May 2020
ALS Emergency Relief Fund
Learn more about how we're adapting our
services to meet the needs of people living
with ALS during the COVID - 19 crisis.

2020 Walk to Defeat ALS ®
"This year, instead of walking, we are rolling!"
Dear Friend,

Now is the time to rally the troops for the 2020 Greater Sacramento Walk to Defeat ALS®, held on Saturday, October 3rd, 2020 at Sutter Health Park in West Sacramento. Register your team today to join us for a good old-fashioned car hop, where we will tailgate with a twist! Special awards will be given for the best vehicle décor, so bring your A-Game in the spirit department!

More than an event, the Walk to Defeat ALS® brings hope to families living with ALS by supporting them on every front—care services, research, and advocacy—it’s the #1 way to unite and fundraise for those living with ALS.
You’ll be supporting our quest for a cure, while helping families living with ALS in your community.
Click below to sign up. For more information, or to schedule an appointment to meet your personal coach, please contact Stefanie Daniels at or 916-979-9265 ex. 2
The recently introduced  Promising Pathway Act  (S. 3872) would create a faster approval path for the short-term approval of experimental drugs for diseases like  ALS   and COVID-19, before the FDA makes a final determination on safety and effectiveness. Take action today and urge your senators to cosponsor this critical legislation.
Partnership among The ALS Association, I AM ALS and BrainStorm Cell Therapeutics Promises Insights into ALS Biomarkers
and Effectiveness of NurOwn

The ALS Association and I AM ALS have awarded a $500,000 grant to BrainStorm Cell Therapeutics, a biotechnology company, to support its ALS biomarker research study.
ALS Association’s 2020 National Advocacy Conference Goes Virtual

Not to be deterred by the COVID-19 pandemic, ALS Association advocates from across the country held more than 350 virtual meetings with members of Congress Tuesday, adapting the Association’s longstanding annual Advocacy Conference to ensure the safety of participants. Historically, upwards of 600 ALS advocates gather in the nation’s capital for days of face-to-face meetings with their elected representatives in the Congress and the Senate.
Continuing to Cope with Anxiety and Stress During these Difficult Times

As states begin easing some of the stay-at-home orders put in place in response to the COVID-19 pandemic, people who are high-risk of exposure to the coronavirus are still urged to remain safely at home and to take continued precautions to distance themselves from anyone who may have been exposed to the virus.
Cathy Kettner and Jim Weber on Familial ALS, the Importance of Advocacy, and Who They are Fighting For

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ALS Association Funded Research Attracts
$42 Million in Private Funding

QurAlis, a biotech company focused on developing targeted therapeutics for ALS and a recipient of a $250,000 funding grant from The ALS Association in 2019, recently announced that it had raised $42 million in a Series A venture capital financing round to advance its research into ALS treatments. The private investment round brings the total amount raised by QurAlis to $50.5 million.

Support Group Meetings for pALS and cALS, as well as our Transitions Group, are currently offered in an online video format.

Zoom is a live video platform that offers all of our communities the opportunity to connect with each other across 24 Northern California Counties, from the safety of your own homes.
Frequently Asked Questions
The ALS Association has compiled a list of Frequently Asked Questions about living with ALS and the potential risks of contracting COVID-19. Click here to read responses from our professional medical and care services team.

Special thanks to Mariani Nut Company for supporting our Emergency Relief Fund!
Thank you to our national sponsors!
Thank you to our local sponsors!