Looking Back on 2013: Events that Made an Impact
December 2013 
Dear Friends of PANDAS Network,

Thank everyone for making 2013 a great year! You will see in this newsletter, that our community continues to make great strides. We know this is not because of one person or one organization, but it is a community wide effort. We are proud to represent a growing number of families, providers, and researchers.

We wish you a HAPPY and HEALTHY 2014!


With Sincere Appreciation,

The PANDAS Network Team


2013 Community Accomplishments

2013 has been a year of great growth for the PANDAS/PANS community! Here's a summary of some of the exciting events that will make a lasting impact. Click on each title to learn more.


PANDAS Network: 2013 Efforts

We've been working non-stop in 2013! Below is a recap of PANDAS Network's efforts. Many of the accomplishments were made possible by your donations. Thank you for helping us fulfill our mission of improving the diagnosis and treatment of children with PANDAS and PANS.

Website Viewership continues to grow. We are proud to be the most visited website devoted to PANDAS and PANS. As of 12/9/2013, we've had 150,604 visits and OVER 1/3 MILLION page views! These visits were achieved through relevant web searches.  


New patient brochures were developed as an introduction to PANDAS and PANS. They are ideal for physician offices and newly diagnosed families. Official launch of these brochures will take place in January 2014. 


Informational postcards have been developed for use at future conferences to broaden outreach.  





Support group listings grew to represent half of the United States! Thank you to Kari Kling, our Support Group Coordinator, for working hard to have a support group listed in every state.  

Snapshots of the community were encouraged by our support of the Univ. of Buffalo / USF Online Retrospective Survey. We provided materials to physician offices informing them of the research survey and promote participation. Learn more about this survey at pandasnetwork.org/survey.  


Professional Networking Opportunities were provided by the PANDAS Network "dinner of appreciation" held in conjunction with the Stanford Specialist Meeting.     


Conference representation included an inspiring  presentation by our Executive Director along with an exhibit table at the NE PANS/PANDAS Conference and a printed awareness ad at the IOCDF Conference. 



New partnerships were with the NIMH National Partnership Program and the AARDA National Coalition of Autoimmune Patient Groups. These new partnerships are in addition to our existing affiliation with NORD.

Our Board of Directors
welcomed new members. Among them are Beth Latimer, MD and Advisor to the Board, Susan Swedo, MD.

Thank you for your support!

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Happy New Year!
In This Issue
2013 Community Accomplishments
PANDAS Network: 2013 Efforts
Earn Donations for PANDAS Network.org
Give a Gift Donation!
"Wishing Flower" Card Sent with
Gift Donation
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Click to Learn More!
Quick Links
PANS Survey
Support Groups
Provider List
Board of Directors
Diana Pohlman

Vickie Blavat

Dr. Beth Latimer
Amy Smith, NP, MS
Maggie Gold-Seelig, Esq.
Cathy Witkos
Hayley Kamin Flack

Advisor to the Board:

Dr. Susan Swedo


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