Are you living with brain or leptomeningeal metastasis from breast cancer? You are not alone.
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NEW Patient Blog

Hilary – Running Through The Storm

"I was training for my 7th marathon in 2023 when I found out my stage IV cancer had spread again, this time to my brain."


In this powerful blog post, Hillary shares how a routine MRI unexpectedly revealed over 30 brain metastases, despite having no symptoms. She reflects on how this news intersected with her active lifestyle, and the questions it raised about awareness, detection, and resilience.


Read her story and why it’s changing how she thinks about symptoms and self-advocacy.
Read Hilary's Story Here

RESOURCES

NEW Educational Webinar

Brain Metastases: Life After Diagnosis

Your cancer has spread to the brain. Now what? This 3 part meeting series from the American Brain Tumor Association focuses on life after a brain metastasis diagnosis and the whirlwind of changes and emotions that take place while already managing a primacy cancer. Gain insight into how you can increase your quality of life and manage the cognitive and emotional changes. Each video will address:

  • The Emotional Journey of Brain Metastases
  • Maximizing Brain Health for Metastatic Brain Tumor Patients: Keeping Your Brain Fit
  • Brain Metastases: Signs, Symptoms, and Management
Watch the 3 Part Series Here

NEW Research Articles


We are thrilled to announce that we have new research articles available for you to explore. Stay informed and up-to-date with the latest findings.

Intrathecal administration of PD-1 inhibitor combined with pemetrexed for leptomeningeal metastases from breast cancer: a case report


A recent case report offers hope for treating leptomeningeal metastasis (LM), a serious complication of metastatic breast cancer. The patient received a combination of intrathecal pemetrexed (a chemotherapy drug) and PD-1 inhibitors (a form of immunotherapy) in a structured treatment plan. The therapy was well tolerated and led to promising results, including resolution of neurological symptoms, clear spinal fluid, and reduced tumor visibility on imaging. This case suggests that combining intrathecal chemotherapy and immunotherapy may be a safe and effective option for LM, and could help guide future treatment strategies.
Read More Here

Patritumab deruxtecan in leptomeningeal metastatic disease of solid tumors: the phase 2 TUXEDO-3 trial


A new study from the TUXEDO-3 phase 2 trial offers promising news for patients with leptomeningeal metastatic disease (LMD), a serious complication of solid tumors like breast and lung cancer. The trial tested the antibody–drug conjugate patritumab deruxtecan (HER3-DXd) in 20 patients with LMD. After 3 months, 65% of patients were still alive, with overall survival rates of nearly 70% at 3 months and 59% at 6 months. Nearly half experienced clinical benefit, and neurological symptoms and quality of life were stable or improved. HER3-DXd was generally well tolerated, with no new neurological side effects. These results suggest HER3-DXd may be a promising treatment option for LMD.
Read More Here

PATIENT CORNER

Would you like to Share your Story?

We want to hear from YOU!



We have two different opportunities for you to share your story: blog and video. Your patient voice and story matters. Sharing your story can provide hope and inspiration to others diagnosed or undergoing treatment.

Patient Blog


Would you like to write about your story? For questions or to submit your blog, please email mbcbrainmets@gmail.com for guidance.


No patient should have to go through MBC brain metastasis alone. Read some of our patient stories which are vulnerable, honest, and poignant.
Read Patient Stories Here

Patient Video


If you are interested in creating a video, please email mbcbrainmets@gmail.com for guidance.


Take a look at the videos from patients living with brain metastasis who share their experiences of receiving a brain metastasis diagnosis, participating in a clinical trial, and undergoing treatments like a craniotomy, whole brain radiation, and others.
Watch Patient Stories Here

SUPPORT SERVICES

Support Group

Breast Cancer Brain Mets (BCBM) Support Group

This is a Zoom Support Group meeting twice a month from 3:00-4:30 ET. The group is for women of all ages who have been diagnosed with brain metastases or leptomeningeal disease from breast cancer. Please join us to find hope, support and information from others living with this disease. 


Registration is required for new participants.
Register Here
 

SHARE Cancer Support | 165 West 46th Street, Suite 712 | New York, NY 10036 US

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