• FCF is proud to have funded 18 extraordinarily talented research institutions since our founding in 2009 – all focused on the curing of fibrolamellar. To continue their work, these labs need access to biospecimens such as ascites fluid, live tumor tissue, and biopsies. And this is where you, as a fibrolamellar patient, can make a huge contribution to the advancement of the science of FLC research. It is your tissue and your ascites that is needed for study. An open-access biobank is one in which tissue is available to many research institutions.

  • Please see FCF's Biobank Fact Sheet for more information. If you are having an upcoming surgery or draining ascites fluid, please contact our patient navigator, Tom Stockwell.

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