February 2021 Newsletter

Welcome to our ME International newsletter.  We hope you find some valuable information in these newsletters.  If you want to contribute to our next newsletter or have comments and suggestions, please let us know. 

Jim Lutey, Editor   James.Lutey@ME-International.org  


Rest is good medicine. 

Annual Report for 2020 
Click HERE for our 2020 Annual Report.  It features the board of directors, website, mission statement, goals and objectives, committees, position paper, and finances.  
ME International Website

We now have Disability Information on our Patient Resources page.  If anyone has any disability information from other countries, we would love to include it on our page.  Contact Admin@ME-International.org.    
We also have the PENE (Post-Exertional Neuroimmune Exhaustion) information on our Patient Resources page.   

Pulse Oximeters        
ME International sent out 51 FREE Pulse Oximeters to our ME members that needed one.  Two went to Australia, 22 to Canada, 2 to Norway, 12 to the UK, and 13 to the US.  We have heard from many of our members that wanted one and they were very appreciative of the generosity of this program.  Clair H. was one of the first to receive hers and said: "I would just like to say a very big thank you for the Pulse Oximeter that I have received today.  It will assist me enormously with observing my heart rate and oxygen levels throughout the day and taking a break when needed.  I think this is a great donation for those suffering with ME."
We intend to continue the project providing we have donations to cover costs of the devices and mailing.  We are keeping a waiting list of members that want and need a Pulse Oximeter.  
If you have not already requested one, please reply to this email or Admin@ME-International.org. 
Read the blog by Colleen Steckel about our Pulse Oximeter Project by clicking HERE.

Donations can still be made to help us with this project so as many of our members as possible can better manage their activity and heart rate.  Please share with your family and friends. 
Every donation to this fundraiser is intended to purchase and distribute the Pulse Oximeters.  ME International board members, volunteers and staff receive no compensation for their services.  
You, your family, and your friends can donate HERE.
ME International is a 501(c)(3) nonprofit all-volunteer organization founded in November 2019.  EIN 84-3568066

Interview with Dr. Byron Hyde
Click HERE for the video. 
In this interview by Llewellyn King, Dr. Byron Hyde, founder of the Nightingale Research Foundation in Ottawa, Canada, emphasizes the brain and enteroviruses.  He also emphasizes his belief that Myalgic Encephalomyelitis and Chronic Fatigue Syndrome are separate issues. 

The textbook written for doctors recently released, "Understanding Myalgic Encephalomyelitis," helps to better understand the history of ME and the connection to polio and the recognition of how it is contagious.
From the book: "In epidemic situations, M.E. appears to be as contagious as Poliomyelitis in susceptible populations.  In M.E. and Polio the infective period may extend for the first few weeks of clinical illness."
Dr. Hyde clarifies the difference between ME and CFS.  From the textbook: "ME/CFS: this is a false title for Myalgic Encephalomyelitis/chronic fatigue syndrome which assumed that both conditions represented the same, identical disease.  This is incorrect."  This point is clarified in the book as well as in the "Missed Diagnoses" book mentioned in the video.  The book can be ordered by clicking HERE

Severe ME - More Notes for Carers Book 
by Greg Crowhurst 
"Greg's books are essential for anyone dealing with Very Severe ME.  There is no other source like it." Mary Dimmock
To buy in paperback, click HERE

US Petition Update
Click THIS link for Gabby Klein's update on the petition to recognize ME as defined by the ICC.
Click HERE to learn why this organization promotes the ICC diagnostic criteria for ME patients.  Anyone in the world can sign the petition because what happens in the US affects everyone around the world.  


ME International is always looking for members to participate on committees, join a virtual support group, be an ME supporter, or even a board member.  We recently formed a Marketing Committee, so if you have an interest and time to participate, we would love to have you as part of the committee.  Reply to Admin@ME-International.org.  
Share Our Pages    
Please visit our website and share our pages to your social media by using these share buttons on each website page.


ME/CFS Memorial Page

"This page acknowledges all those who have passed from ME/CFS or secondary conditions. They acknowledge their suffering and promise that they have not died in vain.  With love, we remember them."  Click HERE for the memorial page.


The purpose of ME (Myalgic Encephalomyelitis) International is to support ME organizations, educate the general public, medical providers, and governments throughout the world, and support ME patients, caregivers, advocates, family and friends.

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The information provided at this site is not intended to diagnose or treat any illness.