Throughout this past year, Accessia Health has continued to build meaningful progress through education, advocacy, and collaboration. Spanning from community engagement to policy-focused conversations, ongoing insight from our network has helped advance patient assistance efforts and elevate patient voices across the healthcare landscape.

 

This work has taken shape through national conference participation, including the Asembia AXS25 Summit, as well as Medicare-focused webinars designed to help patients and caregivers navigate significant changes to Medicare Part D. We also strengthened our advocacy efforts by re-launching the Patient Advocacy Committee and bringing staff and patient advocates together on Capitol Hill for Advocacy for Access Day to engage directly with lawmakers on reducing financial barriers to care.

 

We look forward to remaining engaged in the national dialogue on healthcare access and affordability. In a recent Fierce Healthcare outlook, our VP of Clinical Strategy and Patient Engagement, Jennifer Noonan, offers insight into how Medicaid cuts may increase the need for patient assistance. We also encourage you to explore recent webinar recordings and subscribe to our Policy and Advocacy newsletter to stay connected to advocacy events and responses for 2026. Your involvement plays an important role in shaping a more dynamic and patient-centered healthcare system.



We’re grateful for your continued connection to Accessia Health and our mission.

Highlights of 2025

2025 was nothing short of impactful and empowering for our organization. From conference connections to opportunities of accelerating advocacy and education—with your supportwe were able to make a big mark in the patient assistance industry.

Conferences kept our team on the road throughout the year, giving us the opportunity to network with partners and providers across the patient assistance and pharmaceutical spaces.

We re-launched our Patient Advocacy Committee with a select group of patients and patient advocates to help us better understand the everyday challenges faced by individuals along their healthcare journey and fosters solutions.

Our webinars focused on empowering healthcare decisions. 2025 marked changes in the Medicare Part D plan, allowing important conversations around the future of Medicare.

In October, Accessia Health staff and patient advocates came together in Washington, D.C. for our Advocacy for Access Day on Capitol Hill. We met with congressional leaders to discuss how legislation can improve timely access to care and reduce financial stress for patients.

Watch On-Demand: Hemophilia Webinar Series

In case you missed one or more of our recent Amplify Your Voice, Control Your Care webinar series "Knowledge in Action: Hemophilia Care," all three recordings can now be viewed on our YouTube channel.

First on the Scene: Emergency Care Protocols for Hemophilia Patients

The Missing Line: Improving Care for Patients with Bleeding Disorders

Connecting the Dots: Coordinated Care and Community Resources for Bleeding Disorders

2026 Outlook: Medicaid & Hidden Costs

Coming into the new year, we’re proud to take part in the national conversation on the future of healthcare. As The One Big Beautiful Bill Act's Medicaid cuts begin to take affect and the ripple of disrupted coverage felt, Accessia Health expects to see a growth in those who need lifesaving assistance due to loss of insurance.


In Fierce Healthcare's latest 2026 outlook, VP of Clinical Strategy and Patient Engagement, Jennifer Noonan, MSN, RN, shares critical insight on what these changes mean for patients living with rare and chronic conditions.

Apply Today: Patient Programs

Program assistance may cover the costs of medication copays, insurance premiums, medical expenses, travel costs, and more.


*Program space is limited and is offered on a first-come, first-served basis. Programs will only remain open as long as funding is available.


If a program is full, you can still apply to add your name to the program waitlist. Once you are on the waitlist, you will be notified if assistance becomes available.



To apply:

  1. Click the button below.
  2. Select 'open' under 'step two'.
  3. Select the appropriate program and begin the application process.


Stay Connected With Community

Have You Taken Our Survey?


We recently released our 2026 Educational Resources Survey for our partners, patients, and caregivers to let us know what information and content you'd like to see from Accessia Health this year. Please take a moment to complete the survey and share your feedback.

Upcoming Policy Newsletter


Our Policy and Advocacy newsletter keeps you connected to the issues shaping healthcare access today. Get timely updates on policy developments, advocacy efforts, and how Accessia Health is working to amplify patient voices where it matters most. Subscribe now to receive it in your inbox next week!

Accepting Patient Story Submissions for 2026


Every care journey is different, and yours deserves to be recognized. Sharing your experience can help shine a light on the realities patients and families face while connecting others to resources and support they may not know exist. If you’re open to telling your story this year, we’d be grateful to help share it in a meaningful way.

Accessia Health, a national charitable patient assistance organization, is dedicated to eliminating healthcare barriers for people with rare or chronic health conditions. Comprehensive services include personalized case management, financial assistance, education, and legal aid support. Our flexible funding model goes beyond copays, allowing individuals to pay for other essential medical expenses including insurance premiums, screening and diagnostics, therapy services, travel costs and more. Accessia Health works to ensure that every individual has access to the care they need to lead a healthier life. 

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Accessia Health exists because of generous donations from our community.

Consider making a gift to provide health and hope to patients nationwide.