July 2020 K
ōkua Mau eNewsletter
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Thank you to all of our amazing health care professionals and your incredible contributions in the face of the COVID-19 crisis.
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Greetings!
Questions about Medicare: ABCD's of Medicare and various parts of Medicare Plan options
are answered by our guest speaker
Margaret Wong, of the Copeland Insurance Group answers, for our network in Hawaii.
"How to Help Your Older Parent"
presented by
Laurie Adamshick, Esq. of The Elder Law Practice of Rulon & Adamshick LLC. She shared information and tips to assist an adult child in helping an older parent prepare for the challenges of aging before there is a health emergency.
Margaret and Laurie spoke at our March Kokua Mau meeting.
Advance Care Planning in the time of COVID-19 in Hawaii. National and local experts agree that advance care planning continues to be important to make sure that people's wishes are known. Hear from our local experts on how they are approaching these conversations and what opportunities and challenges they encounter and hear from 5 local experts who presented at the June 25 K
ōkua Mau Meeting.
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Hawaii is leading the nation in some Advance Care Planning indicators and you can read the new ACP Best practice report from C-TAC.
Full version of a report
.
Many webinars are now being recorded and posted very quickly (see
our webpage
), making it more convenient to participate in national conversations without having to log in before 7 am.
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7/7Advanced Care Planning in Times of COVID
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Behavioral Health TeleECHO Clinic presents:
Advanced Care Planning in Times of COVID
July 7th
Noon-1PM
Presenter:
Hope Young, Advance Care Planning Coordinator and Jeannette Koijane, Executive Director, K
ōkua Mau
First time attending a BH ECHO session?
If this is your first time attending, please complete
your one-time registration and providing ECHO with your information. You only need to sign up for ECHO once. The meeting are with zoom.
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7/15
Virtual Palliative Pupus
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Wed. July 15
5:15 to 7:00 PM
Virtual Palliative Pupus on zoom? Of course you say by now. Last time, over 60 people joined so join us for our third virtual Palliative Pupus.
Palliative Pupus is our exciting local networking and clinical education opportunity. Participate in an interactive interdisciplinary story from the cutting edge of hospice and palliative care. If you are involved with palliative care cases or want to know more about what palliative care is, you are invited. Please tell your colleagues and friends.
After registering, you will receive a confirmation email containing information about joining the zoom meeting.
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7/15 HCCIntelligence™ Webinar: Intersection of Faith and Community Organizing in Advanced Illness Care During COVID-19
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A collaboration between
C-TAC and the Home Centered Care Institute (
HCCI).
Wed July 15
11 - 12:00 noon
During this webinar, experts will discuss the role of faith leaders in supporting those in their communities affected by serious illness. Speakers will also explore how faith leaders can engage with parishioners affected by serious illness.
Register here.
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8/24 & 25 Save the date: CCCC Virtual Summit
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Sharpening our visions for Compassionate Care in the Face of Serious Illness is the Coalition for Compassionate Care of California (CCCC) virtual summit for 2020. This special event is designed for physicians, nurses, social workers, nursing home administrators, chaplains, and others interested in education, clinical research, quality, and policy as it pertains to palliative care and advance care planning. 6 CEU/CMEs.
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Dementia in the family: Care Options and Resources
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Hale Hau‘oli Hawai‘i invites you to a five-part series of one-hour presentations:
9:00am – 10:00am
July 18 – Dr. Poki‘i Balaz, Dementia Basics
July 25 – Dr. Poki‘i Balaz, It’s All About You, The Caregiver
Aug 1 – Rick Tabor, Caring for the Caregiver: Mindfulness
Aug 8 – Gary Powell, Deciding for One Who Cannot
Aug 15 – Rulon Adamshick, Esq., Planning for the Next Chapter: Incapacity and Dementia
This workshop is made possible with generous support from the City and County of Honolulu, the May Templeton Hopper Fund and the Theordor A. Vierra Fund from the Hawai‘i Community Foundation, and AARP.
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Virtual Meetings
Kōkua Mau Virtual Monthly Meeting
Mon. July 6 & 13 - Social Workers
3-4pm
Please join us for a get together (via Zoom) of
social
workers. All are welcome and RSVP to Hope Young at
hope@kokuamau.org This is a wonderful chance to talk about what you are experiencing now with COVID-19 as well as share resources and get feedback from colleagues. Today is the 8
th meeting, back by popular demand.
Thur. July 30
3-5ish PM
Mapping Palliative Care in Hawaii. Where is palliative care available?
How many people are receiving palliative care and in what settings? Chelsea Hirano will present the results of her research over the last 6 months looking at in-patient, out-patient and community based settings. Chelsea is a graduate nursing student in community health at UH Nursing.
Please
register in advance
to get the zoom details. After registering, you will receive a confirmation email containing information about joining the meeting.
PS: Please make sure you update to zoom
5.1 (zoom is very moody lately, if it is not up-to-date). More about that on our website
zoom made easy.
