Summer is in full swing and we sure hope you have had a chance to really enjoy it. We're preparing to drop Season 14, Atypical GVHD: The Parts of Chronic GVHD We Don’t Often Talk About, our Marrow Masters podcast and hope you will check it out soon.

Book Club is back. See our article below to learn more.

Lunch & Learn

with the LINK

A Telephone Support CALL IN Program for Patients,

Families/Caregivers/Loved Ones

Chronic GVHD Skin Issues and Solutions

Wednesday, Aug. 21, 2024

NOON EST (one hour)

To register for free, click here: 

To ask a question during the Q & A portion of this program, once the operator says the lines have been opened, hit the star key on your phone and then the number 1. Please address yourself when asking a question in the best way to protect your identity if desired. 

This month’s call in program will focus on skin issues related to chronic Graft Versus Host Disease (cGVHD). Dr. Rachel Rosenstein, a physician-scientist at Hackensack Meridian School of Medicine with a clinical and research interest in chronic skin GVHD will discuss skin related issues, and treatment options, sharing her expertise and best practices. Additionally, Anne Fitzpatrick, a survivor of myelodysplastic syndrome (MDS) with a myelofibrosis overlay, who knows all about skin related cGVHD, will share her transplant story and coping strategies. Jennifer Gillette, our licensed staff social worker, will host this call. There will be plenty of time for live questions. 

If you have any technical issues related to registering, please email, peggyburkhard@nbmtlink.org or call (248) 770-5172. The call-in information is contained in the form you use to register. Note: YOU call in to participate. (We do not call you.)



This FREE program is intended to provide psychosocial and emotional

support along with health information from national experts regarding

critical topics surrounding cancer and treatments.

This program is recorded and available on our website

one week after airing live, www.nbmtlink.org.

Special Thanks To Our Sponsors: 

The Leukemia & Lymphoma Society, Johnson & Johnson and Incyte

We also thank our Esteemed Link Partners, listed at the end of this newsletter. 

Survivors Thrive Book Club is Back!

FAITH, STRENGTH, AND COURAGE:

A Memoir of Overcoming Adversity & Embracing Life's Journey

by Gregory O. Proctor, a survivor.

Zoom Format- credentials to be sent to confirmed participants in advance. If you do not hear back, you will be on the wait list for another Book Club. Thank you.

When: Tuesday, Sept. 24, 2024

2 pm to 3:30 pm EDT- Note your time zone.

To register, click here:

Participants will receive a book free of charge about five weeks in advance of the program. PLEASE BE SURE TO RESPOND TO THE EMAIL INVITING YOU ASAP TO SECURE Y0UR SPOT. Gregory O. Proctor will join us for part of the book club. 

If you have any questions, please email peggyburkhard@nbmtlink.org. We are very excited to offer this program and look forward to hearing from you.

Special thanks to our sponsors: Incyte and The Leukemia & Lymphoma Society

Excited to announce a new partnership with Bag It with support from Incyte. For a limited time, you can order a FREE GVHD bag which contains valuable resources from Bag It and nbmtLINK.

To order your free bag, click here

Please use the code GVHD24

2024 National GvHD Symposium

Friday, September 27th, 2024

The Assembly / Pittsburgh, PA

Join us for the 12^th annual Graft versus Host Disease Symposium on Friday, September 27th at The Assembly, located in Pittsburgh, PA.

This year’s symposium is a collaboration between the Meredith A. Cowden Foundation, UPMC, OSU, and Cleveland Clinic.

This symposium is the only event of its kind that focuses exclusively on GvHD. It brings together physicians, medical professionals, and patients and covers many topics including clinical care, educational best practices, and emerging research.

We hope that you can join us for this exciting symposium!

KEYNOTE SPEAKER:

“Lifestyle Modifications for Thriving after BMT”

Mladen Golubic, MD, PhD / UC Health

Mladen Golubic, MD, PhD, has worked in the fields of immunogenetics and molecular and cancer biology, contributing to understanding interactions between the environment and our genes. His clinical work focuses now on lifestyle-related chronic diseases.

As an internist, Dr. Golubic has practiced and directed educational and research activities within integrative and lifestyle medicine since 2009 with a group of exceptional lifestyle medicine professionals (dietitians, chefs, yoga instructors, exercise physiologists, meditation teachers, etc.) within the Wellness Institute at the Cleveland Clinic.

To register for free for the Cowden Symposium, click here:

For only $25, patients and caregivers can register virtually or for $50, you can attend in person.

To learn more, click here: