The IROC Update Newsletter | February 2022 |
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Learning Sessions | Important Updates | Committee & Workgroup News | Important Dates | COVID-19 |
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Coming Soon: Registration for the Spring 2022
Virtual Learning Session
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The IROC Spring 2022 Learning Session will be a one-day, virtual event. The learning session will take place on Friday, April 8 from 11 a.m. to 3 p.m. ET, 10 a.m. to 2 p.m. CT, 9 a.m. to 1 p.m. MT, and 8 a.m. to 12 p.m. PT.
Click here to add the event to your Outlook calendar. Click here to add the event to your Google calendar.
More information and registration will be forthcoming within the next week. Look for the registration link in a separate email sent directly to your inbox and on the IROC Community Platform.
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Save the Date for the Fall 2022 Learning Session |
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Please save the date for our IROC Fall 2022 Learning Session, tentatively scheduled to take place on Friday, October 21 and Saturday, October 22. The time, location, and platform for this event will be forthcoming.
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The Latest Updates to the IROC Outcomes Registry |
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As we continue to roll out the new IROC Outcomes Registry, we'll be regularly updating you on newly available features and functionalities. Please refer to the link below for the latest updates, recently added items, and what will come next. |
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Reminder: IROC IRB Continuing Review |
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The next IROC IRB Continuing Review will not be due until April 2024. Last year’s initial renewal approval has an expiration date of April 2022. Since then, IROC completed a protocol modification for the new registry which switched our protocol to a different category for the new common rule. On that modification approval letter, it states the current expiration date is April 2024. Therefore, IROC will not have a continuing renewal application due to the CCHMC IRB until April 2024.
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Annual IROC Site Team Roster Review & Key Contact Identification |
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Each IROC site team roster has been added here on ICP. Please have a designated team member or the planned key contact for your site review your site’s team roster for accuracy and ensure that your IROC Key Contact(s) are identified. Full details on the yearly site rosters and Key Contact review can be found on the ICP newsfeed.
Do you have changes to your site team, need to add or remove a team member, request registry access, or identify a Key Contact?
An “Add/Remove Site Team Member” Button has been added to ICP Quick Links here to expedite these requests.
What is a Key Contact’s Role?
A Key Contact is the primary liaison for a site and ensures their team members receive appropriate IROC updates and requests. They are responsible for notifying IROC of changes to your site’s team roster.
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Quality Improvement Fundamentals (QIF) Continues |
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We are proud to announce IROC QI Fundamentals continues to be a successful series. Our second session was held February 2 and welcomed 12 attendees from four IROC teams. Our time was spent with teams sharing their QI project progress and teaching on Model for Improvement, Aim Statements, KDDs and measurement.
There are two sessions left in the series, which will cover PDSAs, reliability, sustainability and spread. We welcome new team members and members interested in a QI refresher to audit the training. If you are interested in joining the sessions, register and add the call details to your calendar. Learn more about QIF sessions here.
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Session 3:
March 2, 2022 | 11:30 a.m. to 1 p.m. ET
Session 4:
April 6, 2022 | 11:30 a.m. to 1 p.m. ET
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See the upcoming AP Call information and links below.
Please note that for all IROC AP Call attendees now need to register in advance for the calls. Upon registration, you will be able to download the calendar invitation to add the series to your calendar.
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Blue Team:
2nd Tuesday of each month
4-5 p.m. ET
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Red Team:
2nd Friday of each month
1-2 p.m. ET
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Orange Team:
3rd Tuesday of each month
4-5 p.m. ET
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Green Team:
2nd Friday of each month
2-3 p.m. ET
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Committee & Workgroup News |
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Community Engagement Workgroup (CEW) Updates |
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In January, a parent gave a mini-ignite talk about her son and their family's transplant journey. She provided great tips like reminding our kids why taking their meds is so critical and teaching our older kids that they can reach out directly to their doctors. Our guest speakers from the Scientific Registry of Transplant Recipients conducted a focus group that would help other transplant families.
In February, a parent was our mini-ignite speaker to share her daughter's tough journey and her message of faith and resiliency. She also shared how the knowledge and support of other CEW parents made a huge difference in her daughter's care. Guest speaker, Donna Ritz, LCSW, was back by popular demand to remind us what superheroes look like and they happen to look a lot like pediatric transplant patients and their caregivers. Her presentation, "Kids: Mental Health, Masks, and Magical Measures" was as entertaining as it was meaningful.
The CEW's Transition Workgroup, a dedicated group of caregivers and clinicians, are actively working on developing a Transition Toolkit for patients and families.
As a reminder, the CEW has Blood Pressure and Rejection Materials available for families on the CEW member section of IROCNow.org. These materials are also available for sites on ICP.
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Upcoming CEW Call Details
Date: Tuesday, March 15, 2022
Time: 8-9 p.m. ET, 7-8 p.m. CT, 6-7 p.m. MT, 5-6 p.m. PT
Note: Reminder, monthly CEW calls are attended by CEW members only.
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Research Committee Updates |
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Research Committee Announcements
The Research Committee will be holding an election for the FY23 Chair and Chair-Elect leadership positions. The Chair will serve a one-year term, then move into the Past-Chair role. The Chair Elect will serve a one-year term and then move into the Chair role the following year (FY24). Descriptions of theses roles can be found in the Research Committee charter on ICP. Current Research Committee members, please reach out to IROC@cchmc.org to nominate yourself or another Research Committee member by Tuesday, March 15. Candidates will be confirmed by and announced in the March Research Committee meeting. Research Committee members are eligible for the Research Committee leadership positions.
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The next Research Committee meeting is scheduled for Wednesday, March 23 at
12 p.m. ET / 11 a.m. CT /
10 a.m. MT / 9 a.m. PT
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Use Meeting ID: 875 6048 9827
Passcode: QDMm1H
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Upcoming QI/IT Committee Meeting Details
The IROC QI/IT Committee meetings will be held on the second Wednesday of the month from 2 to 3 p.m. ET and the fourth Wednesday of the month from 11 a.m. to 12 p.m. ET. See the specific dates and times below.
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Wednesday, March 9
2 – 3 p.m. ET
Use Meeting ID:
821 2355 8867
Passcode: i3eTe1
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Wednesday, March 23
11 a.m. – 12 p.m. ET
Use Meeting ID:
843 7080 2518
Passcode: 4r07ru
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COVID-19 Resources for Patients, Providers, & Families |
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We’ve rounded up resources on our website to help patients, providers and families better understand COVID-19.
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