IPUL's E-News for March 4, 2022 |
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Here are the highlights of our recent activity online. Not everything is included due to timeliness. If an advertised event already took place, we've left it off. |
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Questions And Answers With You in 2022 - Week 9 Answer |
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Idaho Parents Unlimited
Engage + Educate + Bridge + Lead
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For week 9 we asked: "Can I be paid to be my child's caregiver?"
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The current Public Health Emergency (PHE) has been extended through April 2022.
The Biden administration has promised a 60 day notice to states prior to the expiration of the PHE.
One of the temporary allowances granted In Idaho during the current PHE is that the parent may be the paid caregiver, when providing PCS (personal care services) as employed through a home health agency. A nurse reviewer through the Department of Health and Welfare will work to determine eligibility for these services.
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#QuestionsWithYouIn2022
Facebook and Instagram: /IdahoParentsUnlimited
Twitter: /IPULIdaho
ipulidaho.org
parents@ipulidaho.org
208.342.5884
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IPUL On The Road!
IPUL Will Be In North Idaho March 7, 8, & 9
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IPUL will be in North Idaho next week for several events - We are doing 2 presentations at Tools For Life on March 7. |
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LOCATION:
TOOLS FOR LIFE
Best Western Plus
1516 Pullman Rd
Moscow, Idaho
Parents attending these two sessions - there's no need to register
Monday
March 7, 2022
MORNING SESSION
8:15-9:15 AM
Transition to Adult Services
Tips and strategies to help families and youth prepare to move from pediatric care to adult care services in health care, community living and more.
breakfast and coffee provided
Monday
March 7, 2022
EVENING SESSION
6-7 PM
What can life look for our children when they become adults?
light snacks provided
Discussion, Q & A, and tips with parents and families who have various experiences in supporting their children to live as independently as possible.
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IPUL Will be Live in North Idaho March 8 & 9! |
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Northern Idaho!
CREATING CHANGE THROUGH PARENT VOICE:
Policy Advocacy Training
(Updated with locations!)
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Feel passionately about how Idaho can improve access to important services infants and toddlers need to thrive? Want to learn how to use your voice as a parent to change policy?
Attendees will learn how to share their story as parents of young children, how to contact their state legislators, and develop confidence about how to engage with the lawmaking process. Join Idaho’s First Steps Alliance and Idaho Parents Unlimited for a two-hour, in-person advocacy training session to step into your power as parent in this state.
OBJECTIVES
* Participants will learn skills to frame stories about their lived experiences as parents and caregivers and how to share them with lawmakers
* Participants will learn what it means to advocate around policy matters at the state and federal local level
* Participants will have opportunity to practice sharing their stories with others
Taking place live and in-person - This will be the same training but held at different locations.
From Idaho First Steps Alliance and Idaho Parents Unlimited
Creating Change Through Parent Voice
TUESDAY March 8, 2022
12 Noon, Pacific
Lewiston, Idaho
LOCATION:
Hampton Inn
2701 Nez Perce Drive
Lewiston, Idaho, 83501
OR
WEDNESDAY March 9, 2022
1:00 PM Pacific
Coeur d'Alene, Idaho
LOCATION:
The Village Bakery
190 W. Haden Avenue
Hayden, ID 83835
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March 8: Meet And Greet at
The Green Apple Project
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Calling Idaho Artists for the 2022 Mental Health Month Art Exhibition |
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Brought to you by Empower Idaho and the Idaho Federation of Families
You are invited to submit original artwork to be featured in the 2022 Idaho Mental Health Month Art Exhibition!
The 2022 Idaho Mental Health Month Art Exhibition is open to all Idahoans who identify as having a relationship with mental health. This event is scheduled for May 21, 2022.
ALL AGES WELCOME
ALL MEDIUMS COMPATIBLE (paint, collage, pencil, poetry, movement, etc.)
ALL SKILL LEVELS ARE WELCOME AND CELEBRATED!
You will have the opportunity to talk about your piece(s), if you are comfortable, during the virtual event.
If you would like to participate, please email: ajones@idahofederation.org
Pieces will be accepted until April 30, 2022.
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Focus on #RareDiseaseDay2022 - Amber and Angela |
In honor of #RareDiseaseDay2022, we would like to feature Amber and her mom, Angela Tripp Lindig.
Angela is one of the fierce and brilliant Family Advocate leaders we are fortunate to partner with in the WSRGN. She is the Director of Idaho Parents Unlimited , which supports, empowers, educates and advocates to enhance the quality of life for Idahoans with disabilities and their families. Her daughter Amber's story has been an inspiration to us all over the years and is a prime example of why finding a genetic diagnosis for #RareDiseases matters.
Amber received a diagnosis of developmental delay as an infant, but that was changed to atypical Rett Syndrome when she was 7. However this was not a perfect fit. When Amber was 23 years old, newer, more detailed genetic testing was finally available to her. Whole exome sequencing (WES) revealed that she has HNRNPH2 Related Disorder, an incredibly rare condition. Receiving the correct diagnosis allowed her parents to learn about symptoms they were not aware of, including cortical visual impairment. Therapies tailored to her needs allowed Amber to improve her communication skills in just one year.
As a result of their family's diagnostic journey, Angela is working on a campaign with the Yellow Brick Road Project about why diagnosis matters and is working to help families access WES testing. Their family is also now able to connect with a growing network of families around the world with children with the same condition.
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March 2022 Statewide Training:
Steps to Independent Living
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Steps to Independent Living
Join us on Tuesday, March 15, 2022 at 12:30 PM MST (11:30 AM PST) for our monthly training series, followed by an interactive question and answer period!
A thoughtful discussion of various options for parents and their children/youth with disabilities in planning for the future
Tuesday, March 15, 2022
12:30 - 1:30 PM MST Live on Zoom
(11:30 AM - 12:30 PM PST)
Live workshops will no longer be recorded so the chat feature will be available
ipulidaho.org
208-342-5884
parents@ipulidaho.org
Point your smartphone at the QR code to be taken directly to IPUL's registration page
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Contact Idaho Parents Unlimited!
The best method to reach us for assistance is through our website:
We monitor our intake phone line (208-342-5884) during the workday, and will try to respond to any request there within 24 hours. We use an automated intake phone system, so you will be leaving a message. (Please be sure the number you are leaving us can accept text or voice messages.)
For questions that are not about something in our scope of work, you can still leave a phone message as above, send the question to the form on our website, or shoot us an email at parents@ipulidaho.org.
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IPUL's programs are funded in part through grants and contracts with the following: |
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