as above, send the question to the form on our website, or shoot us an email at parents@ipulidaho.org.

We keep our website updated with new news and events, and maintain a presence on Facebook, Instagram, and Twitter.
IPUL's programs are funded through grants and contracts with the following:
logos for f2fhic  idaho family voices  ideas that work and vsa