Kidney Beginnings: Slowing the Progression of Kidney Disease

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Kidney Beginnings - May 2021

National High Potassium Awareness Day 2021 Webinar

May 1 was National High Potassium Awareness Day! One way we helped to spread awareness was through our educational webinar, "The Importance of Potassium Management and Kidney Disease."

Did you miss it? No worries! You can watch it OnDemand on our YouTube channel.

Click the button below to watch the webinar now.

Watch the Webinar

HAPPENING NEXT WEEK! Our 3rd Annual Global Summit, Global Kidney Innovations - Expanding Patient Choices and Outcomes, a collaborative partnership event presented by the American Association of Kidney Patients and George Washington University, is approaching quickly!

Virtual Summit Event Dates: May 13-14, 2021

#GlobalKidney2021

There's still time to register!

NEW AAKP Press Release!

Largest Kidney Patient Group Targets High Potassium Threat With Second Annual Awareness Day

Read the full release by clicking the button below!

Read the Full Release

Our March/April issue of aakpRENALIFE is now available!

Check it out here.

You can also catch up on all of our past issues for FREE here.

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Today is National Beverage Day! Check out AAKP Delicious for kidney-friendly beverage recipes like our Blueberry Pear Protein Smoothie, Iced Coffee, and more!

Visit our store and check out our AAKP Delicious! Recipe Cards and Cookbooks for delicious kidney-friendly recipe ideas!

Visit the AAKP Store

A recent randomized trial tested an intervention to reduce sedentary time and increase physical activity in individuals with kidney disease.

Sedentary behavior is very common in individuals with chronic kidney disease (CKD), especially those with more advanced stages, and it's linked with a higher risk of dying prematurely.

A team led by Srinivasan Beddhu, MD designed a study to see whether light intensity casual stepping could decrease sedentary time to improve health and well-being in patients with moderate-to-advanced CKD.

The researchers found that by week 20, sedentary time decreased by an average of 43 minutes per day, stepping time increased by 16 minutes per day, and the number of steps per day increased by 1, 265 in the intervention group.

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A study supported by NIHR Leicester Biomedical Research Centre has found that the heart health of patients with kidney failure could drastically improve through cycling at moderate intensity during dialysis.

Dialysis can lead to long-term scarring of the heart, which can accumulate over time and lead to heart failure. The study set out to examine whether the health of patients could be improved and if these side-effects could be reduced.

The patients who took part in the CYCLE-HD study were offered 30 minutes of moderate-intensity exercise on a specially adapted bicycle during their regular dialysis sessions.

James Burton, a Chief Investigator on the study, said: “We know that being more active can help reduce the risk of heart disease, as well as helping to control weight, reduce blood pressure and cholesterol, and improve mental health."

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Chronic kidney disease (CKD) is a growing public health concern, affecting approximately 1 in 7 U.S. adults, and accounting for more than 20 percent of the Medicare budget. Diagnosing CKD early, and managing the underlying causes is critical to slowing down the progression to end-stage renal disease (ESRD), thereby reducing the burden to patients as well as the healthcare system.

However, CKD has a complex etiology, and until recently, the role of genetics in adult-onset CKD was greatly underappreciated. A seminal paper published in the New England Journal of Medicine in 2019 found that approximately one in 10 adult-onset CKD patients have a genetic etiology — a diagnostic yield comparable to that found with genetic testing in other specialties, such as oncology. Pathogenic variants were detected across all clinical diagnoses, including CKD of unknown etiology, which represents 36 percent of adult-onset CKD cases.

The growing awareness of the importance of genetics in adult-onset CKD has led to the development of renal disease-specific gene panels, comprising a small number of genes that are selected based on known associations with a particular disease or phenotype. The utility of such targeted panels is highly dependent on an accurate clinical diagnosis. However, kidney diseases are complex and are often misdiagnosed based on a patient’s clinical presentation.

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