Once again summer passed in the blink of an eye. We hope HH families enjoyed time together and some R&R. We anticipate a busy fall and wanted to share a few exciting highlights:
  • Your last chance to sign up for the REN is tomorrow! Please do so!
  • See good new from Medtronic for Europe
  • Live in DC and surrounds? Grab your sneakers in Sept!
We are thrilled to continue to welcome new volunteers like Bradford Davis. And we are grateful for families across the world raising funds for Hope. Thanks to Eva and Megan! 

Have a few extra hours this fall? Or experience in event planning, finances/accounting, fundraising, program administration, pr/marketing? We promise to put your time and skills to great use! Friends, relatives, neighbors make great volunteers - they need not be touched by HH - just eager to help our wonderful community.  Please  email us! 

Hope you ease back into fall!
Ilene Miller, President

Your Last Chance To Be Counted is Tomorrow!
The Wait is Over!
We are excited to share laser ablation is coming to Europe! To find out where and when - read more here
Giving THANKS to Dedicated Volunteers
Hope for HH is excited to welcome new volunteer Bradford Davis
Interested in joining our dynamic team? Click here

Raising Money & HOPE! 


Thanks to Megan Rothenberg and Eva Holstad 
for helping to raise critical funds and awareness for Hope!
Live in DC or Surrounds? 

Grab your sneakers for the 
2nd Annual OrthoBethesda Great Strides 5K 
September 30 at 8 AM in Bethesda, MD.
Runners, Walkers, Sponsors, Volunteers - more info here.

Hope for Hypothalamic Hamartomas 

Provides information and support to HH patients, caregivers, and healthcare providers and  promotes research toward early detection, improved treatments, living with HH, and cure.

DO YOU GET IT ALL?