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Happy Spring, MOCHA Family!
I know we are all looking forward to spending more time outside as the weather warms up. As always, our support for the food allergy community continues as we try to bring you the “latest news, programs and products” in an “all inclusive… all the time” manner. Please let us know if you have any suggestions! Help us…Help you!
Stay Safe!
Denise, Anne, and the MOCHA Interns
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Sean Parker Center's Webinar Series (Stanford)
Learn More Here
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Wednesday, April 27, 2022- How does Oral Immunotherapy Work?
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Wednesday, May 25, 2022 - Food Allergy with Omalizumab (OUtMATCH)
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Wednesday, June 22, 2022 - Pathophysiology and Treatment of Anaphylaxis
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Wednesday, July 27, 2022 - Anxiety and Quality of Life in Food Allergy
Michigan Medicine, Mary H. Weiser Food Allergy Center, Conversations with a Food Allergy Counselor:
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Thursday, April 28, 2022 - Long Game: Building Confidence
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Register Here
Food Allergy Awareness Week 2022
- Join FARE in celebrating Food Allergy Awareness Week, Sunday, May 8 - Saturday, May 14th!
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See the full schedule of events here.
Food Allergy Fund Signature Research Dinner:
- Monday, May 9, 2022
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Register Here
FARE Virtual Courage at Congress:
- Monday, May 16 through Thursday, May 19, 2022
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Register Here
International Red Sneakers Day
- Friday, May 20, 2022
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Learn more Here
FARE Food Allergy Fundamentals Webinar:
- Continuing Tuesday, May 24, 2022
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Register Here
APFED "Chronic Nature of EGIDs":
- Thursday, May 26, 2022
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Register Here
Mary H. Weiser Food Allergy Center Symposium
- Wednesday, June 1 and Thursday, June 2, 2022, Ann Arbor, MI
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Register Here
2022 Digestive Health Foundation Gala:
- Saturday, June 4, 2022, Four Seasons Hotel, Chicago, IL
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Register Here
CFAAR FACES Conference
- Friday, June 10 and Saturday, June 11, 2022, Chicago, IL
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Register Here
2022 EOS Connection Patient Education Conference
- Thursday, July 7 through Saturday, July 9, 2022, San Diego, CA
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Register Here
The University of Chicago Comer Children’s Hospital: Third Annual School Nurse/School Staff Continuing Education Day
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Friday, August 5, 2022, Chicago, IL
- Registration Coming Soon!
FARE Food Allergy Summit:
- Friday, September 23 through Sunday, September 25, 2022, Orlando, FL
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Register Here
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Food Allergy Research and Education Names Permanent CEO
After an extensive search process spanning many months and involving numerous highly qualified candidates, FARE’s Search Committee has chosen a new CEO. Effective May 16, we will be welcoming Dr. Sung Poblete, PhD, RN, to the FARE family. Sung is currently the CEO of Stand Up To Cancer in Los Angeles and brings a wealth of experience to her new role here at FARE.
Read the press release here.
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Food Allergy Awareness Week 2022
Join FARE May 8-14 to celebrate Living Teal Food Allergy Awareness Week. The week-long event features themed activities and resources for each day of the week.
Kick-off Sunday: A celebration of moms on Mother's Day.
Menu Monday: Cooking demo with Chef David Rose.
Grati-Tuesday: Ask the Expert with advocate/FARE board member Kim Hartman.
Breakthrough Wednesday: Hear from the brightest minds in food allergy research.
Take Action Thursday: Learn about grassroots advocacy and how to get involved.
Friday Funday: Enjoy content from FARE's Teen Advisory Group, and join us in the evening for a chance to win prizes.
Wrap-Up Saturday: Miss anything from the week? Come back for a recap.
See the full schedule of events here.
In celebration of our 10th anniversary, FARE is challenging the food allergy community to show TEAL this Food Allergy Awareness Week (and before) in a new and exciting way.
The #TealTakeover Fundraising Challenge is a friendly two-week competition to expand awareness of the issues facing the food allergy community and raise much-needed funds to help end suffering from the disease. Learn more!
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Join the growing community of FARE Champions who are brought together by the dream of a day when we are free of the suffering caused by food allergies and are actively moving our world towards that reality with their monthly gifts.
