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Keeping the Momentum Going - Following the success of our May Breakfast Benefit, which featured the inspiring stories of Dave Dravecky and patient advocate Joan Venticinque, thesecondopinion is proud to announce a new quarterly feature in our e-newsletter. Each quarter, we will spotlight a patient advocate who is making a difference in the lives of cancer survivors and contributing to advances in cancer research and funding. These stories will celebrate resilience, advocacy, and the power of community in the face of cancer.
By Joan Venticinque, Patient Advocate, TSO Volunteer
I am excited to introduce the first quarterly feature in our e-newsletter spotlighting patient advocates. These individuals are making a real difference in the lives of cancer survivors and contributing significantly to advancements in cancer research. In this article, I will highlight how a dedicated group of advocates has been essential in ensuring the patient’s voice is heard in one of the nation’s largest adaptive breast cancer trials.
Having faced two breast cancer diagnoses five years apart, I learned a vital lesson: treatment decisions are rarely simple or straightforward. When seeking answers, I realized there was a gap between the questions I was asking and the information I received. While my caring physicians provided a “risk percentage” for cancer recurrence within five years, I wondered about the basis of that number. Was it derived from studies of people truly like me? How similar were their tumors to mine? How will the recommended treatments stop the cancer
from returning? How would we know if they were working? What about side effects? Are there other treatment options? These questions are common—most patients need this information to make informed decisions.
Click here to read more about advocate contributions to the I-SPY 2 Trial.
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