July 2020 Newsletter
 

Welcome to our ME International newsletter.  We hope you find some valuable information in these newsletters.  If you want to contribute to our next newsletter or have comments and suggestions, please let us know. 
 
Sincerely,

Jim Lutey, Editor   James.Lutey@ME-International.org  
 

  
 
PATIENT CARE
 
 
 
This month we are focusing on a cheat sheet from the North Carolina/Ohio ME & FM Support Group "Immune Abnormalities" - Issues Specific to Myalgic Encephalomyelitis (per the ICC).   
 
ME patients suffer from immune dysfunction which can lead to reactivated viruses and opportunistic infections which can be treated.  This cheat sheet was created to inform patients and medical professionals on the specific immune system abnormalities found in ME. 
 
Click HERE for the cheat sheet on Immune Abnormalities.

 
by Greg Crowhurst  
   
"It is a huge affirmation to have had my video on Forgiveness, shortlisted for the prestigious Alpine Fellowship Award Art Prize! Every morning I got up early to draw the pictures, write the music, work out the story. Many, many thanks to Linda, it was her encouragement that drove me on. The Video is based on my long experience of being a Carer. I would like to use this opportunity to announce that my fourth- and final book on Severe/ Very Severe Myalgic Encephalomyelitis : "More Notes For Carers" is currently being prepared for publication."
Greg Crowhurst 
 
Click HERE for the video Forgiveness: a Path of Light

 
 
Click HERE for a cheat sheet on Tips For Coping While Waiting for a Cure.  See links for other helpful information HERE. 

 
ADVOCACY
 

The European Petition to Recognize and Subsidize ME
as a Biomedical Disease


This article is in the June ME Global Chronical which is a quarterly newsletter that was started by a dedicated group of people to gather current articles and help get the word out worldwide about ME.  This resolution will provide additional funding for biomedical research on ME.  It remains to be seen if that research uses the ICC diagnostic criteria for ME.  
 
Click HERE to download the newsletter in PDF format.  The article is on page 114.  

 
SEVERE ME NEWS   
 
 
Severe ME Day - August 8 
 
Severe ME Understanding and Remembrance Day - A day to remember everyone who is suffering or who has ever suffered from Severe and Very Severe Myalgic Encephalomyelitis. 
 
 
 
 
 
Click
for information on this years' focus and severe ME campaigning materials. 
 
 
 
 

 
SCIENCE     
 
 
Update on the Classification of PVFS, ME and CFS for ICD-11
by Suzy Chapman  
 
HERE is a good explanation from Suzy Chapman, Dx Revision Watch, about the ICD coding of PVFS, ME and CFS as of November 2019. 

 
IN MEMORIAM    
 

ME/CFS Memorial Page

"This page acknowledges all those who have passed from ME/CFS or secondary conditions. They acknowledge their suffering and promise that they have not died in vain.  With love, we remember them."  Click HERE for the memorial page.

 

The purpose of ME (Myalgic Encephalomyelitis)  International is to support ME organizations, educate the general public, medical providers, and governments throughout the world , and support ME patients, caregivers, advocates, family and friends.
  

 
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Disclaimer:  
 
The information provided at this site is not intended to diagnose or treat any illness.