Let Kōkua Mau facilitate your zoom Get-Togethers
If you are a group or hui that would like to meet, to exchange ideas or to talk story, please
let us us know
and we will organize a zoom meeting for and with you.
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Innovative VA Concurrent Care Program available in Hawai‘i
At our May K
ōkua
Mau meeting, Dr. Liane Tokushige presented about the innovative and timely palliative care program bringing in-home care to veterans with serious illness. Here is a description of the program:
VA PIHCS Concurrent Care program is for registered Veterans with advanced illness such as cancer, heart failure or advanced lung disease to be able to access by phone or in their home, medical care focused on alleviating symptoms such as pain, nausea, or anxiety, 24 hours a day, while still receiving treatments. Under this program, the Veteran may continue to visit their doctors, receive treatments such as chemotherapy and visit the emergency room if needed. The actual hands-on care is provided by community hospice agencies, statewide. If interested, call your VA provider to request a palliative care consult.
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COVID Preparation Series -
JABSOM Series
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2-3 pm
7/15 – COVID Facilities and Cohorting TBA – Tentative – TBA
8/18 – Hospice Care in the Time of COVID – Tentative – TBA
The series
COVID-19 Webinars
by
JABSOM's Geriatric Medicine is organized by
Dr. Aida Wen and the Geriatrics Department at JABSOM. CEUs are available.
More information (click on '
Upcoming sessions' tab for details) and
registration page
.
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Advance Care Planning Best Practices Report with focus on Hawaii
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C-TAC has released
the full version of a report
designed to identify
strategies that could be used to boost the use of advance care planning
(ACP), a practice that is
now more important than ever
as we face the uncertainties of the COVID-19 pandemic.
Discern Health
, a healthcare quality and research advisory organization, developed the report.
Hawaii features prominently in the report as we are leading the nation in Advance Care Planning in certain measures, although there is clearly a long way to go. Jeannette Koijane, Hope Young, Dr. Rae Seitz and Dr. Emese Somogyi were interviewed along with Dr. Angelo Volandes from ACP Decisions.
“
Thoughtful conversations about goals of care are more important now than ever before as we face the challenges of the COVID-19 pandemic
,” said C-TAC Executive Director Jon Broyles. “
This report identifies several key practices that can be used to promote advance care planning across the country and ensure that people receive the care they want in the setting that is right for them
.”
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Fillable/writable POLST form available
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Based on community feedback, we created a fillable/writable PDF file for the official POLST form for Hawai‘i. Thank you for this great tip! As far as we know, we might be the first state offering a fillable PDF file for our POLST.
We hope it makes your work easier. You can download it on our
POLST for Providers
page.
All appropriate fields can be filled out with word or tick marks. Keep in mind to only choose one option per section. The signature fields cannot be filled out electronically, since POLST needs to be signed in person the patient and an APRN or MD.
Please download the file ‘
Hawaii_POLST_Form_fillable.pdf’. Fill it out in your computer or tablet, print it and sign it. Green paper is strongly recommended. Please note: This PDF file is
not a fillable web form or an electronic record and consequently all information you put in inside your browser might be lost.
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Critical Care Doctor Explains Directives Followed In Near-Death Cases
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Listen to the short, well done interview on
All Things Considered
NPR Story with Dr. Jessica Zitter, a critical and palliative care specialist takes listener questions about advanced directives that doctors follow in critical situations. (8 minutes)
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Archived (free) COVID Conversations Webinar Series
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The
CCCC (Coalition for Compassionate Care of California) makes the archived
COVID Conversations Webinar Series available for fee on their
website until July 31.
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FAQs About COVID-19 and Palliative Care
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CAPC is listening to the community's concerns and challenges around palliative care and the COVID-19 pandemic. Here are answers to some
frequently asked questions.
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Serious Illness & COVID-19 Tips and Tools for Caregivers
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People living with serious illness are at high risk for COVID-19. This is the population treated by palliative care. So many patients and caregivers are wondering what else can we do aside from washing hands, social distancing, and staying at home?
VitalTalk and the
National Patient Advocate Foundation (NPAF) have partnered with palliative care experts to develop this guide:
COVID-19 Tips and Tools.
We are all in this together. You can do your part by making a plan. This plan can help you, your family, friends, and your medical providers.
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Reimagine: Life, Loss, & Love Virtual Festival 5/1 to 7/9
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“
Reimagine: Life, Loss, & Love” is a worldwide virtual festival which runs through July 9th.
Featuring numerous “
changemakers” from healthcare, end-of-life care, the arts, and spirituality, the festival is focused on “embracing life, facing death, and loving fully in the face of COVID-19.”
Workshops, concerts, conversations, ceremonies, book club discussions, film screenings, games, dances, dinners, demonstrations and more center around the themes of “wonder,” “prepare,” “remember,” and “live fully.” Organizations such as Death Café, Compassion and Choices, End of Life Choices New York, Steady Waves End of Life Services, and many others are holding special presentations and events. Most events are free. The
full schedule (free and fee) is available on
their website with links to RSVP for individually events.
