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Our virtual Bleeding Disorders Conference is a way for the global bleeding disorders community to embrace our history and work together to create a better future for all of us.
Ask the Experts: COVID-19
August 2, 2020
2:50pm-3:35pm EDT
The coronavirus is continuing to spread in the United States, and it’s critical that people with bleeding disorders understand their risk factor for COVID-19. Join Leonard Valentino, MD; Tami Singleton, MD; and Peter Kouides, MD for an interactive discussion of how you can stay safe during this public health crisis.
30th Anniversary of the Ryan White CARE Act
August 6, 2020
7:00pm-8:00pm EDT
In 1990, the US Congress enacted the Ryan White Care Act, which provides access to treatment and care for uninsured or under-insured patients and families with HIV/AIDS. Join Jeanne White-Ginder, mother of Ryan White; Dana Francis, MSW, and Craig Kessler, MD as they recount the role the bleeding disorders played in this historic legislation, and what we can do to be empowered healthcare advocates today.
I’m Not Okay: Opening Up at Mental Health
August 7, 2020
7:00pm-8:00pm EDT
Join us for the premiere of the latest offering from Patrick James Lynch and Believe Ltd, “Let's Talk,” which takes a close and compassionate look at how members of our community struggle with depression, anxiety, and PTSD. A panel discussion hosted by Patrick and Debi de la Riva will allow you to ask questions and share your experiences in a safe and welcoming space.
Gene Therapy: A Candid Conversation
August 8, 2020
4:15pm-5:00pm EDT
The arrival of gene therapy for treatment of hemophilia is both exciting and daunting. Join us for a live, interactive discussion featuring a provider, a recipient of gene therapy, and other community members as they discuss their experiences, decision-making process, and choices.
If you haven't yet registered, add our Conference to your calendar!
Make the Most of NHF’s Virtual BDC
1. Prepare your schedule
We get it – even as we’re staying indoors as much as possible, we can still feel overwhelmed with appointments. Look over our BDC interactive schedule to add sessions that pique your interest to your calendar.

2. Find a quiet place. NHF conferences are full of information you can use, and you’ll want to be in a quiet environment so you can absorb as much as you can.

3. Get involved! Nearly all the sessions at NHF’s virtual Bleeding Disorders Conference will be interactive in some way, either through live Q & A or through chat rooms. Ask questions and participate in polls. You can also engage with other participants on social using the #NHF2020 hashtag.

4. Give feedback. This is NHF’s first virtual conference, and we want to know if it was a good experience for you. Each session will have an evaluation for you to fill out. Be honest with your feedback so we can create the sessions you want to see.