Thanks to the efforts of our amazing AS advocates, FAST and ASF are proud to announce that we have achieved initial success in our fiscal year (FY) 2025 Congressional appropriations requests.

Read more:

Neuren Pharmaceuticals announced top-line results from its Phase 2 clinical trial of NNZ-2591 in children with Angelman syndrome.

Learn more:

Plan ahead and register for the 2024 FAST Global Science Summit & Gala now to take advantage of the early bird perks that end on August 30th. As a reminder, registration is free for the Global Science Summit for our in-person and virtual attendees.

Here are the early bird perks:

1. Have your loved one living with AS represented in the annual FAST Gala video (available for in-person and virtual registrations)
2. A chance to win a complimentary hair or makeup appointment in the FAST Gala Hair and Makeup Room on-site in Orlando, FL (for in-person registrations).

Register today so you don’t miss these perks!

Earlier this month, FAST attended the 8th Angelman Syndrome Alliance (ASA) Congress in Coventry, UK. Ellen Koekoeckx (FAST Global Advisor) and Amelia Beatty (FAST Board of Directors) had the privilege of representing FAST Headquarters. The event was a valuable opportunity for us to engage with the broader Angelman community and learn about the impactful work being funded by the ASA. 

Check out highlights from this conference:

If Will CAN, We CAN ... Bet on the Trifecta to Beat A.S. took place on August 3, 2024, in partnership with FAST, Mighty Evie and Will.i.CAN at Canterbury Park in Shakopee, Minnesota.

The Will.i.CAN and Mighty Evie crew collaborated to bring more than 240 friends, family, and supporters together in support of FAST’s mission.

These Minnesota families epitomized the phrase, “There is strength in numbers,” and raised more than $60,000 together! 

Read more and check out photos:

Thanks for reading, and please share this email with anyone in your network who would be interested in receiving our updates.