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The ELNEC team (End of Life Nursing Education Consortium) extends their support for all clinicians providing palliative care and hopes you make sure to take care of yourselves during this challenging time. ELNEC has provided
free resources for support, so please take advantage and share with colleagues.
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COVID-19 Response Toolkit by Ariadne Labs
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Ariadne Labs’ Serious Illness Care Program developed a
COVID-19 Response Toolkit to support health systems and clinicians in addressing the communication needs of patients in the community and those in the hospital. The toolkit includes:
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Healthcare Decision Aids by the Coalition for Compassionate Care of California
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During the COVID crisis Coalition for Compassionate Care of California is making free digital versions of their popular
Decision Aids available to
download and share with consumers (though May 30, 2020).
CCCC’s Decision Aids explain the complex topics of life-sustaining treatments using consumer-friendly language with neutral, evidence-based information.
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Inspirational Moment - The Pause Newsletter
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The Pause Newsletter comes highly recommended by K
ōkua Mau's own Clarence Liu:
"It is deeply spiritual without the trappings of religious language, poetic, and consoling. In short, a gem." The Pause is our Saturday morning newsletter, a gathering of threads from the far-flung, ongoing conversation that is The On Being Project.
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April 12, 2020:
Kokua Line
: Naming a health-care proxy more important than ever
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Read the interview with K
ōkua Mau's own Dr. Daniel Fischberg and Jeannette Koijane in the
Honolulu Star-Advertiser's Kokua Line, by Christine Donnely from April 12, 2020. All COVID-19 coverage has free access at the Honolulu Star-Advertiser.
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HPNA COVID-19 Patient Care Guides
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Written by national nursing experts in the hospice and palliative nursing field, these guides highlight key nursing information about anxiety, communication, pain, delirium, dyspnea, nausea, terminal secretions and nursing care and support at end-of-life. This information is
on the HPNA website.
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Center to Advance Palliative Care COVID-19 Resources
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The
Center to Advance Palliative Care (
CAPC
) has a
tailor made CAPC COVID-19 Response Resources Toolkit. There website and relevant PDF files are updated daily or as needed to droppable-1587152601870reflect real-time changes.
The
COVID-19 Response Resources toolkit included crisis communication and symptom management protocols for all clinicians, and guidance to help palliative care teams address high levels of volume and stress during a crisis.
This toolkit covers important areas for palliative care teams and for any clinicians caring for patients with serious illness. Check back to their website frequently for new additions to their toolkit.
- Communication Tips
- Symptom Management Protocols
- Palliative Care Team Tools
- Telehealth
- Patient and Family Support Resources from the CDC
- Medicare COVID-19 Waivers
- Federal COVID-19 Guidance
- Setting-Specific Guidance
- Role of Palliative Care
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COVID Conversations Toolbox from the Coalition for Compassionate Care of California (CCCC)
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The COVID-19 pandemic makes the threat of becoming seriously ill frighteningly real – and greatly emphasizes the need to know each patient’s values and wishes regarding treatment options. Conversations around serious illness and medical treatment options can be very empowering. The
CCCC‘s
COVID Communications Toolbox provides easy access and support for healthcare providers and consumers, as they navigate decision-making during these these challenging times.
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Vital Talk's COVID Ready Communication Playbook
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A 13 page guide
available in 14 languages, is for health care professionals everywhere. As Vital Talk says: these are unprecedented times. There’s no roadmap. We’re facing conversations that we never expected - or wanted - to have. More on
their website.
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For clinicians who care for patients with serious illness and their families,
having great communication skills makes a difference - your patients will understand their medical situation better, and build trust with you faster, and you’ll be able to guide them to medical decisions that match their values.
VitalTalk has created an app that contains
communication skill tips, focused on the moments where clinicians most often get stuck. The VitalTalk Tips app is available for
iPhone and for
Android devices.
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COVID-ready communication skills Primer from VitalTalk
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Vital Talk
has 2 decades of experience studying and teaching communication and crowdsourced this resource.
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State of Hawaii DOH's new COVID-19 Providers Page
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- Please visit the State of Hawaii DOH's new COVID-19 Providers Page for the latest updates, resources, and guidelines.
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National POLST Office new resources
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- National POLST COVID-19 Statement (3/30) PDF file
- Guidance for Completing POLST Forms in Crisis Standards of Care (3/30) PDF file
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Resource video
: COVID-19 What It Is and Ways to Prepare and Protect Yourself
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Updated webpage: Let’s make Personal Protection Equipment for Hawaii
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We just added instructions on how to make the
Olson mask to our
website. The research of local team working on the best solutions for Hawaii, has determined the Olson mask as the gold standard. Details and video step-by-step instructions
on our website.
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WEBINARS
(
see our
webpage
for recorded webinars
)
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Stay safe and remember the aloha spirit!
Jeannette Koijane
Executive Director
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Useful quick links to Kōkua Mau Topics
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