Thank you for all of your efforts to fill our logo with hope during November - Epilepsy Awareness Month! Friends of HH have baked, shared stories, joined HH, made donations and so much more! We are truly grateful.
2016 has been an incredibly busy year for the foundation. We relaunched the website, organized the 3rd International Symposium on HH, launched Instagram and Twitter channels, founded a UK affiliate, walked & ran for HH around the world, and celebrated the discovery of an HH pathway and the launch of a clinical trial using focused ultrasound to ablate tumors. Read on to learn about all of the success of the past year.
There's still much to do! And we need to engage all 30,000 patients diagnosed with HH worldwide! In the year ahead, our Medical Advisory Board recommends we launch a comparative effectiveness study and a tissue biobank. And our Board wants to support even more newly diagnosed families as well as those living each day with HH with up-to-date information and resources. Hope for HH also wants to continue our work to ensure all HH surgical interventions are available internationally.
Wishing All Those Touched by HH Happy & Healthy Holidays,
Hope for HH Board of Directors