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IgAN Compass


A monthly newsletter, guiding our community through the latest news, research, and patient resources. You are not alone.


Volume 2025

Issue April

Celebrate Donate Life Month

Celebrate National Minority Health Month

Celebrate Stress Awareness Month

Webinar: How best to eat for IgA Nephropathy 4.2

Webinar: How find a kidney donor through Social Media 4.16

Webinar: Learn about an approved treatment option for IgAN 4.30

National Donate Life Month (NDLM) was established by Donate Life America and its partnering organizations in 2003. 

In 2025, let life sing! Birds are known across many cultures as one of the most welcomed and visible signs of spring. They represent both new beginnings and visits from loved ones who have passed away. The yearly return of birds and their songs offer us a sense of peace and hope.


National Donate Life Month is a time to educate about organ, eye and tissue donation, and to honor and remember donors and the lives they have saved and healed. Your decision to be an organ, eye and tissue donor gives hope to the 100,000 people on the national organ transplant waiting list who are waiting for a second chance at life.


During National Donate Life Month and throughout the year, join us in helping save and heal lives: register your decision to be an organ, eye and tissue donor, learn more about living donation, and support the Donate Life cause.

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JOIN US


DEADLINE TO APPLY FRIDAY, APRIL 4TH


ACT NOW

RAISE YOUR VOICE FOR RARE KIDNEY DISEASE


We're heading back to Washington, D.C., on September 10-11, 2025, for our 2nd Hill Day! If you're a patient or family member interested in joining us, apply now. Space is limited, and selections will be confirmed via email by April 15th. Help us make an impact—apply today!

Apply Here

ARE YOU READY FOR

IGAN AWARE DAY?

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CALLING ALL CAREGIVERS + CAREPARTNERS


Your voice matters. Your experience matters. And most of all, you are not alone in this journey.


As part of our Caregiver/Carepartner Night Out & Summit on September 27, 2025, in Jersey City, NJ, we are hosting a special Caregiver Roundtable—a small, dedicated discussion to share insights, challenges, and support.

We’re looking for a diverse group of caregivers to participate.



Apply now for this unique opportunity to connect, reflect, and help shape the future of caregiver support in the IgAN community.

Apply Here


UPCOMING APRIL EVENTS

WEBINAR How Best to Eat For IgA Nephropathy

Tuesday, April 2, 2025

Join us on April 2nd as expert renal dietitian Lauren Budd Levy helps us decode the renal diet specifically for IgAN. Register now to attend live or receive the on-demand recording after the event!


This webinar is in partnership with American Kidney Fund


RSVP

CAREGIVER/CAREPARTNER SUPPORT GROUP

Tuesday, April 15, 2025

7:00 PM ET


Connect with other Caregivers and CarePartners. Join us and share your story.

Contact alena@igan.org for more info

Join Us

Harnessing Social Media to Find a Living Kidney Donor

Wednesday, April 16, 2025

7:00 PM ET



Finding a living kidney donor can feel overwhelming, but social media can be a powerful tool to amplify your message and connect with potential donors.


Finding a donor is possible. Let’s make social media work for you!

Join Us

PATIENT SUPPORT GROUP

Monday, April 21, 2025

7:00 PM ET

Connect with other IgAN patients.

Join us every 3rd Monday of the month. Contact john@igan.org for more info

Join Us
RSVP TODAY

Clinical Trial Feature: Do You Qualify?

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Now Enrolling: A Study to Evaluate the Efficacy and Safety of Sefaxersen (RO7434656) in Participants With Primary Immunoglobulin A (IgA) Nephropathy at High Risk of Progression


IMAGINATION is a phase 3, randomized, double-blind, placebo-controlled trial that aims to evaluate a novel therapy, Sefaxersen (RO7434656), in adults with IgA Nephropathy to establish its effectiveness and safety in treating this condition.

Considering a Clinical Trial but not sure what that entails? Check out our guide on navigating Clinical Trials and what to expect. Considering a Clinical Trial

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Want To Have A Greater Impact?


Support IgAN research all year long by becoming a monthly supporter; select the “make this a recurring donation deducted monthly” box under your address in the donation form. 100% of donations go directly to IgAN Dedicated research.

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