Welcome to fall. We hope you are having a wonderful autumn season and are enjoying the warmer than usual temps.

We have a lot to share this month. Keep scrolling as this newsletter is jam packed with many events and opportunities.

Be sure to also check out our next Lunch & Learn set for Oct. 15, 2025.


We are thrilled to highlight Link Partner Fred Hutch Cancer Center below with a Spotlight Piece recognizing their 50th anniversary as well as an incredible story about Chris Lundy.


We are thrilled to host our annual Chronic Graft Versus Host Disease webinar on Wednesday, Oct. 29 from Noon to 1:30 pm EST.

We have a wonderful line up of speakers including

Dr. Corey Cutler, of the Dana-Farber Brigham Cancer Center, joined by Daniel Gaylor, LCSW, OSW-C, ACHP, SW of Moffitt Cancer Center and Judy

Fine-Edelstein, survivor extraordinaire will lead this important session entitled: Updates in the Prevention and Treatment of Chronic GVHD.

Check it out and register for free below.


Our Marrow Masters podcast, Season 18 is NOW available: There is also a bonus empathy exercise you won't want to miss.

Let’s Talk About

Caregiving Tips and Resources.


Click here to check out Season 18 of Marrow Masters!


We also moved- busy time indeed. Our new address is:


National Bone Marrow Transplant Link (nbmtLINK)

3050 Union Lake Rd. Suite 8, #3

Commerce, MI 48383

Spotlight Piece


This year Fred Hutch celebrates 50 years of innovative research and compassionate care. As a leader in cancer care and disease research, Fred Hutch is driven by an enduring commitment to patients and their families, and a passion for scientific discoveries.


Click here to learn more about their 50 years.


Thank you Fred Hutch Cancer Center for sharing this wonderful story.


More than 50 years ago when Chris Lundy was 21, he had a bone marrow transplant at Fred Hutch Cancer Center that saved his life. At that time, transplant for blood disorders was a new and evolving procedure that had been pioneered at Fred Hutch. Lundy, now one of the oldest known living BMT survivors, recalls that his case was included in the seminal 1975 paper titled simply “Bone-Marrow Transplantation” and published in the New England Journal of Medicine.

.

To read more of this incredible story, click here:


Chris Lundy recently shared his story on the Fred Hutch Cancer Center podcast

Click here to learn more about the podcast, From Bench to Bedside and Beyond.



Corey Cutler, MD, MPH of the Dana Farber Cancer Institute is a hematologist and blood and marrow transplant physician who treats patients with leukemia, lymphoma and other blood and bone marrow diseases. Dr. Cutler will share the many progressive, innovative and noteworthy updates regarding chronic graft versus host disease. Daniel

Gaylor, LCSW, OSW-C, ACHP-SW, BMT & CI Social Work Supervisor at the Moffitt Cancer Center will focus on the many psychosocial and emotional needs of all GVHD patients. Additionally, Judy Fine-Edelstein, a survivor of acute myeloid leukemia(AML) from Massachusetts, who is also a physician, will share her experiences and personal perspective as she thrives post-transplant. This webinar will be facilitated by Jennifer Gillette, our licensed staff social worker. There will be time for questions and answers following the presentation. Slides and the recorded program will be available post event on our website.


To register for free, click here:


Special thanks to our sponsors: Sanofi and Johnson & Johnson


Lunch & Learn

with the LINK


A Telephone Support CALL IN Program for Patients,

Families/Caregivers/Loved Ones



Rebuilding and Redefining Relationships with Others and Yourself After Cancer Treatment


Wednesday, Oct. 15, 2025

Noon to 1 pm EST


Rebuilding Strength and Stamina after a Bone Marrow/Stem Cell Transplant


This month’s call-in program will feature Courtney Bush, a Physical Therapist and Certified Lymphedema Therapist at the Fred Hutchinson Cancer Center in Seattle, Washington. Courtney is a Board-Certified Clinical Specialist in Oncologic Physical Therapy and currently serves on the Board of Directors for the American Physical Therapy Association’s Academy of Oncology Physical Therapy. Courtney works with patients receiving stem cell and bone marrow transplantation, both inpatient and outpatient. Courtney sees patients both pre- and post-transplant, helping them optimize functional mobility, independence and physical recovery. Courtney will focus on rebuilding and regaining stamina and physical challenges such as fatigue, steroid myopathy, and chemotherapy induced peripheral neuropathy. Laurie Perkins, a recent multiple myeloma survivor will share her story, and how she implemented physical therapy before and after transplant and how she is enjoying life today with extensive travel plans, energy and strength. Jennifer Gillette, our licensed staff social worker, will host this call. There will be plenty of time for live questions.


To ask a question during the Q & A portion of this program, once the operator says the lines have been opened, hit the star key on your phone and then the number 1. Please address yourself when asking a question in the best way to protect your identity if desired.


If you have any technical issues related to registering, please email peggyburkhard@nbmtlink.org or call (248) 770-5172. The call-in information is contained in the form you use to register. Note: YOU call in to participate. (We do not call you.) This program is recorded and transcribed and available on our website within one week after airing live. (www.nbmtlink.org)


This FREE program is intended to provide psychosocial and emotional support along with health information from national experts regarding critical topics surrounding cancer and treatments.