For a limited time, every new FARE Champion will receive this special edition tote.* Supplies are limited, so join today!
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Food Allergy Support & Education (FASE) Program
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Food Allergy Support and Education (FASE) Program educates and supports our patients and families affected by food protein-induced immune disorders. We focus in particular on patients and families affected by IgE-mediated food allergy, but also food protein-induced enterocolitis syndrome (FPIES) and eosinophilic esophagitis (EoE). We aim to help patients and their families gain a more complete understanding of food allergy, and how they can live successfully despite it. Learn more!
Parent report of sleep health and attention regulation in a cross-sectional study of infants and preschool-aged children with atopic dermatitis:
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Most children are diagnosed with eczema in early childhood, yet the impact of eczema on sleep and inattention in this age group has been understudied. This papers highlights that children with eczema, particularly with more severe disease, are at risk for problems with attention, even at 1 year of age! Interventions in this age group might offer an opportunity to prevent ADHD. Read more here.
Burden and characteristics of skin pain among children with atopic dermatitis:
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Skin pain is a challenging symptom in eczema that is often ignored, and this is the first report describing that in children. Read more here.
Timing of itch among children with atopic dermatitis:
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Itch tends to occur in a rhythmic fashion, with most children and their parents reporting it is worst just before bed. Clinicians and parents can think about their children's "timing" in order to optimize treatment. Read more here.
Childhood Asthma in Urban Settings (CAUSE)
- This nationwide network will conduct observational studies and clinical trials to improve understanding of asthma and develop treatment and prevention approaches tailored to children of low-income families living in urban communities. Lurie Children's is one of 7 centers nationally contributing to the consortium and the NIH plans to fund this consortium with 70 million dollars of federal funding over 7 years. As part of this consortium, Lurie led by Dr. Kumar is spearheading a precision medicine study looking at ways in which we can prevent viral illnesses from progressing to asthma like inflammation in the airways and prevent wheezing, using an inexpensive, and safe nutritional supplement.
Precision interventions for severe asthma (PRECISE)
- This is a study funded by the NHLBI which looks to determine the effectiveness of a number of interventions in severe asthma by tailoring treatment choice to an individual’s likelihood of response, improve understanding of how to identify which medications work for which groups of individuals with asthma, and adaptively choose the next intervention for each participant. In this way, we look to determine effectiveness of multiple new interventions in severe asthma and which individuals are most likely to respond. We are actively recruiting for this study.
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Investigators at the University of Chicago are currently testing to see if taking a fiber supplement helps improve side effects and outcomes in peanut oral immunotherapy.
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Children ages 4-17 are eligible for participation. An oral food challenge to peanut is required to confirm peanut allergy diagnosis. During the study, children will be asked to take a fiber supplement or placebo before and during oral immunotherapy to peanut. All related expenses will be paid through a generous grant from the Duchossois Family Institute. If you are interested in learning more about this study, please call Chris Omahen at 773-702-8137 or comahen@bsd.uchicago.edu.
SEAL Study (Stopping Eczema and Allergy Study)
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The goal of the SEAL study is to see if a proactive investigational skin treatment in early infancy (Aveeno or EpiCeram) can reduce the occurrence and severity of eczema (red, itchy rash) and thereby prevent food allergy. Proactive in this case means that you will apply creams to your child’s body every day instead of waiting for skin problems to appear. For the study, subjects will be randomized (just like the toss of a coin) to one of these three groups: 1) Control arm, 2) Intervention arm with EpiCeram: 3) Intervention arm with Aveeno Moisturizer. If your child is eligible, participation may include clinic visits, sample collection, questionnaires as well as weekly check in calls. Compensation and valet parking will be provided. If you should have any interest or questions regarding this study, please feel free to contact our research coordinator at sealstudy@uchicago.edu.
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Naming Recommendations International Consensus recommendations for EGID nomenclature
Published in Clinical Gastroenterology and Hepatology (Feb 2022), this international process resulted in consensus for updated EGID nomenclature for both clinical and research use. EGID will be the umbrella term rather than "eosinophilic gastroenteritis", and specific naming conventions by location of GI tract involvement are recommended. As more data are developed, this framework can be updated to reflect best practices and the underlying science.
Read more here.
