Introducing The FA App!
Dear FA Community members, 

I am pleased to inform you of a new information and connection tool available for free right on your phone- Introducing The FA App!  
It allows all community members (Individuals with FA, family, friends) to:

  • Connect with one another 
  • Read the latest FA news and blogs and see useful questions & answers 
  • Have access to all kinds of useful tools like appointment trackers and gratitude journals 

The FA App mission is stated as: Power the Cure! It's mission is to connect and empower individuals with FA worldwide so we can all participate meaningfully in finding a cure for FA. 

Please download the App now and share it with all members of our broader FA community.  
FARA is proud to be a launch partner of The FA App. You can find links to the app stores at or you can just search for ‘The FA App’ in either AppStore or Google Play. 


Jen Farmer,
The FA App is research focused!
We can all contribute to research that will bring us closer to a cure, no matter where we live. 

How? The FA App has a “Research" section which has information on clinical trials and research studies that are active and enrolling. You will be able to submit your expression of interest in any of the studies directly from The FA App. In addition, The FA App has a Virtual Trial section - which will allow researchers to launch new research surveys and studies and App users can participate in these exciting new research projects from home. The more of us that have the App downloaded and ready to reply to those virtual trials, the better and faster the research can be conducted.
So please: 

  • Download the app, create an account, and keep the App on your phone/tablet 
  • Make sure notifications are turned on, so you know when new research is starting 
There is an ability to give any feedback and suggestions to the community members who built the App from within the App, by clicking on Settings - Send Feedback. Stay tuned for useful additions to the App with each upcoming release.