Fall Greetings,
We have a very busy fall planned with lots of new programs to tell you about.
Survivors, if you have not participated in a Coffee Klatch, we have a new one for you set for Thursday. Nov. 17th at 2 pm EST. Limited spaces.
See more below.
(If you do not get invited to this one, there will be others in 2023.)

There is still time to register for our FREE webinar regarding Survivorship, (see below) set for this week, Wed., Oct. 12 at NOON EST until 1:30 PM EST.

As well, we have another FREE webinar set for Nov. 9th at NOON EST
re: Chronic Graft Versus Host Disease (cGVHD).
Flier is below with more details.

As well Marrow Masters, Season 8, is out and very popular. It focuses on All Things Clinical Trials. See our flier below. You'll meet several awe-inspiring survivors and health care professionals who share the many reasons to consider a clinical trial.


Lunch & Learn
with the LINK

A Telephone Support Program for Patients,
Families/Caregivers/Loved Ones

Let’s Talk About Resources to Save Money, Your Sanity and Much More!

Wednesday, Oct. 19th
Noon EST (one hour)

This month, we will focus on resources you need to know about—financial, emotional, mental, and more. Stephanie Samolovitch, MSW, the Founder and Executive Director of Young Adult Survivors United (YASU) will share her vast knowledge about apps, websites and organizations that will make a difference as you navigate the transplant journey. As well, Britta Wolfarth, a survivor of AML will share her personal experience and valuable tips regarding worthwhile resources. The nbmtLINK’s licensed staff social worker, Jennifer Gillette will facilitate the program. There will also be plenty of time for live questions.

If you have any technical issues related to registering, please email, peggyburkhard@nbmtlink.org or call (248) 770-5172 or Cindy Burke, cindyburke@nbmtlink.org, 248-496-3206 . The call-in information is contained in the form you use to register. Note: YOU call in participate. (We do not call you.)
This program is recorded and available on our website
one week after airing live, www.nbmtlink.org.

This FREE program is intended to provide psychosocial and emotional
support along with health information from national experts regarding
critical topics surrounding cancer and treatments.

Special Thanks To Our Sponsors: 
The Leukemia & Lymphoma Society, Incyte, Pharmacyclics & Janssen
and Omeros Corporation 
We also thank our Esteemed Link Partners, listed at the end of this newsletter.

To register for this Lunch & Learn, please click above, to access the quick registration form.

Survivorship
(FREE)
Webinar




Wed. Oct. 12th
Noon EST to 1:30 pm
Please note your time zone.

Survivorship: Tried and True Tips and Guidance for the Long-Haul Post Transplant
 
We invite you to participate in a FREE webinar that will help you and your loved ones better navigate survivorship. We will cover it all—physical and medical needs, psychosocial concerns such as anxiety and much more.
(Caregivers and the medical community are invited to join this webinar.)
 
Abby Ciampa, NP, of the Dana Farber Cancer Institute will share her medical expertise regarding staying healthy in survivorship post-transplant, focusing on side effects such as chronic Graft Versus Host Disease, fatigue, sexual dysfunction, health maintenance and disease surveillance. Regineak Ruffin, LMSW and Info Specialist of The Leukemia & Lymphoma Society will focus on depression, anxiety, thriving as you accept your new normal and advocating for yourself. Additionally, Todd Brown, a
ten-year multiple myeloma survivor has had two autologous transplants and will share his incredible personal perspective.
 
This webinar will be facilitated by Jennifer Gillette, our licensed staff social worker. There will be time for questions and answers following the presentation.


This program was made possible by the generous support of:
The Leukemia & Lymphoma Society and Sanofi.
We also acknowledge and thank our esteemed Link Partners for their ongoing and important support.
Questions? Contact Peggy Burkhard at 248-770-5172 or peggyburkhard@nbmtlink.org
NEW Coffee Klatch with
the LINK

A Special Survivor Coffee Klatch
Thursday, Nov. 17, 2022
from 2 PM TO 3:30 PM EST
ZOOM format


Join us for a special Coffee Klatch especially for survivors. This Coffee Klatch will allow for sharing and helping each other cope, sharing issues, inspiration, how to move forward post-transplant, tackle cGVHD and so much more. (First names ONLY will be used by our staff to protect privacy and these sessions will not be recorded. You may refer to yourself as you wish.) 

Please know that we will do our best to accommodate as many participants as possible. Please register above if interested and we will be in touch via email to confirm your participation, based on availability. Please do not sign up if you cannot attend. Questions regarding this program can be sent to peggyburkhard@nbmtlink.org.


"It was so nice to visit with so many survivors from across the country. It helps to not feel isolated and to know others experience things that are very similar to your experiences. Thank you for this wonderful program. And thank you for the goody box. It was a most welcome surprise and made me feel very special." 
Comment above from a 2021 Coffee Klatch participant

Sponsored by The Leukemia & Lymphoma Society
our Link Partners listed below.
How We Help Others!
Peer Support
On-Call Program
We are a phone call or email away for patients and their loved ones.
1-800-546-5268
info@nbmtlink.org
Celebrate Your Second Birthday
Sign up to receive a specially designed card that recognizes you and your caregiver on your “Second Birthday?”
Help Us
Help Others
We cannot do it without the support of corporations, foundations and individuals like you!

Special thanks to our Esteemed Link Partners, listed below, who make everything we do possible through their support.

Link Partners include cancer centers and allied partners who annually support our mission of providing psychosocial support to patients, caregivers, their families and health care professionals dedicated to helping people navigate a bone marrow transplant. If you would like to learn more about the many benefits (books, programs, hyperlink on our website, bookmark inclusion) to being a Link Partner, please do not hesitate to contact us at (248) 358-1886.

  • American Society for Transplantation and Cellular Therapy (ASTCT)
  • Barbara Ann Karmanos Cancer Institute
  • Blood and Marrow Transplant Program at Northside Hospital
  • Center for International Blood and Marrow Transplant Research (CIBMTR)
  • City of Hope
  • Dana-Farber Brigham and Women’s Cancer Center
  • DKMS 
  • Fred Hutchinson Cancer Center
  • Froedtert & the Medical College of Wisconsin Cancer Network
  • Henry Ford Cancer Institute - Stem Cell Transplant and Cellular Therapy Program
  • Incyte
  • Memorial Sloan Kettering Cancer Center
  • Meredith A. Cowden Foundation
  • Nebraska Medicine
  • Oregon Health & Science University Knight Cancer Center
  • Roswell Park Comprehensive Cancer Center
  • Siteman Cancer Center at Barnes-Jewish Hospital/Washington
  • University School of Medicine
  • Spectrum Health Cancer Center
  • Stem Cell Transplantation and Cellular Therapy Program, John Theurer Cancer Center at Hackensack University Medical Center
  • The Leukemia & Lymphoma Society
  • University Hospitals Seidman Cancer Center
  • Vanderbilt-Ingram Cancer Center