You are going to love what we have to share this month. Please be sure to keep scrolling. We hope you feel the "LOVE".




February 17th is the 3rd annual GVHD Day: Check out our new campaign and mosaic we are working on through the GVHD Alliance. Share your story please.


We also have Season 16 of Marrow Masters available. Listen up! More below.


Lunch & Learn

with the LINK


A Telephone Support CALL IN Program for Patients,

Families/Caregivers/Loved Ones


Chronic GVHD Updates on Clinical Trials, Research, Coping,

Preventing Flare Ups and More


Wednesday, February 19, 2025

Noon to 1 pm EST


To register, click here:


This month’s call-in program featuring Dr Farhadfar, a transplant and cellular

therapy physician at Sarah Cannon Transplant and Cellular Therapy Program

at Methodist Hospital, San Antonio, where she also serves as the director of

research. Dr. Farhadfar is a nationally recognized expert in chronic GVHD

and has a distinguished career in the transplant space. She completed both

her hematology fellowship at NYU/Winthrop University and a blood and

marrow fellowship at Mayo Clinic. Prior to that, she joined the University

of Florida College of Medicine in Gainesville and launched the BMT

Survivorship/GVHD Clinic in 2018 and served as its director. Dr. Farhadfar

focuses on better understand the long-term complications of allogeneic

transplant, and tests interventions to lessen the effects of complications and

optimize quality of life.

Dr. Farhadfar will share updates and her expertise as it relates to what is on

the horizon, research findings and how to be proactive and on the lookout

when chronic GVHD shows up in multiple manifestations. Additionally,

long time survivor Steve Hodges will share his story and the creative ways

he copes with cGVHD. Steve’s upbeat attitude is sure to inspire listeners.

Jennifer Gillette, our licensed staff social worker, will host this call. There will

be plenty of time for live questions.


If you have any technical issues related to registering, please email, peggyburkhard@nbmtlink.org or call (248) 770-5172. The call-in information is contained in the form you use to register. Note: YOU call in to participate. (We do not call you.)



This FREE program is intended to provide psychosocial and emotional

support along with health information from national experts regarding

critical topics surrounding cancer and treatments.

This program is recorded and available on our website

one week after airing live, www.nbmtlink.org.


Special Thanks To Our Sponsors: 

The Leukemia & Lymphoma Society,


We also thank our Esteemed Link Partners, listed at the end of this newsletter.

Season 16 is Available.

To listen to Season 16, click here or visit wherever you get your podcasts.

We are excited to present this writing workshop. See above.


To register, click here:


Monday, February 17, 2025


The nbmtLINK is proud to be part of the GVHD Alliance once again, bringing together leading transplant organizations to improve access to resources and support for the graft-versus-host disease (GVHD) community and people living with GVHD, a complication that can have a tremendous impact. The GVHD Alliance aims to bridge existing gaps in unmet needs of the GVHD community and launch a new, dedicated awareness. We are in our THIRD year and the momentum is building.


If you live with Graft-versus-host-disease (GVHD), oare a caregiver, health care provider, GVHD Alliance partner, or GVHD advocate, we’d love your support in growing a stronger community.

The GVHD Mosaic is a dynamic, interactive experience where you can share your story with people all over the world. Over time, our goal is to collect as many stories as we can, to

  • Raise awareness
  • Build a sense of hope
  • Help each other learn more about detecting and managing GVHD signs and symptoms

 

We’re so excited to see what our amazing community can create together. We hope to see your story soon.

Visit this link to learn more and add your short story

Help us create a mosaic of hope! 


About the GVHD Alliance

The GVHD Alliance is empowering voices in the GVHD community to increase awareness and help improve the lives of people living with GVHD. The GVHD Alliance has developed a unified platform that facilitates a nurturing community for people living with GVHD, connecting resources, education, and support.


Our Finance Guide in Spanish is here!


This gem is available as a FREE downloadable book and also for sale on our website for a deep discounted price of only $5 per book, which includes shipping and handling. Bulk discounts will also be available.



Click here to learn more and order your book today:


We still have GVHD FREE bags, in partnership with Incyte and Bag It to give away.


To order your FREE bag, click here:

Feeling overwhelmed by all of the practical and financial issues that come with a chronic or serious medical condition diagnosis? Our partner @Triage_Health is hosting a FREE conference on May 17 for patients,

caregivers, and health care professionals:


Visit this link to learn more:

How We Help Others!
Peer Support
On-Call Program
We are a phone call or email away for patients and their loved ones.
1-800-546-5268
info@nbmtlink.org
Contact Us
Celebrate Your Second Birthday
Sign up to receive a specially designed card that recognizes you and your caregiver on your “Second Birthday?”
Sign Up Now
Help Us
Help Others
We cannot do it without the support of corporations, foundations and individuals like you!

Donate Now


We Invite You to Become a LINK Partner

We thank the following partners.

Link Partners include cancer centers and allied partners who annually support our mission of providing psychosocial support to patients, caregivers, their families and health care professionals dedicated to helping people navigate a bone marrow transplant. If you would like to learn more about the many benefits to being a Link Partner including access to a large allocation of books and signage throughout the year, please do not hesitate to contact Peggy, (248) 358-1886 or peggyburkhard@nbmtlink.org. 

Gold Level Link Partners

American Society for Transplantation and Cellular Therapy (ASTCT)

Barbara Ann Karmanos Cancer Center

Blood Marrow Transplant Program at Northside Hospital

Corewell Health

Dana-Farber Brigham Cancer Center

Fred Hutchinson Cancer Center

Froedtert & the Medical College of Wisconsin Cancer Network

Incyte

Memorial Sloan Kettering Cancer Center

Oregon Health & Science University Knight Cancer Center

Roswell Park Comprehensive Cancer Center

Stem Cell Transplantation and Cellular Therapy Program, John Theurer Cancer Center at Hackensack University Medical Center

The Leukemia & Lymphoma Society

University Hospitals Seidman Cancer Center

University of Michigan Health Rogel Cancer Center

Westmead Blood Transplant and Cell Therapies Program

Silver Level Link Partners

Center for International Blood & Marrow Transplant Research

DKMS

Henry Ford Health – Cancer

Mayo Clinic Transplant Center

Meredith A. Cowden Foundation

Nebraska Medicine

UC Davis Comprehensive Cancer Center

Syndax Pharmaceuticals

  • Vanderbilt-Ingram Cancer Center
2900 Union Lake Rd. Suite 213
Commerce, MI 48382
Contact
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