Congratulations
Congratulations to Drs. Marc Rothenberg (Allergy/Immunology), Vincent Mukkada (Gastroenterology), and Philip Putnam (Gastroenterology) for being recognized as Top Doctors 2022 by Cincinnati Magazine.
Read more here.
Noteworthy Publications
Molecular Analysis Suggests Eosinophilic Colitis is a Unique Disease
Research By Tetsuo Shoda, MD, PhD, Marc Rothenberg, MD, PhD
Read the full publication here.
Single-cell RNA sequencing of mast cells in eosinophilic esophagitis reveals heterogeneity, local proliferation, and activation that persists in remission
Read the full publication here.
Recent eosinophilic colitis study out of the Rothenberg CURED Lab has made the cover of the May issue of Gastroenterology.
Resources-
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MHWFAC research finds microneedle delivery successful in peanut test
A five-minute weekly dose of peanut protein through the skin, delivered by a novel microneedle technology, was superior in desensitizing peanut-allergic mice compared to administering the protein through a skin patch, a new study has found. Read more here.
MHWFAC receives international honor
The Mary H. Weiser Food Allergy Center (MHWFAC) has been selected as a Center of Excellence by the World Allergy Organization (WAO). Learn more here.
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Elijah's Law for Preschools Gains in More States. Will California be Next?
Read the Allergic Living Article Here!
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Peanut Oral Immunotherapy (OIT) Effective in Toddlers Ages 1 to 3 in Clinical Trial
Read the Kids with Food Allergies Article Here!
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Study Finds Getting Epi Early Prevents Uncontrolled Allergic Reactions
Read the Allergic Living Article Here!
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An Inclusive Cooking Club for Kids!
Who's it for? Any Kid Who…
- Is 4-14 years old
- Enjoys getting packages in the mail
- Likes food, cooking, science, math, or art
- Is an aspiring chef
- Is managing or knows someone managing a restricted or special diet
- Is looking to meet other kids with similar interests or challenges
- Likes learning from/interacting with other kids
- May be struggling with eating anxiety
Join the fun!
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APFED Launches New College Scholarship
APFED is excited to announce that they will award three $1,000 college scholarships this year through the APFED/EleCare College Scholarship Program. They are accepting applications from students through May 31, 2022.
Learn more and apply on apfed.org.
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Win a trip for 4 to Disney World!
Enter to win a trip to Disney World! In honor of Celiac + Food Allergy Awareness Month, Spokin is giving away a Disney World getaway for 4 including hotel, airfare, and park passes—all planned by a travel advisor specializing in food allergies—plus everything you need for a magical trip!
Enter to win!
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Lessons from Sports
Creating care solution for food allergy families.
Listen here!
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Befriending Allergy Anxiety
Want to learn strategies to help you change your mindset about your allergy (and general) anxiety rather than fight it off like an enemy? Watch licensed therapist, Tamara Hubbard's, talk with the CoFAS group.
Watch it here!
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Sean N. Parker Center for Allergy & Asthma Research's Ask the Expert Series
Tune into the next session of the "Ask the Expert Series" on Wednesday, April 27th with Dr. Andrew Long. In this webinar, he will be discussing Oral Immunotherapy.
Sign up here!
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FARE'S Five-Part Food Allergy Fundamentals Webinar Series
Don't miss the new series presented by Dr. John James, which continues on Tuesday, May 24th. Gain insights into the diagnostic approaches and processes involved in confirming food allergies, with an exploration of the benefits and limitations of allergy testing. This webinar will also discuss testing for some food-allergy-related conditions as well as unproved diagnostic tests for food allergy.
Register here!
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Conversations with a Food Allergy Counselor
Don’t miss the Mary H. Weiser Food Allergy Center at the University of Michigan's webinar focused on skill strengthening for those with food allergies. The Conversations with a Food Allergy Counselor series shares a broader perspective of holistic support and allergy-related anxiety management. This installment of the monthly webinar series is entitled "The Long Game: Building Confidence" and will be led by clinical social worker, Kim Menzel. The webinar will air on Thursday, April 28th, via Zoom.
Register here!
