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Free Training | Education
Schools, businesses and community groups receive free training on Seizure Recognition and First Aid.
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With Gratitude to
2014 Gala Sponsors
Remick Family Foundation
Chrisman Family Trust
Falasco Keeney Family
Ken and Veronika Archer
Nancy and Fred Teichert
Charles Wilson, MD &
Carrying On A Friend's Legacy
Scott Earle shares his story about how a close friend affected by epilepsy influenced the life he leads today.
Michael Roy Anderson is the reason behind the ongoing adventures of Team MIKE.
Mike was one of my best friends but he hid a secret. Mike had epilepsy. I don't think he was embarrassed, I just think he didn't want to bother anyone with his troubles.
That was the kind of guy Mike was. I only wish he would have shared his secret; we could have done more to help. Mike passed away from complications to his epilepsy while sleeping on October 29, 2008.
|Team Mike 2015
(Scott, far right)
Although Mike's passing brought sadness, it inspired me to give others hope. In 2009, I decided that I would run the Bay to Breakers in Mike's honor. Dave, Mike's brother, assured me I wouldn't be running alone--family and friends jumped on board. Team MIKE formed and has been growing ever since. Our team donations helped send not only one, but two children to Camp Coelho in 2009.
We were inspired to do it again in 2015. We held a karaoke event and continued the tradition of participating in Bay to Breakers to shed light on epilepsy. Due to our success, we are sending another child to Camp Coelho! This is our small part to the great work this foundation is doing to spread awareness, provide education, and hope to all those affected by epilepsy.
Tips for a Seizure-Smart Summer
With summer upon us, it is important to consider some seasonal health and safety issues that epilepsy patients may have. S
afety considerations may vary depending upon seizure type, frequency, severity, triggers, and individual abilities.
- Stay hydrated by drinking more water.
- Stay cool by limiting sun exposure and by dressing in lightweight clothing. Spend time in air conditioned facilities.
- Sunglasses that are blue tinted polarized may help minimize photosensitivity if participating in outdoor activities.
- Keep a regular sleep schedule.
- Take medications on time and as prescribed.
- Swim in an area that is supervised by a lifeguard aware of your condition or with someone familiar with your needs. Wearing a life jacket or flotation device as necessary.
- And of course, don't forget the sunscreen!
Her Inspirational Story
Kaitlyn O'Connor, 13-years old, had her first seizure in the 6th grade. Within a year of her first seizure, she was experiencing 24-hour per day moving and twitching sensations on her left side. Although Kaitlyn was diagnosed with epilepsy at a young age, she has
not let it define who she is
For the Camera!
Kaitlyn will enter 8th grade this fall. She has undergone
three brain surgeries
over the past year. While she's had no seizures since her third surgery in March, Kaitlyn currently uses a wheelchair and attends strenuous physical therapy to relearn how to walk. Kaitlyn's treatment has forced her to miss many school days, so her summer schedule is packed with school classes and tutoring lessons. Kaitlyn's favorite school subject is Language Arts because
she loves reading
and one of her favorite book series is the Divergent trilogy. It just so happened that all the Divergent movie openings fell on surgery days...
Kaitlyn joked about a conspiracy against her!
"Kaitlyn is the most enthusiastic, positive person I know." -Dr. Brenda Porter
Despite having epilepsy, Kaitlyn enjoys
canvas painting in her neighbor's backyard studio, supporting the softball team she played with to a championship level,
watching the TV show "Girl Meets World",
and cheering on the San Francisco Giants and Golden State Warriors. At a Cleveland Clinic, she had a large Stephen Curry poster on her wall, and while the Cleveland nurses were saddened by their team's recent playoff loss to the Warriors, Kaitlyn and the clinic staff stayed on good terms!
Although Kaitlyn faces many obstacles, such as not being able to walk independently or participate like she wants to, she
emphasizes the extraordinary support
given by friends and family. Kaitlyn recounts, "One of my good friends traveled from California to visit me at the Cleveland clinic and another friend made a bowl full of paper cranes to wish me well." Kaitlyn is inspirational to everyone she meets; she's extremely upbeat and positive.
Special thanks to Kaitlyn for sharing her story and Emily Hsu, EFNC Intern, for performing this interview.
What Causes Epilepsy?
Sixty million Americans will develop epilepsy during their lifetime, but who is really at risk? L
isten to Dr. Robert Fisher, Stanford Medical Center Epileptologist, Researcher, and member of the EFNC Professional Advisory Board, as he speaks about the
causes of epilepsy and the population it affects.
Wait-List Now Open
August 2-7, 2015
CYO Camp, Occidental, CA
Tuition: $600 (5 nights--Sunday to Friday)
Specialized Medical Support,
Room & Board, Fun Activities,
Campers, we look forward to seeing you and making new memories together!
the Camp Experience!
Parents & Guardians:
Check-In time is 3:00 p.m. Please submit all paperwork as soon as possible to firstname.lastname@example.org/ fax to: 415.677.4190.