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Dear Members,
Have you ever considered joining the board of directors for the Canadian Hemophilia Society Alberta Chapter? Now is your chance! We are actively seeking new board or committee members to join our team.
If you’re interested, please email us at albertachapter@hemophilia.ca to request a nomination form.
The deadline to submit your nomination is August 30, 2024. Voting will take place at our AGM on Saturday, September 7, 2024, at Pine Lake Camp, Alberta.
Thank you,
CHS Alberta Chapter Board of Directors
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📢 Treasurer Position Available! 📢
The CHS Alberta Chapter is seeking a dedicated and detail-oriented individual to join our board as Treasurer. This is a fantastic opportunity to contribute to our community and make a difference.
Key Responsibilities:
- Manage financial records and budgets
- Oversee fundraising activities
- Ensure compliance with financial regulations
If you have a passion for helping others and experience in finance, we want to hear from you!
Apply now and be a part of something great!
For more information, email us at albertachapter@hemophilia.ca
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Annual Weekend Retreat
&
Annual General Meeting
Sept 6 - Sept 8, 2024
Pine Lake, Alberta
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Join us for our Annual General Meeting at the beginning of September!
For a small fee, you and your guests can enjoy a weekend of delicious food, community connections, and the beautiful surroundings of Pine Lake.
The weekend offers a variety of activities including canoeing, hiking, swimming, mini-golf, games, and more.
Event Details:
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Annual General Meeting: Saturday, September 7, 2024. Lunch will be served at Pine Lake. Members are welcome to come for the day and stay for lunch
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Weekend Stay: Arrive on Friday, September 6, to enjoy the entire weekend or come for the AGM on Saturday and stay for lunch.
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Included: All meals and accommodations.
Registration is now open!
For more information, [click here].
All members and their guests are welcome!
Check out everything Pine Lake has to offer.
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Exciting News from This Year's Kids Bleeding Disorder Camp!
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We are thrilled to share that this year's camp was an incredible success, with more campers attending than we’ve seen in the past six years!
Our deepest gratitude goes out to the dedicated healthcare providers and enthusiastic campers who made this event truly unforgettable.
Do you know a child aged 7-17 with a bleeding disorder who would love an adventure in 2025? Are you a former camper eager to give back as a mentor? We're looking for passionate volunteers!
Click here for more details or email us at albertachapter@hemophilia.ca
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Canadian Blood Services (CBS) announced this week that the provinces and territories have agreed to expand access to emicizumab (Hemlibra) for people with moderate hemophilia A and a severe bleeding phenotype requiring prophylaxis.
Until now, use of emicizumab had been restricted to those with severe hemophilia defined as a factor level of less than 1% or a history of an inhibitor to factor VIII. Analysis conducted by the Canadian Bleeding Disorder Registry estimate that up to 100 additional people may become eligible.
In its announcement, CBS wrote that “Exceptional access requests will now be considered for hemophilia A patients with a FVIII level of 1% or greater with a severe bleeding phenotype. To be considered, patients must be on prophylactic therapy with FVIII or demonstrate a requirement for prophylactic therapy.” continue reading....
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Gene therapy is very different from the prophylaxis therapies we are used to. People with bleeding disorders and their families must have all the information they need to make a fully informed decision as to whether or not to consider gene therapy.
Our community has a huge challenge in increasing knowledge and awareness about these very different, one-time treatments.
Informed and shared decision-making among patients and clinicians will be critical as these therapies become available. The CHS Gene Therapy Education Program aims at reducing the gaps in education and awareness of these upcoming therapy options.
The page below will try and make sure that information, support, and tools are available and accessible to people with bleeding disorders and their families so that they can make these decisions and are able to manage their expectations.
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Need resources for teachers, healthcare providers or family members? Click here for more information.
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WestJet Travel Raffle Winner Announcement | |
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We are thrilled to announce that Taylor Cale was the lucky winner of our recent WestJet fundraiser draw! 🎉
A big thank you to everyone who participated and helped make this fundraiser a success. The Alberta chapter raised over $5000, which will go towards funding more programs.
We appreciate your continued support.
Stay tuned for more updates and opportunities to get involved!
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Donate a Car to
Canadian Hemophilia Society Alberta Chapter
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Donate a Car Canada accepts Vehicle Donations for Canadian Hemophilia Society Alberta Chapter.
Free towing is provided in most areas across Canada, or you can drop off your vehicle to maximize your donation.
When you donate your car, truck, RV, boat, or motorcycle to Canadian Hemophilia Society Alberta Chapter through Donate A Car Canada, it will either be recycled or sold at auction (depending on its condition, age and location).
Donate a Car Canada will look after all the details to make it easy for Canadian Hemophilia Society Alberta Chapter to benefit. After your vehicle donation is complete, you will receive a tax receipt and we will put your gift to good use. Please click here to donate a vehicle.
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2024 CHS ACADEMIC SCHOLARSHIPS
and
BURSARIES RECIPIENTS from Alberta
James Kreppner Memorial Scholarship and Bursary Program
In an effort to bring young volunteers into the Canadian Hemophilia Society (CHS), and in recognition that a sound education is of utmost importance (particularly for those who might not be able to succeed in a vocation requiring strenuous physical labour), the CHS offers the opportunity for those who qualify to receive a scholarship or bursary in the amount of $5,000 to attend a post-secondary institution of their choice.
The CHS James Kreppner Memorial Scholarship and Bursary Program is a posthumous tribute to James Kreppner, a long-time volunteer and member of the CHS Board of Directors, and a highly respected and exemplary activist. He passed away in 2009 from complications related to HIV and hepatitis C. The CHS James Kreppner Scholarship and Bursary Program is an ongoing tribute to James’ dedication, intelligence and commitment to the CHS and community service.
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Noah Adams
Calgary, Alberta
Growing up with a bleeding disorder, I was originally trapped and confined by this idea of danger in daily activities. Playing outside on uneven ground and on wooden play structures always built frightening scenes of having to run home, bleeding, because I had cut myself or scraped my knees. These ideas struck down my interest for the outdoors but within them I found a love and passion in the science behind why the body produces such deficiencies. Using my own situation as motivation, I have decided to pursue an education in biochemistry as I want to understand what makes up such robust mechanisms within the human body.
In the future, I hope to pay back what was given to me and strive to help others overcome similar challenges. With this in mind, I’d like to thank the James Kreppner Scholarship Review Committee for its support in my endeavours. Without this financial help I would not be able to focus all of my energy into my studies.
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