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Understanding and Addressing the Public Health Burden of Food Allergy
This presentation by Dr. Christopher Warren will provide an overview of the current US population-level distribution and determinants of food allergy, including its physical and psychological health impacts. The presentation will also briefly describe ongoing efforts to better understand and prevent food allergy that are currently underway at the IPHAM Center for Food Allergy and Asthma Research--including population-based survey research, observational cohort and interventional studies. The presentation aired on Thursday, January 13th, 2021.
Watch it here!
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Episode 010: Co-morbidity of Eosinophilic Esophagitis (EoE) and Food Allergy
Many patients diagnosed with eosinophilic esophagitis (EoE) are initially diagnosed with food allergies. What is the relationship between food allergies and EoE, and what is the research available on this topic? In this episode, host Ryan Piansky, guest host Mary Jo Strobel, and Dr. Ruchi Gupta discuss the co-morbidity of EoE and food allergies.
Listen here!
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Music Therapy for Chronic Disease
There are benefits to both playing and listening to music. Watch this webinar to learn about the role of music therapy in rare and chronic conditions, such as eosinophilic disorders. Kerry Devlin, MMT, MT-BC, a senior music therapist at the Johns Hopkins Center for Music & Medicine, will share information about what music therapy entails, how it can help with chronic illness, and how to find programs.
Watch it here!
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Center for Food Allergy & Asthma Research
GAPS Study: Dr. Lisa Lombard is conducting interviews looking at need/use of psychological services among individuals with food allergies. To be eligible to participate, individuals must either be adults aged 18 years or older, with a clinically diagnosed food allergy, or parents of children aged 0-17 years, with a clinically diagnosed food allergy. Although this is not a clinical intervention, some people may find it interesting to speak with Dr. Lombard (a licensed clinical psychologist) as they clarify their ideas and track their experiences. Sign up here.
Survey: Impacts of COVID-19 on People With Asthma and Allergies
It has been over two years since the World Health Organization classified COVID-19 as a global pandemic. The Asthma and Allergy Foundation of America (AAFA) is looking to hear the experiences, perceptions, and needs of people with asthma and allergies as they relate to the pandemic. You can help by participating in this research survey.
The insights you provide will help us understand the changing needs of the asthma and allergy community during this time. The survey should take less than 20 minutes to complete. Take the survey.
Research Opportunity for HES Patients and Caregivers
Help researchers learn about hypereosinophilic syndromes (HES) by completing a survey! HES patients and caregivers are invited to participate. Questions address the path to diagnosis and treatment, burdens of disease management, and unmet needs. The survey is being conducted by GlaxoSmithKline. It should take approximately 30 minutes to complete. Participation is voluntary and submissions will be anonymous. Complete the survey interest form.
University of Chicago
The University of Chicago Allergy/Immunology Research Registry is a database that is made up of people who have volunteered to consider participation in research studies for themselves or their children. Its goal is to quickly and efficiently bring together medical research and those who may benefit from medical research. Although this Registry is sponsored by the University of Chicago, neither you nor your child need be a patient at the University of Chicago to sign up for the Registry. If you are interested in joining the Registry, please visit the University of Chicago Allergy website and click “UChicago Allergy and Asthma Research Registry.”
Dry Skin/Eczema and Food Allergy Research Studies
Focus Group by Schlesinger is working with the NIH, Stanford University, National Jewish Health, and The University of Chicago to recruit pregnant women and parents of newborns for research studies regarding dry skin/eczema and food allergies in San Francisco, Denver, and Chicago. Qualified participants will be rewarded for their time.
Study links below:
Not pregnant or the parent of a newborn? There are other opportunities for you to earn money, too. Sign up at www.FocusGroup.com. Anyone 18 years or older can sign-up; they do studies across all demographics! The sign-up process is simple, free, and only takes a few minutes.
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Launched in July 2018, FARE’s online tool simplifies your search for clinical trials to treat food allergy and some related conditions.
A service of the National Institutes of Health (NIH), this website is a registry and database of publicly and privately supported clinical studies.
CenterWatch is a well-established source of clinical trials information for patients and medical professionals.
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FOOD ALLERGY FRIENDLY COMPANIES | |
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88 Acres Chocolate
Chocolate is one of the most complex ingredients for us to source because many facilities use dairy, soy, nuts and other allergens in their manufacturing. We chose our organic, Fair Trade chocolate from a female-led co-op in Peru because it meets our allergen safety requirements and is environmentally and economically sustainable.
