Attend a Regional Conference Near You!

We have four regional education events scheduled for this year. Join us!

Regional Patient Education Conferences provide an opportunity for patients to learn in-person about the illness and connect with other patients. Information is presented by knowledgeable local providers and world-renowned experts in pheo and para. Agendas cover a broad range of topics on the illness including symptoms, diagnosis, genetics, and treatment options. All education days are free for patients to attend.

Learn More About Regional Events

Dr. Lauren Fishbein Chairs the Newly Formed Research Advisory Board

Pheo Para Alliance is proud to announce that Lauren Fishbein, MD, PhD, Associate Professor of Medicine at the University of Colorado School of Medicine in the Division of Endocrinology, has recently accepted the role of Chair of our Research Advisory Board. The recently formed Board will focus on supporting, promoting and advancing global scientific discovery- and patient-centered research related to the diagnosis, treatment, and cure of pheochromocytoma and paraganglioma.

PPA is also honored to have Dr. Justin Annes, MD, PhD, Stanford Medicine, among the founding members of the group. Learn more about Dr. Annes and other founding members of the Research Advisory Board here. PPA will add additional members from the research community to this Board, as programs and activities are rolled out.

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Información en español

PPA se enorgullece en anunciar que ya está disponible una página web dedicada a educar a los pacientes de hispanohablantes sobre la enfermedad. Ser diagnosticado con una enfermedad rara, como el feocromocitoma, puede ser aterrador y aislado. Esperamos que esta página web, https://pheopara.org/education/enespanol, sea un recurso útil para los hispanohablantes que buscan más información sobre la feo. La información fue traducida por miembros dedicados de nuestra comunidad médica. Un agradecimiento especial a los Dres. Valeria de Miguel, Camilo Jiménez y Jaydira Del Rivero por su ayuda.

5 Years Since FDA Approval: What Have We Learned About Azedra

Education Webinar

Dr. Vineeth Sukrithan

Watch the Recorded Webinar

PPA Launches Speakers Bureau

Pheo Para Alliance is proud to launch a Speaker’s Bureau. The Bureau is comprised of patients, caregivers, clinicians and researchers who can educate your group on the complexities of pheochromocytoma and paraganglioma.

The illness presents various hurdles to overcome and endure. Topics of discussion may include diagnosis, treatment, management of ongoing symptoms, psycho-social issues, genetics & research. Learn more about how you can invite a patient, caregiver, clinician or researcher to speak to your group by clicking on the link below!

Learn More About the Speakers Bureau

PPA Attends SNMMI Annual Meeting & Patient Education Day

The Society of Nuclear Medicine and Molecular Imaging (SNMMI) held its Annual Meeting June 24th-28th in Chicago, IL, and Pheo Para Alliance was there to spread awareness about pheochromocytoma and paraganglioma! Researchers from around the world gathered in Chicago for presentations focused on topics as personal as individual responses to nuclear therapies, and as broad as the role of artificial intelligence in the future of the field.

As a part of this meeting each year, SNMMI holds a Patient Education Day to offer patients and caregivers the opportunity to learn about nuclear medicine and how it is used to diagnose and treat many conditions. This year’s event was held on Sunday, June 25th and featured presentations from Dr John Sunderland, University of Iowa, Dr. Thor Halfdanarson, Mayo Clinic – Rochester, Dr. Dan Pryma, Penn Medicine, and Josh Mailman, NorCal CarciNETs.

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Pheo Para Awareness Week, August 21 - 25 - Toolkit Coming Soon!

The Past is a Link to the Future Gala, Sept 30 - Buy Tickets Now!

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