To register for free, click here:


We Thank Our Sponsors:

The Leukemia & Lymphoma Society (now Blood Cancer United), Incyte and Johnson & Johnson.


We also thank our Esteemed Link Partners, listed at the end of this newsletter.

Limited Spots

Let's Coffee Klatch

about cGVHD

Wed., November 12, 2025

2 pm to 3:30 pm EST

 

 

To register for free, click here:

 

Join us for a special Coffee Klatch intended for survivors with Chronic Graft Versus Host Disease. This Coffee Klatch will allow for sharing and helping each other navigate the bone marrow/stem cell transplant journey as it relates to cGVHD. Learn how others cope, utilize resources for this rare disease, stay positive and tackle their cGVHD.

 

This free Zoom interactive small group led by Jennifer Gillette, our

licensed staff social worker, will inspire from the comfort of your

home or office.


Zoom Format—credentials to be sent to confirmed participants

in advance. If you do not hear back, you will be on the wait list

for the next caregiver Klatch. Thank you. It is important you reply

immediately (if you receive an email) to the email sent to that

we can confirm your interest. We send a special package to all

confirmed participants. Space is limited.


Special thanks to our sponsor Incyte



Our friends at LLS, now Blood Cancer United have some wonderful programs to share:





Beyond the Transplant: Navigating Graft-vs-Host Disease:

A stem cell transplant for blood cancer is just the beginning – what may come next for the patient can be a complex journey. In this episode, Dr. Alison Loren of the University of Pennsylvania discusses graft-vs-host disease (GVHD), a possible complication of transplantation – exploring the latest advancements in treatment and how patients and caregivers can navigate the challenges ahead.

To learn more about this podcast, click here:

 

CAR T-cell Therapy I Bloodline Breakthroughs: Innovations & Inspiration Vodcast:

Check out their first episode of their NEW video podcast, Bloodline Breakthroughs: Innovations & Inspiration, where we speak to Dr. Bilal Abid of University of Texas Health Science Center about CAR T-cell therapy for blood cancers.

In this episode, Dr. Abid breaks down how this innovative treatment works and its promising potential to transform care for patients with certain blood cancers. Whether you are a patient, caregiver or simply curious about the latest advancements in cancer treatment, this conversation offers valuable insights and hope.

To learn more about this vodcast, click here:

 

We’re proud to partner with Triage Cancer for their October 18, 20205 conference. This FREE online event provides valuable information on key topics for navigating the practical and legal issues that may impact an individual diagnosed with cancer.


Topics for this year’s conference include:


• Health insurance options & navigation

• Tips for using health insurance, picking a plan, & appealing denials

• Managing finances, medical bills, & financial help

• Tools for making decisions about work

• Estate planning

• Getting organized

• Becoming an empowered patient and advocate


Free continuing education for professionals is also available.

Find the answers to your questions at this event.


To register for free, click here:


The Meredith Cowden Symposium is

Coming Up

There is a virtual option. There is still time to register. We are thrilled to be a part of this wonderful, free event. Check it Out!


To register for the Oct. 17 Symposium for free, click here:

How We Help Others!
Peer Support
On-Call Program
We are a phone call or email away for patients and their loved ones.
1-800-546-5268
info@nbmtlink.org
Celebrate Your Second Birthday
Sign up to receive a specially designed card that recognizes you and your caregiver on your “Second Birthday?”
Help Us
Help Others
We cannot do it without the support of corporations, foundations and individuals like you!


We Invite You to Become a LINK Partner

We thank the following partners.

Link Partners include cancer centers and allied partners who annually support our mission of providing psychosocial support to patients, caregivers, their families and health care professionals dedicated to helping people navigate a bone marrow transplant. If you would like to learn more about the many benefits to being a Link Partner including access to a large allocation of books and signage throughout the year, please do not hesitate to contact Peggy, (248) 358-1886 or peggyburkhard@nbmtlink.org. 


Platinum Level Link Partner

Blood Marrow Transplant Program at Northside Hospital

Gold Level Link Partners

American Society for Transplantation and Cellular Therapy (ASTCT)

Barbara Ann Karmanos Cancer Center

Blood Marrow Transplant Program at Northside Hospital

Corewell Health

Dana-Farber Brigham Cancer Center

Fred Hutchinson Cancer Center

Incyte

Memorial Sloan Kettering Cancer Center

Moffitt Cancer Center

Oregon Health & Science University Knight Cancer Center

Roswell Park Comprehensive Cancer Center

Stem Cell Transplantation and Cellular Therapy Program, John Theurer Cancer Center at Hackensack University Medical Center

The Leukemia & Lymphoma Society (now Blood Cancer United)

University of Michigan Health Rogel Cancer Center


Silver Level Link Partners

Center for International Blood & Marrow Transplant Research

DKMS

Henry Ford Health – Cancer

Mayo Clinic Transplant Center

Meredith A. Cowden Foundation

Nebraska Medicine

UC Davis Comprehensive Cancer Center

Vanderbilt-Ingram Cancer Center

2900 Union Lake Rd. Suite 213
Commerce, MI 48382
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