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OWYN Protein Powder
This new delicious plant based 20g vegan protein powder provides superior health benefits through a synergy of 3 different protein sources, probiotics, and a greens blend for maximum protein absorption and easy digestion.
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Safe+Fair Popcorn
Whole grain gluten-free kettled popped popcorn, seasoned in salty dairy-free "buttery" flavor that will make you think you're indulging in that movie theater popcorn! No greasy fingers, vegan, and top 9 allergen-free, this healthier primetime snack is 100% couch-potato approved!
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Safer Plate
Safer Plate is a simple and delicious mealtime solution for people with food allergies and intolerances, offering delivery of both meal kits and heat-and-eat meals free of the top allergens – peanuts, tree nuts, milk, eggs, soy, wheat, seafood, shellfish, sesame and gluten. The company was brought to life by allergy-mom Angie Nelson, Chef Gil Junge (former chef at Mayo Clinic) and their incredible team based in Minnesota.The meal kit delivery service offers more than 50 options (and growing!) and we offer 8 heat-and-eat meals.
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Hungry Harry's
Hungry Harry's is on a mission to produce foods free from the 14 food groups that account for over 90% of food allergies - while crafting them to taste better than anything else out there. Our manufacturing facility is 100% free of the Top 14 too.
Bake the mother in your life allergy friendly pancakes this Mother's Day!
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Allergic Living
Link here!
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Allergy Amulet
Link here!
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Camp Blue Spruce
Link here!
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Cincinnati Children's Hospital
Link here!
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Food Equality Initiative
Link here!
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MOCHA Intern’s share their favorite allergy friendly recipes! | | |
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Gluten Free Lemon Bar Recipe
(Recipe by Gluten Free on a Shoestring)
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1 ⅔ cups (233 g) basic gum-free gluten free flour blend
- ½ cup (58 g) confectioners’ sugar plus more for dusting
- ½ teaspoon kosher salt
- Zest of 1 large lemon
- 9 tablespoons (126 g) unsalted butter melted and cooled
- 4 (200 g (weighed out of shell)) eggs at room temperature
- 1 cup (200 g) granulated sugar
- ¾ teaspoon baking powder
- ⅔ cup (5.33 fluid ounces) freshly squeezed lemon juice juice of 4 to 5 lemons
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Pasta Primavera
Pasta Primavera is a super quick and easy dish to make. Use safe pasta, veggies, and cheese and enjoy!
- Penne pasta
- Salt
- Olive oil
- Fresh veggies including red onion, carrot, broccoli, bell pepper, yellow squash, zucchini, tomatoes and garlic
- 2 tsp Italian seasoning
- 2 Tbsp fresh lemon juice
- 2 Tbsp chopped fresh parsley
- 1/2 cup shredded parmigiano, divided
- Boil pasta according to the box instructions.
- While the pasta is boiling, cook the veggies so they will finish at the same time as the pasta.
- Heat olive oil in a skillet over medium-high heat. Add red onion and carrot and sauté 2 minutes.
- Add broccoli and bell pepper then sauté 2 minutes. Add squash and zucchini then sauté 3 minutes or until veggies have nearly softened.
- Add garlic tomatoes, and Italian seasoning and sauté 2 minutes longer.
- Pour veggies into a large bowl, add drained pasta, drizzle in lemon juice, season with a little more salt as needed and toss while adding in pasta water to loosen as desired.
- Toss in 1/4 cup parmigiano and parsley then serve with remaining parmesan on top.
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S'more's Bars!
These s'more bars are always a favorite among my friends and family and they can be made nut, dairy, and gluten free. Be careful though, they're addicting!
- 1/2 cup (1 stick) nondairy butter
- 3/4 cup sugar
- 1 egg
- 1 tsp vanilla
- 1 1/3 cup flour (I use Bobs Red Mill gf blend!)
- 1/3 cup regular or gf graham crackers crushed (I use kinnikinnick brand)
- 1 tsp baking powder
- 2 cups chocolate chips (I use enjoy life semisweet)
- 2 1/2 cups mini marshmallows
- Grease an 8x8 baking pan and preheat oven to 350
- Make the cookie dough beating the butter, sugar, egg and vanilla together until combined
- Add flour, graham cracker crumbs and baking powder
- Add half of your dough to the pan and bake for 15 minutes
- Remove from oven and add the chocolate chips and then the marshmallows
- Add the remaining dough on top
- Bake for another 22-25 minutes until golden on top
- Cool and enjoy!
