May 2020 Newsletter

Welcome to our ME International newsletter.  We hope you find some valuable information in these newsletters.  If you want to contribute to our next newsletter or have comments and suggestions, please let us know. 

Jim Lutey, Editor  

The International Consensus (IC) Primer
Newly Posted Page "Primer/Cheat Sheets"
As part of our mission to educate patients and medical professionals, we are gathering materials that can be used to help patients better understand the unique issues seen in ME and help guide medical professionals to applicable research and treatment information.

The page includes the ME IC Primer as well as cheat sheets from the North Carolina/Ohio ME & FM Support Group (public on Facebook).  Those support group materials are a collaborative effort based on scientific information and patient input (not to be considered medical advice).   
Click HERE for the IC Primer and cheat sheets.

Cardiologist Handout for ME  
ME is linked to insufficient heart function.  Check out this issue specific to ME. 
Click HERE for the link to this important article.

COVID-19: A Mirror Image of #ME?  
Guest blog by: Joan McParland
Founder & Voluntary Coordinator 
 Hope 4 ME & Fibro Northern Ireland on our website.

Click HERE for the blog on our website.


ME Organizations

ME can leave us feeling isolated.  You are not alone!  
There are many organizations that can provide information to help you connect.  Find on our website links to organizations from around the world, including archived organizations.  International organizations are listed by their country of origin.

Each organization focuses on various patient populations.  We have organized this list by the criteria used by each organization, as determined by their website.
See the ME organizations that have been posted so far HEREThis is a work in progress. 

A Life Hidden
"A Life Hidden is dedicated to those shut away from the world because of the intense suffering of severe ME (myalgic encephalomyelitis).  This site is a collection of my advocacy work, and I hope that it will serve as a resource for anyone wishing to understand more about the illness." Naomi Whittingham 
Read her article HERE.   

Circulatory Impairment in ME
Guest blog at by Maryann Spurgin, Ph.D.
Dr. Spurgin said "I have thought a lot about circulatory problems over many years, and how these impairments come together to create the intolerable symptomatology of ME that could lead someone to be so impaired as to not be able to swallow, and could lead the Institute of Medicine to declare that organ failure, even death, can occur from the slightest exertion and/or sensory overload."
Read her blog HERE.   


May 12 Awareness Day

This ye ar, 2020, marks the 28th anniversary of International May 12th Awareness Day.  The idea originated with Thomas Michael Hennessy, Jr., the founder of Repeal Existing Stereotypes about Chronic Immunological and Neurological Diseases.  RESCIND (no longer active).
Click  HERE to read more about May 12 Awareness Day.
The late pa tient and staunch advocate, Thomas (Tom) Hennessy Jr., realized the need to have a dedicated day to raise awareness for the diseases he championed for - myalgic encephalomyelitis (ME) and other complex immunological & neurological diseases (CIND) - such as fibromyalgia (FM), Gulf War illness (GWI), multiple chemical sensitivity (MCS), and chronic Lyme disease (CLD).  
Read more in THIS blog post "In Memory of Thomas M. Hennessy, Jr."   


ME/CFS Memorial Page

"This page acknowledges all those who have passed from ME/CFS or secondary conditions. They acknowledge their suffering and promise that they have not died in vain.  With love, we remember them."  Click HERE for the memorial page.


The purpose of ME (Myalgic Encephalomyelitis)  International is to support ME organizations, educate the general public, medical providers, and governments throughout the world , and support ME patients, caregivers, advocates, family and friends.

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The information provided at this site is not intended to diagnose or treat any illness.