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Legislative & Advocacy Round-up

To inform brain injury advocates about

grassroots advocacy and public policy

January 2024

In this edition:


  • Save-the-Date! ACL TBI Partners Day


  • National Brain Injury Awareness Day on Capitol Hill


  • Governor Murphy signs law allowing for Presumptive Eligibility for Medicaid Home and Community-Based Services 


  • Legislative Corner


  • (From the) Brain Injury Alliance of New Jersey


  • In Case You Missed It

Save-the-Date! ACL TBI Partners Day


The Administration for Community Living (ACL) in observance of Brain Injury Awareness Month will be hosting a virtual Traumatic Brain Injury (TBI) Partners Day on February 29, 2024, 12:00 – 4:00 PM ET. Each year, under what was previously called TBI Stakeholder Day, ACL brings partners and interested parties together to discuss important issues around TBI services, supports, and systems and to learn from other partners, brain injury survivors, family members, support networks, and state and federal representatives. This year, they will have sessions on criminal justice, behavioral health, and aging with a TBI.


The plans are to include state and federal representatives as well as people with lived experience/expertise of brain injury in the sessions. Session participants will be given the opportunity to ask questions during each session. There will be no cost to register for the ACL TBI Partners Day.


Stay tuned for more details about 2024 TBI Partners Day in the coming weeks. If you have any questions about this event, please contact tbitarc@hsri.org.

National Brain Injury Awareness Day on Capitol Hill


Join the United States Brain Injury Alliance, Brain Injury Association of America, and the National Association of State Head Injury Administrators and other members of the brain injury community for Brain Injury Awareness Day on Capitol Hill on March 5-6, 2024 and help us win reauthorization for the Traumatic Brain Injury Act.

 

The Traumatic Brain Injury Act provides much-needed funding to improve rehabilitation and community support for people with brain injury, but it is set to expire in 2024. This funding has been shown to improve the overall outcomes for people with brain injury, which is why we need all the help we can get!

 

There will be plenty of other activities to participate in if you are unable to attend the rally. Learn more about this event by clicking HERE.


Governor Murphy signs law allowing for Presumptive Eligibility for Medicaid Home and Community-Based Services 


On January 16th of this year, Governor Murphy signed legislation that will provide greater opportunities for individuals with disabilities to receive those supports and services. Governor Murphy signed legislation that provides for presumptive eligibility for Medicaid home and community-based services for individuals who are likely to be financially and clinically eligible for Medicaid so that these individuals can receive services immediately while their Medicaid application is pending. 

 

Without presumptive eligibility, many individuals who are hospitalized and awaiting Medicaid eligibility are unable to return to their homes as they are not able to pay for the supports and services that will allow them to return home. Instead, many in this situation end up going to a nursing home, which can provide medical services while Medicaid eligibility is pending and obtain reimbursement once eligibility is determined. With presumptive eligibility, home and community-based providers can begin offering services and supports that allow these individuals to return to their homes, where most individuals wish to be. 

 

The law is conditional on the Department of Human Services obtaining federal approval, and it allows for a 30-month implementation timeframe in order for the Department of Human Services to seek and obtain the necessary federal approvals.   

Legislative Corner


The Brain Injury Alliance of New Jersey monitors and addresses a broad range of legislation that relates to brain injury. Legislation listed below has advanced in either the New Jersey State Legislature or United States Congress. We also appreciate those elected officials who support our positions on certain legislation. We acknowledge such support when it occurs through this monthly electronic newsletter.

 

Please contact Tom Grady, Director of Advocacy and Public Affairs if you would like more information about these bills at tgrady@bianj.org and/or whether you would like to contact your elected representatives to express your views on these bills. 


Bills Advanced


In the New Jersey Legislature

  • S2301 / A118 - Provides credits under corporation business tax and gross income tax for qualified wages of certain disabled veterans.

 

  • S2303 / A1581 - Provides gross income tax credit for certain expenses paid or incurred for care and support of qualifying senior family member; designated as Caregiver’s Assistance Act.

 

  • S2323 / A1605 - Requires Division of Developmental Disabilities to make comprehensive list of its programs available to public.

 

  • AJR109 - Establishes “Persons with Disabilities and Senior Citizen Transportation Services Task Force” to study and make recommendations concerning ways to improve transportation services for persons with disabilities and senior citizens.

 

Thank you!

  • To Senator James Beach for becoming a prime sponsor of S843 which requires Adjutant General of DMVA create program for veterans to receive evaluation and treatment for PTSD, total brain injury, or traumatic brain injury.

The Brain Injury Alliance of New Jersey provides a broad range of programs and services. You may learn about these programs and services by clicking HERE.


Alliance to Hold Session Focused on How to Contact

Your State Representatives


From 10:00 - 12:00, Tuesday, February 13, 2024, the Brain Injury Alliance of New Jersey will be holding a special meeting to educate brain injury advocates on contacting their representatives in the New Jersey State Legislature.


There has been much turnover in the New Jersey State Legislature this year. New - and veteran - representatives may not be familiar with issues affecting people with brain injury. It is important that they know what is important to the brain injury community. This session will provide you with the basic steps to do this.


Objectives are:

* To ensure that you know who your representatives are and how to contact them;

* To provide you with a framework to use when talking to your representatives; and,

* To ask that you encourage representatives to attend our annual Virtual Brain Injury Awareness Day.


You may register for this session HERE.


Brain Injury Alliance of New Jersey Conducting Needs Assessment


The Brain Injury Alliance of New Jersey is conducting a statewide needs assessment on Traumatic Brain Injury and quality of life and access to services amongst survivors, caregivers, and service providers. This study is supported by the Administration for Community Living, Traumatic Brain Injury State Partnership Program Grant and approved by the Rowan University Institutional Review Board (Study # PRO-2022-310).


With this needs assessment, the aim is to better understand the current picture of TBI in the state and direct efforts to areas that are the most in need of attention. The first part of the study will consist of individual surveys conducted online, over the phone, and on paper. After this, there will be focus groups in South, Central, and North Jersey.

The hope is to get a well-represented screenshot of the gaps in TBI services in New Jersey. The direct link to the surveys is HERE.


If you have any questions or concerns, please contact Dr. Sakina Ladha, MD, MPH by email at sladha@bianj.org or by phone at 609-480-2271. 

In Case You Missed It


No one of use can read everything that may be useful to our lives and to the lives of others. The following are some pieces of information that any one of you may not have seen but could be of interest to you:


  • Caregivers provide dedicated support to individuals with disabilities, older adults and those who are chronically ill, often at great cost to themselves. If you're a caregiver, visit HERE for helpful resources and supports.


  • The New Jersey Legislative Disability Caucus invites you to “Positive Impacts and New Possibilities in the Disability Community” webinar on Tuesday, February 20 starting at 12:00 pm. Assembly Majority Leader Greenwald will lead the discussion along with Disability Caucus Collaborators. Register HERE.
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