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Corn Tortilla Tacos
I love these corn tortilla tacos. They taste so good and are super easy to make! I started making these when I was pretty young. They help kids and young adults become self-sufficient with their food! A lot of the ingredients are optional, so you can change this dish to be allergy friendly for you! You can also add more ingredients if you want!
- Corn tortillas
- Tomato
- Limes
- Carnitas (pork)
- Onions
- Black beans
- Salt
- Pepper
- Get three corn tortillas
- Lay carnitas flat in each taco (cover about half of the area in each taco)
- Cut tomatoes and onions into small pieces
- Put tomato and onion pieces into the taco
- Put about two spoonfuls of black beans into each taco
- Squeeze lime juice into each taco
- Heat tacos up in microwave for 45 seconds or more
- Put salt and pepper onto tacos
- Enjoy your tacos!
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Dairy Free Chocolate Chip Cookies
(Recipe by Eating With Food Allergies)
- ½ cup coconut oil* see notes
- ¼ cup grapeseed or canola oil
- ½ cup granulated sugar
- 1 cup brown sugar firmly packed
- 1 teaspoon vanilla extract
- 1 tablespoon flaxseed meal
- 3 tablespoons warm water
- ¾ cup unsweetened applesauce
- 3 cups gluten free all-purpose flour mix
- ½ teaspoon baking soda
- ¼ teaspoon salt
- 1-½ cups dairy free chocolate chips
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Cocoa Dusted Tteok
Tteok is a Korean dessert that is very similar to the more-recognizable mochi. This recipe is great because it's easily modifiable, and it's free of several allergens, including peanuts, tree nuts, dairy, soy, eggs, and more. Find the original recipe here.
- 1 cup glutinous rice flour (can be bought at most grocery stores or online)
- 1/4 cup white sugar
- 1 heavy teaspoon salt
- 1/2 cup hot (not boiling) milk or water
- Cocoa powder
- Mix-ins, such as lemon juice, vanilla extract, etc.
- Mix together the glutinous rice flour, sugar, and salt.
- Slowly mix in the milk (or water), adding in any mix-ins, like vanilla extract, as well
- Once thoroughly combined, microwave the mixture for 60 to 90 seconds
- Take the mixture out and mix it, and keep microwaving in 15 second intervals until the center is sticky and a dough consistency, not liquid.
- Mix the tteok until it is cool enough to handle
- Form into small balls or squares
- Dust in cocoa powder or starch and enjoy!
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My name is Katelyn Chu, and I'm a new intern. Currently, I'm a high school junior from Fairfax, Virginia, and am allergic to peanuts, tree nuts, soy, beans, and peas. As such, this adaptable tteok recipe has become one of my go-to recipes-- I can easily change it to cater towards different allergies and dietary restrictions, or to my favorite flavor that day.
Additionally, I serve on the FARE Teen Advisory Group, and I'm passionate about connecting those in the food allergy community who have shared experiences, and have loved my time at MOCHA so far!
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Non-Allergic Food For Thought | |
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The world is not free of Milk, Egg, Tree Nut, Shellfish,
Peanut, Fish, Soy, Wheat, Seeds.
It is our job as parents to give our children the
Education,
Encouragement,
Experience and
Enthusiasm
To get out there and live their lives to the fullest - safely.
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MOCHA is a group of parents sharing information and supporting each other. MOCHA offers support, education, and friendship, to help make managing your child’s food allergies just a little bit easier. Check out our website for the most current news and resources. Click the sign up link above to be added to our email distribution! | |
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Suggestions?
Do you have amazing content we should add to our e-news or website? Please let us know! Connect with us on facebook @MOCHAallergies
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Learn more about food allergy prevalence here! | |
Disclaimer: M.O.C.H.A. is not a professional or medical organization. It is a group of parents sharing information and supporting each other. The discussions, meeting minutes, handouts, speakers, agendas, and other products of our support group do not constitute medical and/or legal advice and should not be relied upon as such. Always discuss individual health questions and medical issues with a qualified personal physician. | | | | |
