January 2016 NEWSLETTER
Serving Northern California from Fresno to Monterey to the Oregon border
In This Issue
Website Quick Links

Telephone Support Group for Parents & Caregivers of children with epilepsy
COMING SOON! 

Questions?
katie@epilepsynorcal.org 
MyEpilepsyTeam is a social network and online support group for people who are living with epilepsy.
Very Special Thanks
2015 Gala Sponsors

Title


Platinum
Green Charitable Foundation
Remick Family Foundation

Gold

Silver
Anonymous
Jim Anderson
Edward Chang M.D.
Falasco
- Keeney  Family
Youker Consulting Group
Epilepsy Center of Excellence

Benefactor
Bronte Epilepsy Research Foundation
Sande Schlumberger & Roxane Schlumberger-Hume
Barbara Suskind &
Lowell Richards
Richard Thalheimer
Brad and Rebekah Triebsch

In-Kind
Jones Family Vineyards

#DareTo Educate
Free Training Available

In the event of a seizure, 
will your friends, family or colleagues know what to do?
  • 60 min presentation on basic Seizure First Aid
  • Audiences include: School Personnel, Law Enforcement, First Responders, Service Providers, Corporations, Students, Families
415.677.4011
You're Invited!
Pipeline Conference, Community Day
 
The Pipeline Conference is a three-day event held  in San Francisco between  February 25-27 ,  showcasing the most promising epilepsy therapies from healthcare companies dedicated to pioneering and advancing drugs, biologics, technologies, and devices for epilepsy and seizures. This year's conference will feature the fifth annual "Shark Tank" competition. Join Dr. Joseph Sullivan, incoming EFNC Board Chair, in welcoming guests to Northern California!

On Saturday friends and family are invited to attend Community Day, a unique one-day event dedicated to people living with seizures, their loved ones, and epilepsy advocates.  The theme for Saturday's Family Day is "Information * Empowerment * Hope * Community."  View Draft  Agenda Community Day is  FREE.

Registration is required to attend due to the popularity of this conference. Register here! 

And don't forget to stop by  the exhibit room and visit the EFNC booth--f ind out what's happening here in Northern California!
SAVE THE DATES
Mark Your Calendars!
 
    • April 16, 2016, Sacramento
    • April 17, 2016, Atherton
      A fun half-day camp to empower kids with epilepsy and to inspire them to reach for the stars. Invite a sibling or friend to come along! 
  • STROLL: 24th Annual!
    • May 21, 2016
    • Six Flags Discovery Kingdom, Vallejo
      Dust your shoes off! It's time to start spreading the word and recruiting your teams. Registration open in February. 
       
  • COELHO EPILEPSY YOUTH SUMMER CAMP
    • June 26-July 1, 2016
    • CYO Camp, Occidental, CA
      Reunite and make new friends! Enjoy a sleepover camping experience that develops self-esteem by promoting self-confidence. For children ages 9-17. 
       
  • CANDLELIGHT GALA
    • November 19, 2016
    • San Francisco
      Join us in celebrating our epilepsy community, our heroes, our past wins and our accomplishments--and your commitment to put an end to epilepsy.
Registration for programs and events
COMING SOON
Clean Out Your Closets!
Start Fresh in the New Year

It's time to kick off the new year with a drop-off! 

Donations accepted at Savers stores in Dublin and Vacaville help to fuel  programs and services offered by the  Epilepsy Foundation of Northern California. So take those clothes you never wear, that china you never use, old toys in the attic, the garage packed with stuff you don't need, and transform all your reusable goods into support.

Drop off locations: Dublin and Vacaville Stores AND  a ny of the following locations.
 
NOTE: Savers Berkeley is now closed
 
All donations benefit the Epilepsy Foundation of Northern California and are tax deductible.
Meet Sabrina
EFNC Intern
After several doctor's visits, dizzy spells and experiencing vertigo, Sabrina was diagnosed with epilepsy in 2009. Though s he struggled, her strength and determination did not stop her. Sabrina  attended Coelho Camp for four years and  represented Northern California at the Teens Speak Up! conference in Washington D.C. 

With  the advancements in medical technology and  her successful brain mapping operation, Sabrina is now  six-months seizure-free. She says, "I can now swim, sleep and enjoy my days without fear of any unexpected brain storms."

Sabrina is in her second semester of her senior year in Pathways, a program of Tamiscal.  As part of the Pathways program Sabrina has chosen to intern at EFNC to help improve website content, social media outreach, and expand awareness through education and fundraising. 

Sabrina enjoys drawing, watching Netflix and playing with her two Rhodesian ridgebacks, Simba and Kiara. 

Thank you Sabrina for bringing your vibrant smile and 'go getter' attitude to EFNC!
Apps Offer New Way to Connect
Peer to Peer Support

EFNC's goal is to provide our community with access to creative, innovative and unique ways to connect with others living with epilepsy.  Below are two Apps currently in development seeking input and users to help further develop and improve their platforms. Both Apps aim to strengthen and support the epilepsy community. These Apps are free of charge. 


Cureous aims to connect people with similar conditions, sub conditions, symptoms and interests together in a safe and secure mobile app environment. Once connected, individuals can share stories, ask questions
and create lifetime health buddies. Cureous shares with you the first version of the app that is  focused on epilepsy. The Developers of this app are seeking participants in its Beta App.  
Interested?
Sign up here  to participate in a Pilot Study!
 
myownteam.org
Myownteam.org creates small groups in WhatsApp to connect you to others like you anytime of day, anywhere.  Meet very similar people who have the same type of seizures, medications, career, family, friends or challenges.

For example: Jessica has tonic seizures. She holds down a high-pressure job as a senior manager which involves a lot of travel. After a seizure she often needs bed rest. She is matched to a group of eight who really understand what she is going through, since they are all in similar senior stressful roles with a lot of travel.

Also in development, myownteam.org is seeking participants to help improve and build this community. 

Learn more and sign up for free at: www.myownteam.org.

EFNC does not formally endorse these Apps but we do want to recognize the benefit and support these platforms offer to our community.   As such, we aim to ensure that our community is aware of and has the opportunity to participate with these programs as may be appropriate. 
Apply TODAY, Scholarships
Application Period NOW OPEN

 

Paul E. Smith Scholarship

Paul E. Smith
    • For high school seniors who have epilepsy and who live in areas served by the Epilepsy Foundation of Northern California.
    • Recipient will receive $2,000 towards their college education.
    • Scholarship Deadline: May 31, 2016
    • For any person with epilepsy living in Oakdale who is furthering his or her education-undergraduate, graduate, post graduate, study in any field, or vocational and technical training.
    • Recipient will receive $1,000 towards their education.
    • Scholarship Deadline: May 31, 2016

Additional Scholarships Available Here