The Broadsheet - Lower Manhattan’s Local Newspaper
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In Utero
Cancer Type Long Excluded from World Trade Center Health Program and Compensation Fund Now Covered
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NYPD detective Carol Orazem (shown here at the World Trade Center site in the days after the attacks) is one of many female survivors of or responders to the terrorist attacks of September 11, 2001. The toxic debris spread across Lower Manhattan on that day and in the following weeks and months was known to contain four endocrine-disrupting chemicals classified as “known or probable human carcinogens,” and linked to cancers of the uterus.
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The World Trade Center Health Program announced on Wednesday that it has officially decided to expand its list of covered conditions to include all types of uterine cancer, including endometrial cancer. This means that women enrolled in the Health Program who have been diagnosed with uterine or endometrial cancer (provided they meet all other eligibility and certification requirements) are now eligible for treatment with no out-of-pocket costs. The new policy also means that responders and survivors suffering from uterine cancer will additionally be able to file for payment from the September 11th Victim Compensation Fund.
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“This is significant as it not only provides access to life-saving care and treatment,” said Health Program administrator Dr. John Howard, “but also recognition for the women who sacrificed so much on and after September 11 that their diagnosed uterine cancer is a World Trade Center-related health condition. A critical gap in coverage for women in the program has been eliminated. All types of cancer, if determined to be related to September 11 exposures, are now covered by the World Trade Center Health Program, providing women equal access to the treatment they deserve.” This was a reference to the fact that cancers of the uterus were the last remaining type that were not eligible for treatment or compensation, an omission that activists and advocates have fought for many years to remedy.
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Kimberly Flynn (left), the director of 9/11 Environmental Action, explains that in the fall of 2021, “Dr. Howard requested that the Scientific/Technical Advisory Committee [STAC] meet publicly to consider whether there was sufficient basis to add uterine cancers to the list of World Trade Center conditions. When the first meeting was announced, I called a friend who was a September 11 disaster relief volunteer and we pulled together a group of responders and survivors, some enrolled in the Health Program and some not, because they were told their cancers could not be certified as World Trade Center-related. At the September 2021 STAC meetings, these women addressed public comments to the panel, describing what it was like to fight to survive cancers they firmly believed were September 11-related, while fighting the demoralizing sense of being unfairly excluded from World Trade Center care.”
In November 2021, the STAC conveyed its recommendation to Dr. Howard uterine cancers be added to the list of covered conditions, along with a detailed scientific rationale accompanied by supporting documentation. Six months later (in May, 2022), Dr. Howard issued the proposed rule to add all uterine cancers to the list of World Trade Center conditions. Those plans then underwent mandatory independent peer review. The STAC also noted in its recommendation that, “other than uterine cancer, all cancer types now are covered as World Trade Center-related conditions.”
“The key point,” Ms. Flynn notes, “is that this long-overdue correction is underway. All uterine cancers will be added. Women have suffered in the decade-long gap from 2012—when the vast majority of cancers were added for coverage—up to now.”
Why did this take so long? Statistical groups known as “occupational cohorts” are the primary basis for research linking environmental exposures to cancers. And these groups are overwhelmingly male. This means that female responders (and survivors) are left largely unstudied.
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Mariama James (right), a Lower Manhattan resident who is a STAC member, and who has led the charge for accountability, transparency, and support for survivors for almost two decades, said at the panel’s September 2021 meeting, “you cannot know how September 11 exposures are impacting women and children by studying only 50-year old men.”
Ms. Flynn adds, “because, under the Zadroga Act, the Health Program relies on research for adding new conditions for care, research gaps translate into care gaps. While we are pleased and relieved by the addition of this cancer that afflicts only women, we are calling for the program to do a better job of meeting the research needs of women and young adults—the people exposed to September 11 as children. The gaps in recognizing and caring for conditions that uniquely or primarily affect them need to be closed, so these groups need a new research focus.”
The Health Program estimates that the addition of uterine cancer to the list of covered conditions will translate into extra costs of between $1.7 million and $2.2 million each year, between through 2025. Benefits are expected to include, “improved access to care and better treatment outcomes than members would have in the absence of program coverage.”
The scientific evidence supporting this proposal comes down to four endocrine disrupting chemicals (EDCs) that are known to have been present in the toxic debris that spread across Lower Manhattan on September 11, 2001, and in the weeks and months that followed. Each of these are classified as “known or probable human carcinogens.” Adjusting for the relatively small number of female subjects in the population of responders and survivors who have been studied, while accounting for the incidence of uterine cancer, “support[s] the inference that some EDC 9/11 agents may also be linked to uterine cancer,” according to the Health Program’s analysis.
Women who have been diagnosed with uterine cancer at least four years after September 11, 2001, are urged to enroll in the World Trade Center Health Program immediately, and begin the process of getting their conditions certified as eligible for treatment. Women who are already enrolled in the Health Program and are experiencing symptoms of uterine cancer should contact their Clinical Center of Excellence (CCE) or the Nationwide Provider Network (NPN). Program doctors will review their symptoms and refer members for further evaluation, as medically appropriate. Health Program members who have already been diagnosed with uterine cancer should contact their CCE or the NPN to confirm that their cancer qualifies for certification and to learn more about treatment through the program.
