MPNRF | Under the Microscope
July 2018
Your support is helping us reach milestones!

The mission of the MPN Research Foundation is to fund research in the MPN field and to serve as a reliable resource for patients, caregivers, and the general public to better understand these cancers. These efforts take an immense amount of resources, and we fund many of our initiatives by collecting donations from individuals. Since we opened our doors 18 years ago, we have been gradually increasing the amount we invest in our mission because our community has gradually increased how much they contribute to our efforts. This year, we have the ambitious goal of raising $1 million just from individual donors by November 30, 2018 which marks the end of our fiscal year.

This goal may seem big, but we’ve gotten close before. Last year, we raised an impressive $771,000 from individual donors alone!
Still not convinced we can do it? Here’s proof.
This year, we have already raised over $700,000 from individual donors! That’s right. We are already close to crossing our high-water mark from last year, and we still have 4 months left to hit our goal.

So many of you make a gift every year, and perhaps have already done so this year. We thank you for your continued support and are proud that your commitment to our mission has helped us grow over the years.

We have a few big months of fundraising ahead of us, starting with Blood Cancer Awareness Month in September and then a big push around the holidays to motivate end-of-year giving.

We hope you plan a gift to the MPN Research Foundation in
the next couple of months to help us reach our goal!

There are many ways you can contribute.

CASH & CHECK GIFTS can be mailed to the MPNRF at 180 N. Michigan Ave, Suite 1870, Chicago, IL 60601. You can also make a gift online using a debit/credit card or eCheck.

STOCK GIFTS are a great option if you have owned stock for more than a year that has appreciated in value since you purchased it. You get the most tax benefits by transferring the stock to the Foundation. We sell the stock, and you get a tax deduction for the full fair market value. If you sold that same stock and donated the proceeds, the Foundation would get 20% LESS than if you’d donated it outright because you’ll have to pay capital gains tax on the sale. Talk to your financial adviser before making any decisions about your investments.
ESTATE PLANNING: Create a Lasting Legacy
Are you planning for the future? So are we. A path to a cure will be found, and when that day comes the MPN Research Foundation will need financial resources to fund the next big scientific breakthrough. Including the MPN Research Foundation in your will represents a deep commitment to MPN patients around the world, and means our organization can keep advancing our mission until we find a cure. We all have to create a plan for what happens to our resources after we are gone, and using your will to plan a gift to the MPN Research Foundation is a meaningful way to create a lasting legacy. Click here to learn more about including the MPN Research Foundation in your estate plans.

If you have any questions about donating stock, making your estate plans, or anything
else discussed please contact Ellen Bouleanu, Associate Director of Major
Gifts, at ebouleanu@mpnrf.org or 312.683.7249.
Clinical Trial

Drug : PU-H71
Company : Samus Therapeutics

Enrolling : MPN patients who are on ruxolitinib for at least three months and on a stable dose for at least 1 month prior to enrollment

Study name : The First-in-human Phase I Trial of PU-H71 in Patients With Advanced Malignancies

 To learn more click here.

Drug : IMG-7289
Company : Imago BioSciences, Inc.

Enrolling : Diagnosis of Myelofibrosis (MF), post PV-MF, or post ET-MF with high or intermediate-2 risk disease.
 (Recruiting at multiple sites)

Study name : A Multi-Center,
Open Label Study to Assess Safety of Pharmacokinetics and Pharmacodynamics of IMG-7289 in Patients With Myelofibrosis

 To learn more click here.
Upcoming Events
MPN Advocacy and Education International will be hosting back to back educational
events on Friday, September 28 and Saturday, September 29 in Chicago, IL.
4th Annua l Women & MPN Conference

Join MPN Advocacy and Education International in Chicago on Friday, September 28, 2018 for their 4th Annual Women & MPN Conference. The speakers at this year’s event include doctors Laura Michaelis, Jamile Shammo, Brady Stein, Gabriela Hobbs, Robyn Scherber, Ellen Ritchie and Allison Moliterno. The goal of the conference is to address the unique challenges that women living with an MPN face and to facilitate an open dialogue between MPN patients, caregivers, and experts. Register for the event by clicking the button below!
MPN Pediatric & Young Adult Educational Program

MPN Advocacy & Education International will be hosting their first MPN Pediatric & Young Adult Educational Program in Chicago, Illinois. This half-day program will be being held at the Park Hyatt Chicago on Saturday, September 29 from 8:30am - 1:00pm. The event will include talks from MPN specialists, Dr. Nicole Kucine, Dr. Raajit Rampal and Dr. Linda Resar. The event also provides an opportunity to here from two young women who, along with their mothers, were diagnosed as teens with essential thrombocythemia. Register for the event by clicking the button below!
180 N. Michigan Ave, Suite 1870 | Chicago, IL 60601 | 312-683-7247