November 2020 Newsletter

Welcome to our ME International newsletter.  We hope you find some valuable information in these newsletters.  If you want to contribute to our next newsletter or have comments and suggestions, please let us know. 

Jim Lutey, Editor  


ME International Website
We have some more additions to our website that you might want to check out.
  • A "Google Translate" button was added at the bottom of each page to translate to another language.
  • A "Patient Resources" page has been added including Pain and Sleep Problems.  Additional resources will soon be added.
  • A "Committees" page has been added showing Active Committees and Potential Committees.  If you would like to participate on a committee, please let us know.

Anesthesia and Advancements       
by Kathy Collett  
Kathy is a long-term ME patient in Western Australia and is a member of our Global Leadership Committee.  Her article was printed in The National Forum Winter Edition, 2019 - 2020.
To read Kathy's article click HERE.
For more information about Kathy see The Lost Years: a personal journey  

The Economic Impacts of ME/CFS  in an Australian Cohort      
Close, Marshall-Gradisnik, Byrnes, Smith, Nghiem and Stains (Australia) 
This is a new study from Australia.  Click HERE for the study.  Conclusion: The economic impacts of ME/CFS in Australia are significant.  Improved understanding of the illness pathology, diagnosis, and management, may reduce costs, improve patient prognosis and decrease the burden of ME/CFS in Australia.  From the report:  "In a recent ME/CFS advisory report, the ICC and the CCC were identified as the most appropriate case definitions and are recommended for future use."


2020 Mason Foundation Funding
ME Australia has this information on their website. 
"The Mason Foundation stipulate that the 2011 International Consensus Criteria for ME or the earlier iteration, the 2003 Canadian Consensus Criteria for ME/CFS or the 2017 Pediatric Primer are the criteria used for research."
#MEICC is the specified criteria to use in their research.  Good research into #MyalgicE requires patient selection that applies to #PwME.
Click HERE for The Mason Foundation article. 


ME/CFS Memorial Page

"This page acknowledges all those who have passed from ME/CFS or secondary conditions. They acknowledge their suffering and promise that they have not died in vain.  With love, we remember them."  Click HERE for the memorial page.


The purpose of ME (Myalgic Encephalomyelitis) International is to support ME organizations, educate the general public, medical providers, and governments throughout the world, and support ME patients, caregivers, advocates, family and friends.

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The information provided at this site is not intended to diagnose or treat any illness.