January 2020
Goals? Resolutions? Plans?

Like many people as the new year approaches the CVSA board of directors discuss their goals for the organization for 2020. To start the year off the board has chosen to attend a few conferences in the areas of neurology and emergency medicine. D ue to the struggle with Emergency room recognition and difficulty obtaining treatment as well as the response from Emergency room medical professionals at the conference we attended this past year we want to keep targeting this challenging atmosphere. By attending these conferences, the board hopes to increase medical professional awareness of CVS , share resources, and reduce the stigma that many sufferers have encountered. Another focus this year is on the 14th CVSA International Adult & Family Conference which is scheduled for June 26-28 in Milwaukee, WI. We hope to see you there.
Save the Date:
CVS International Awareness Day: March 5
Thank You
The CVSA is grateful for all of the donations that came in during the holiday season! Thank You to all of you that honored a friend or family member who has CVS during the holidays. Thank you for your generosity!
CVSA 14th International Adult & Family Conference
June 26-28

Register by March 1st to save

$125 Individual
$175 Couple
$225 Family 
$225 Individuals
$275 Couple
$325 Family 

Registration coming soon

Please note that rates will increase by $50 after March 1st.

Double Tree by Hilton,Milwaukee-Brookfield, WI
CVSA Conference Room Block: $99 plus tax
To make a reservation please call 877-214-6722 and mention the CVSA Room block or you may reserve your room online.

Tell us what you want to hear!
In preparation for the 14th CVSA Adult and Family conference we'd like to hear from you! Do you have ideas on topics you'd like to hear about? Or things you'd like to see offered? If you do please send an email to the office.
Have you ever wanted to talk to Dr. Boles, Dr. Kovacic, Dr. Venkatesan, Dr. Levinthal, Dr. Li etc. but have never had the opportunity?

Sign up for "Date with a Doctor at the conference.

Not sure what Date with doctor is..

How it Works:
Directions for the patients, parents

Based on the popular “speed dating” format, the CVS knowledgeable doctors and medical professionals such as Dr. Boles, Dr. Venkatesan, Dr. Kovacic, Dr. Levinthal, Dr. Li etc. will be seated at private tables and available for one on one, 15 minute consultations.

Here’s your chance to sit face to face with a doctor and introduce yourself, ask a burning question, or express whatever is on your mind!

The contents of each discussion will remain strictly confidential.

Every 15 minutes (exactly by the bell), a new group will be called to take their seat with the individual doctor they have registered to visit.

This is guaranteed to be an enjoyable and informative event for all!.

It is best to come prepared with a summary of your or your child's case (no more than 2-3 minutes long) and 5-10 written questions so that you can get as many of your questions answered.
Join Blynda along with other CVS sufferers and caregivers on January 13th for the monthly support call.
Thank You to Maria Buhl, Brent Buhl, and Elizabeth Eubank for hosting the 12th Annual CVSA Silent Auction. They raised over $2,200 to help support the CVSA missions and goals.
Thank You Kristin Koch for hosting your annual holiday open house and raising over $1,500 for CVSA.
Thank you to all that set up fundraisers on Facebook with Facebook Donations!
Please note that due to recent changes to Facebook's algorithms and privacy restrictions, CVSA is no longer able to determine the dates that fundraisers take place.
If your CVSA fundraiser raised more than $200 please send a screenshot to the CVSA office to receive your complimentary 1 year membership, please email cvsa@cvsaonline.org .
Support CVSA while you shop!!!
Looking for more information on CVS, and ways to support CVSA?
CVSA Web-site Click Here
 Adult Treatment Guidelines Click Here
 Pediatric Treatment Guidelines Click Here
New Patients & For a List of Providers Click Here
Get Involved with CVSA Click Here