ASF & FAST joined dozens of other organizations to advocate for federal efforts aimed at supporting caregivers. Both organizations signed a letter supporting the establishment of The Office of Caregiver Health, and a letter endorsing the Alleviating Barriers for Caregivers (ABC) Act.

Learn more:

The Laskowski Family, in honor of their son Gus, who lives with AS, had their best year yet hosting their annual golf outing for the 3rd year in a row. The Go Gus Go Foundation is committed to supporting those living with Angelman syndrome and other special needs in Michigan. We are grateful that a portion of the proceeds will benefit FAST – thank you to the Go Gus Go family & friends for showing up to golf, bid, and be together to support our community!

Read more about the event and check out photos:

The Global Angelman Syndrome Registry (GASR) is a tool to help families provide important data that medical professionals and researchers can utilize to better understand individuals living with Angelman syndrome.  

FAST is thrilled to provide ongoing support to the GASR as our genetic counselor, Niki Armstrong, joins the team as the US-based curator! She hopes to focus on improving the family experience in the Registry and making sure that families understand the importance of the data they provide! To learn more about participating in GASR, click here.

Book a private session with Niki to learn more about this tool and your loved one’s genetics!  

Schedule a session with Niki now:

FAST’s annual Global Science Summit & Gala is the biggest science and drug development event devoted to Angelman syndrome. It’s also a weekend for our community to learn, connect, and celebrate each other — and all of the individuals living with AS.

We want to see you there! If finances are a barrier and you are a parent or grandparent, be sure to enter the FAST Gala Parent Ticket Giveaway – receive up to 2 tickets to our 21+ FAST Gala on Saturday, Nov 9th (an up to $500 value)! 

The deadline is July 12th! Enter here:

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