Matthew Fenton
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For Diners Both Perspicacious and Parsimonious
Restaurant Week Offers Discounts at More Than 30 Lower Manhattan Eateries
New York’s annual food celebration, Restaurant Week, is now underway and continuing for almost four weeks, through Sunday, February 12. For those whose definition of “locavore” hinges not on the food’s source, but instead where it is consumed (hint: below Canal Street), the glad tidings are that nearly three dozen Downtown boîtes are participating, offering a range of styles and cuisines. Read more...
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In Memoriam: Kathy Gupta (1950-2022)
Another Leader Who Helped Build (and Rebuild) Battery Park City Lost to September 11-Related Illness
On Saturday, longtime Battery Park City resident and community leader Kathy Gupta died in her home, in Gateway Plaza. This makes her the latest in a succession of community leaders and longtime residents made gravely ill and then taken by an illness arising from exposure to environmental toxins on September 11, 2001, and in the weeks and months that followed. Read more...
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Thursday, January 19
6:30pm
Livestreamed and in person at the Museum of Jewish Heritage, 36 Battery Place
The Neiger family was living a peaceful life in the Jewish community of Krakow when the arrival of World War II changed their lives forever. Their story is told in They Survived Together, winner of Best Historical Documentary, New York Emmy’s 2022. This screening of the film will be followed by a discussion with the creative team. $10 suggested donation.
Friday, January 20
8:30am
6 River Terrace
Improve balance, strength and focus through gentle exercises. Free.
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On January 8, the China Institute celebrated the Lunar New Year with an afternoon festival. At one workshop, children practiced printing and Chinese calligraphy. See below for more Chinese New Year events around Lower Manhattan this weekend.
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Saturday, January 21
10:30am
Skyscraper Museum, 39 Battery Place
Learn about Poy Gum Lee, a Chinese-American architect who designed buildings in China and New York’s Chinatown. We’ll learn about “Chinese Art Deco,” the style he popularized in the 1950s. Then, kids will build and decorate their own pagoda towers inspired by traditional Chinese architecture. Recommended for ages 7-12. RSVP required. Free.
12:30pm
Begins outside the Tin Building and wind its way to the north side of Pier 17
The traditional lion dance is often performed to celebrate Lunar New Year and other festive occasions.
1pm
12 Fulton Street, South Street Seaport Museum
Hands-on workshop that will teach participants how to use traditional Chinese calligraphy brushes to write simple characters. Also 2pm and 3pm. Free.
1pm–5pm
12 Fulton Street, South Street Seaport Museum
Celebrate the Lunar New Year with this maritime-inspired spin on a Chinese lion chain craft. Create your own unique lion chain decoration using paper links inspired by the colorful signal flags that sailors use to communicate. Free.
2:30pm–5:30pm
Museum of Chinese in America, 215 Centre Street
Ring in the Year of the Rabbit with an afternoon of festivities for the whole family. Lion dance, noodle-pulling demonstration, Mandarin lesson, ribbon dance workshop, erhu music, arts and crafts. Free. RSVP required.
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Lower Manhattan Greenmarkets
Tribeca Greenmarket
Greenwich Street & Chambers Street
Saturdays, 8am-3pm (compost program 8am-1pm)
Fulton Stall Market (indoor)
91 South Street, between Fulton & John Streets
Monday through Saturday,11:30am-5pm
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Today in History
January 19
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Montagne Sainte-Victoire, painted in 1904 by Paul Cezanne (born on this day in 1839).
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1861 – In the Civil War, Georgia joins South Carolina, Florida, Mississippi, and Alabama in declaring secession from the United States.
1920 – The American Civil Liberties Union is founded.
1937 – Howard Hughes sets a new air record by flying from Los Angeles to New York City in 7 hours, 28 minutes, 25 seconds.
1953 – Almost 72% of all U.S. television sets are tuned to I Love Lucy to watch Lucy give birth.
1986 – The first IBM PC computer virus is released, dubbed (c)Brain.
2013 - Calcium deposits are discovered on Mars by NASA’s Curiosity Rover
Births
1807 – Robert E. Lee, Confederate general (d. 1870)
1809 – Edgar Allan Poe, short story writer, poet, and critic (d. 1849)
1839 – Paul Cézanne, French painter (d. 1906)
1908 – Ish Kabibble, comedian and cornet player (d. 1994)
1930 – Tippi Hedren, model, actress, and animal rights-welfare activist
1939 – Phil Everly, singer-songwriter and guitarist (d. 2014)
1943 – Janis Joplin, singer-songwriter (d. 1970)
1953 – Desi Arnaz, Jr., actor and singer
1954 – Cindy Sherman, photographer and director
Deaths
1957 – József Dudás, Romanian-Hungarian activist and politician (b. 1912)
1975 – Thomas Hart Benton, painter and educator (b. 1889)
2013 - Stan Musial, baseball outfielder, Major League Baseball All-Star, dies at 92
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