June eNews
Understanding the Impact of the Ice Bucket Challenge on The ALS Association's Finances
The ALS Association has always been committed to transparency, including providing complete and accurate financial information on our website . We continue to receive the highest ratings from charity watchdog groups tasked with reviewing our spending, fundraising, and management.
2019 Walk to Defeat ALS
Now is the time to rally the troops and plan to join us for the 2019 Greater Sacramento Walk to Defeat ALS®, held on Saturday, October 5 th, 2019 at Raley Field in West Sacramento. Start your team off strong by registering today and recruiting friends and family to support your efforts to end ALS.
Register your team by clicking the link below!
For questions about Walk, registration, or to set up a time to meet our team and talk all things strategy, please do not hesitate to reach out to Stefanie Daniels at sdaniels@alssac.org. We can’t wait to see you there!
Estate & Financial Planning Essentials for People Living with ALS
Monday, June 17, 2019
11:00am PST

An ALS diagnosis impacts both current budgets and future financial plans. Join us for an overview of financial, legal, and care-choice planning essential for people living with ALS.
Join us for the first Tahoe Support Group on Thursday, June 20th from 12PM-1:30PM at the Station House Inn, located at 901 Park Ave, South Lake Tahoe, CA 96150 (In the Sierra Room, next to the registration desk). Those living with ALS, family, and friends are encouraged to attend for conversation, support, and fellowship. Please RSVP by June 17th to Nancy Wakefield at nwakefield@alssac.org or (916) 979-9265. Lunch will be provided.
Transitions Group
Our Transitions Group is a safe and supportive place for people living with ALS and their loved ones to talk about the many difficult transitions involved in an ALS journey. Whether you have lost someone to ALS or are dealing with the many losses associated with the diagnosis, we hope that you will join us. For more information, please contact Nancy Wakefield at nwakefield@alssac.org or (916) 979-9265.
Advocacy Week in DC

The Greater Sacramento Chapter is ready to take on Capitol Hill from June 9 th-11 th for the Annual Advocacy Conference. Each year, hundreds of ALS Advocates come to Washington, D.C. to learn about the latest ALS research and tell their stories on Capitol Hill. Advocates encourage members of Congress to support ALS-focused legislation and funding, with an emphasis on working together as a nation to end ALS. Learn about this year’s policy priorities and register to become a member of the advocate community here.
Team Challenge ALS

Grab a friend and join Team Challenge ALS in 2019! Combine your passion and commitment to finding a cure for ALS while achieving physical challenges through athletic events, such as marathons, triathlons, long-distance rides, swimming, and other endurance activities. You will get fit, make new friends, and change lives!
Contact Fundraising & Special Events Manager Stefanie Daniels at sdaniels@alssac.org or 916-979-9265 for more info
ALS Care Connection Helps Organize Community of Help for Families Impacted by ALS
The impact of an ALS diagnosis is profound and not just for the person living with the disease.
Daily activities, like making meals, doing laundry, mowing the lawn, and walking the dog, take a back seat when providing care for a family member with ALS.
Meet Alyssa Coyne: A 2018 Milton Safenowitz Postdoctoral Fellow

We recently talked with Dr. Alyssa Coyne from Johns Hopkins University to learn about her unique research project focused on understanding the molecular mechanisms underlying the most common form of familial ALS.

Meet Jorge Gomez-Deza: A 2018 Milton Safenowitz Postdoctoral Fellow

We recently talked with Dr. Jorge Gomez-Deza with the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)/National Institutes of Health (NIH) to learn about his unique research project, which has the ultimate goal of identifying a druggable target that prevents neuronal death.
The ALS Association Appoints Vice President for Research
The ALS Association announced today that Kuldip Dave, Ph.D. has been appointed vice president for research, effective May 31. Dr. Dave brings significant experience directing research and drug development programs and managing complex preclinical and clinical programs in the neurodegenerative disease space.