July 2021: Open notes in STAT, Kaiser Health News, Politico Pro

June 2021

The John A. Hartford Foundation Expands Support for an OpenNotes Caregiver Initiative

Engaging Family Caregivers through Shared Access to the Electronic Health Record

“We’re excited to continue this important work to help family caregivers get access to the information they need.” – Cait DesRoches, DrPH

Learn more about this project.

New Publications

June 2021

Empowering Patients Through Shared Visit Notes

Health Affairs

MaKaya Saulsberry, et al.

May 2021

Open Notes Become Law: A Challenge for Mental Health Practice

Psychiatric Services

Steve O’Neill, et al.

May 2021

Patients, clinicians and open notes: information blocking as a case of epistemic injustice

BMJ Journal of Medical Ethics (open access)

Charlotte Blease, et al.

Support Our Work

Have you learned something from OpenNotes that has helped you with your work? We’re funded entirely by grants and philanthropic gifts. Your gifts helps make possible the educational resources we offer without charge through the Creative Commons. Support the study of transparency in healthcare by making a tax-deductible donation to OpenNotes.

In Case You Missed It

Speaking up about patient-perceived serious visit note errors: Patient and family experiences and recommendations, JAMIA (open access), Barbara Lam, et al.

Sharing Notes With Adolescents and Young Adults Admitted to an Inpatient Psychiatry Unit, Journal of the American Academy of Child & Adolescent Psychiatry, Isabella Dohil, et al.

Healthcare in the new age of transparency, Seminars in Dialysis, Catherine DesRoches, DrPH

OpenNotes in the News

Clinicians open their notes to patients in a grand experiment in medical care, STAT

4 reasons physicians should share their notes with patients, AMA

Doctors Now Must Provide Patients Their Health Data, Online and On Demand, Kaiser Health News

Note Sharing: How to Document and Share Progress Notes in a Patient-Friendly Way, Center to Advance Palliative Care (CAPC)

Patients can now see their doctors’ notes. It’s causing some heartburn, Politico Pro

Privacy vs Public Health: How can we use patient data for societal good?, Biotech Connection Bay Area

Tweet of the Month

We've described in our research the benefits of patients reading their notes, but what are the consequences when patients don't or can't read their notes?

Read this new paper on epistemic justice and information blocking.