MPNRF | Under the Microscope
June 2018
Interferon Changes Life of Cancer Patient Karrie Schwartz
Watch the video below and learn about how Interferon changed the life of cancer patient Karri e Schwartz. Interferon is an off-label drug that is currently the only treatment to provide disease-altering effects for some MPN patients, while other patients either receive little or no benefit or experience toxicities. In an attempt to understand why it work s and why it works for some patients and not others , MPN Research Foundation launched a multi-center partnership last year called the Interferon Initiative . The goal of the Initiative is to explore the use of Interferon in MPN patients so that its positive effects can potentially be replicated in a larger patient population. The Research also helps us understand more about the underlying biology of MPNs, since, unlike the JAK inhibiting drugs, Interferon actually suppresses the JAK2 mutation.
St ories like Karrie’s inspire us at MPNRF to do all we can to fight for patients
and ensure that there are better treatment options as soon as possible and, eventually, cures .

If you would like to make a difference in MPN research, please consider making a donation to the MPN Research Foundation!
Opportunities to Participate in Research
Enrolling : Myelofibrosis patients with intermediate or high risk by Dynamic International Prognostic Scoring System (DIPSS) in chronic or accelerated phase

Drug : Ruxolitinib Phosphate
Company : City of Hope Medical Center

Study name : Ruxolitinib Phosphate and Chemotherapy Given Before and After Reduced Intensity Donor Stem Cell Transplant in Treating Patients With Myelofibrosis

To learn more click he re .

Researchers are seeking patients with Myeloproliferative Neoplasms (MPN) to answer questions about personal habits and thoughts in an online survey. The purpose of our survey is to learn more about how lifestyle affects patients with MPN. We want to hear from ALL MPN patients. With this in mind, we hope
you will respond to the questionnaire
below. The survey should take around
15 minutes to complete. 

To complete the survey click here .
Upcoming Events

Attention MPN Patients on the West Coast! The 4th Annual SF MPN Conference for Patients w ill be held on Saturday, October 6th, 2018 from 9:00 am to 5:00 pm at UCSF Mission Bay in San Francisco. This is a uniquely interactive conference with an opportunity to hear the latest news in MPN research, engage with five experts in the MPN clinical and scientific community and connect with other people living with PV, ET & MF.

For more details and to reserve your spot, register at the link below!
Click the links below for more news in MPNs!
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