Happy Wednesday, Cure.

As the summer draws to a close, we’re taking a moment to reflect on the growth our FAST community has gone through the last few months — and recharge as we head into the busy fall season (and yes, that means it’s almost time for our annual Gala!)

We’re grateful to have you as part of the FAST family – and hope you and your loved ones enjoy the upcoming holiday weekend. Happy reading!   

If you have updates you would like to be included in next week’s newsletter, please email us at info@cureangelman.org.

The top 2022 CAN fundraisers will win a day in the lab of Drs. Amay Badnonkar and Albert Keung at North Carolina State University! Their research — funded by a FAST grant — focuses on harnessing the power of organoids for Angelman syndrome research. Grand Prize winners will be able to meet the entire research team, and check out the innovative methods being developed to investigate Angelman syndrome therapeutic candidates.

Learn more about the research that Grand Prize winners will be able to witness:

“Last week I raced the Breck Epic, a 6-day mountain bike stage race high up in the Rocky Mountains of Colorado. Breck Epic starts and finishes each day in the town of Breckenridge, Colorado (elevation 10,000’) and climbs on rugged single track trails, covering approximately 240 total miles and 40,000’ of elevation gain over the course of the 6 day event. It was the culmination of a journey I began over two years ago: In 2009, I started doing triathlons after my youngest daughter, Hayden, was diagnosed with Angelman syndrome. Hayden has always pushed me to reach new goals--but even I couldn’t have seen this latest one coming. 

After Day 1 of the race, I had serious doubts that I would be able to race for 5 more days at such intensity, even with the sacrifices and incredible support from family and friends and months of training leading up to the race. Then I received a text from Maiddy Dunigan, Angel mom to Jaxson and former FAST Board member: ‘You’re an AS mom, you can do anything.’”

Learn more about FAST Athletes and their mission and inspiring stories:

FAST recently introduced five new FAST Advisory Council members, including Easton Bryant, PharmD. Easton is the owner of an independent pharmacy, North Century Pharmacy, in Columbia, Kentucky. Bryant’s pharmacy offers a full line of innovative services including pharmacogenomic testing. He is passionate about helping others make educated and informed decisions regarding health-related issues. His oldest daughter, Izzie Mae, lives with Angelman syndrome. 

Check out this video to learn more about him and his family.

It’s the final day to take advantage of early bird pricing for the 2022 Global Science Summit & Gala! The 2022 Global Science Summit & Gala is the largest gathering of Angelman families worldwide. This year’s event will take place on December 2–3, 2022, at the Diplomat Beach Resort in Miami, Florida.

Early bird tickets are available for the 2022 Global Science Summit & Gala. Tickets are $175 if purchased before September 1, 2022. Tickets will increase to $225 after the Early Bird deadline. In addition, you’ll receive $50 off the nightly hotel rate when reserving prior to September 1, 2022. 

To reserve a discounted room, complete event registration or enter the scholarship or parent ticket giveaway, please visit our website:

Looking for the parent ticket giveaway or scholarship application? Click here to apply!

Join us for the first Angelman Café: A get-together where you can find a comforting voice, advice or simply listen to others with similar experiences. Help us embrace all the AS families in all countries of the region, enriching our Latin American community along the way.

The Café will be held virtually on Thursday, September 1st at 3pm (Central America) / 4pm (COL/MEX) / 5pm (CHI) / 6pm (ARG).

Thanks for reading and being a part of our community! If you know anyone else who would be interested in receiving our updates, please forward them this link to sign up.