NEWSLETTER | Fall 2019
In this issue:

News
  • New MSSU logo*
  • Patient Advisor Profile: Carla Heggie
  • Recap of Patients' Den 2019*
  • CONNECT Conference presentations*
  • Update on the CIHR Strategic Plan*
  • Dr. Ted McDonald presents the NB-IRDT story

Engagement Opportunities
  • 811 Nova Scotia Survey*
  • Myeloma Priority Setting Partnership Survey*
  • CHILD-BRIGHT Network Youth Advisor Opportunities
  • Call for SKIP Patient Partners

Upcoming Events and Training
  • NS IHRIS Stakeholder Forums and MSSU NS Bridge Event
  • Value & Impact: Making Your Research Count
  • KT Canada National Seminar Series
  • Data Access Privacy Training Sessions
  • Pump-up your Searching Skills with Peer Power
  • TUTOR-PHC Training Program

Publications and Resources
  • Recent peer-reviewed publications
  • NIHR Knowledge Mobilisation Research
  • KT Pathways

Funding and Job Opportunities
  • NBHRF-CIHR-SPOR-MSSU Studentship/Fellowship*
  • CIHR SPOR Funding Opportunities*
  • CIHR Tier 2 Canada Research Chair (CRC) in Healthy Aging (UNB, Fredericton)

SPOR Community Updates
  • POR Pathways Project
  • Patient-Oriented Research Level of Engagement Tool (PORLET)

MSSU Updates
  • Meet our new Patient Engagement Coordinator
  • Three new staff members in PEI
  • Change of address for the MSSU Moncton office*

* Le contenu est disponible en francais aussi.
New MSSU logo
The MSSU has a new look designed to reflect the human component of health research. Behind health data are people—their bodies, their experiences, themselves. A huge thank you to designer John Thomson who brought this concept to life in our new logo!


Meet Carla Heggie, Patient Advisor
Photo of Carla Heggie
Get to know our Patient Advisors! In our second interview in this series, we sat down with Carla Heggie to learn more about the need to truly involve patients in research and to hear the story that inspired the new MSSU logo.

Patients' Den 2019
Patient Panelist deliberate at Patients' Den 2019
On October 3, 2019, a diverse group of students, clinicians, researchers, and other stakeholders participated in the Patients’ Den 2019, pitching projects to five Patient Panelists for the chance to win up to $5,000 in funding to support their research. The event was co-hosted by the NB PIHCI Network and the MSSU at the Université de Moncton, and facilitated by the Federal Minister of Health, and Member of Parliament for Moncton-Riverview-Dieppe, the Hon. Ginette Petitpas Taylor.  Congratulations to all the competitors on their excellent presentations, and to all those who were successfully funded.


Photo from Patients' Den
Federal Minister of Health and Member of Parliament for Moncton-Riverview-Dieppe, the Hon. Ginette Petitpas Taylor, with Dr. Shelley Doucet, Research Lead of the NB PIHCI Network, at Patients' Den 2019. Photo credit: Victor Szymanski.
Photo from Patients' Den 2019
Federal Minister of Health and Member of Parliament for Moncton-Riverview-Dieppe, the Hon. Ginette Petitpas Taylor, presents Margaret Holland with one of two Student Awards. Photo credit: Victor Szymanski.
Photo from Patients' Den 2019
Federal Minister of Health and Member of Parliament for Moncton-Riverview-Dieppe, the Hon. Ginette Petitpas Taylor, presents Claire Johnson and members of her research team with their award. Photo credit: Victor Szymanski.
Finishing Strong: CONNECT Conference Presentations in 2019
As the CONNECT project nears completion, team members participated in five major conferences and events. The posters and sessions provided important opportunities to share their experience and findings with health and social service providers, policy-makers and the Autistic community.

Louise Tardif at INSAR 2019
Louise Tardif, CONNECT Patient Advisor, presenting a poster about the CONNECT needs assessment survey data at the Annual Meeting of the International Society for Autism Research (INSAR) in Montréal, Québec, May 2019.
Aaron Bouma at INSAR 2019
Aaron Bouma, CONNECT Patient Advisor, presenting a poster about patient engagement at the Annual Meeting of the International Society for Autism Research (INSAR) in Montréal, Québec, May 2019.
Update on the CIHR Strategic Plan
Dr. Ted McDonald shares the NB-IRDT story
Marina Hamilton introducing Dr Ted McDonald
On October 30, 2019, Dr. Ted McDonald, Director of the New Brunswick Institute of Research, Data, and Training (NB-IRDT), shared the NB-IRDT story with colleagues in Nova Scotia through presentations to MSSU staff and Associate Scientists, the Nova Scotia Integrated Health Research and Innovation Strategy (NS IHRIS) Steering Committee, and the Dalhousie University Department of Community Health and Epidemiology. 

The presentations varied slightly, but they all provided an overview of the process to develop a legislative framework to support administrative data storage and use in New Brunswick. 

Engagement Opportunities
Share your experience with 811 Nova Scotia
Photo of woman looking at phone
Dialling 8-1-1 in Nova Scotia connects callers with medical advice from Registered Nurses—24 hours a day, all year round.

Are you 16 years of age or older and living in Nova Scotia?

Take a short survey to help us understand why you do or do not use 811 services.

This study is approved by the NSHA Research Ethics Board (Romeo File #102874).


Help set priorities for myeloma research
Smiling man and child
Myeloma is a cancer that occurs when myeloma cells multiply in bone marrow.

The Myeloma Priority Setting Partnership is gathering feedback on the research priorities of people living with myeloma, caregivers, and healthcare professionals.

This study has been approved by the Horizon Health Network Research Ethics Board (RS# 2019-2788).


CHILD-BRIGHT Network Youth Advisor Opportunities
CHILD-BRIGHT Network Logo
The CHILD-BRIGHT Network is looking for two youth to join their National Youth Advisory Committee.

The positions are open to youth between the ages of 16 and 29 years with lived experience of brain-based developmental disability and an interest in patient-oriented research.

Ideally, the youth advisors will be located in British Columbia, Nova Scotia, New Brunswick, Prince Edward Island or Newfoundland.

SKIP graphic - Call for patient partners
Call for SKIP Patient Partners

for patient partners who have lived experience with kids in pain!

SKIP believes in meaningful inclusion and engagement of patient partners. SKIP is enrolling patient partners to match to our various network activities and opportunities. Compensation will be provided and disability requirements will be accommodated.

Upcoming Events and Training
Photos from the MSSU NS Bridge Event
NS IHRIS Stakeholder Forums and MSSU Bridge Event
We're looking forward to these unique opportunities to help shape health-related research in Nova Scotia.

MSSU NS Bridge Event - 8:00 am - 12:00 pm
NS IHRIS Stakeholder Forum (Eastern Zone) - 12:45 pm - 4:00 pm
Thursday, November 14, 2019
Multi-Purpose Room, Cape Breton University


Value & Impact: Making Your Research Count
Wednesday, November 13, 2019, 12:00 pm - 1:00 pm

As fun as research is, you don’t just do it for a good time. Your research can serve as a key piece in a larger puzzle that improves lives, but it needs to be found, it needs to be read, it needs to be used. In other words, to realize its full value, it needs to have impact. Demonstrating that impact will help secure support for continued research. So how can you a) help ensure your work has impact and, b) document that impact? This session will address choosing appropriate publication venues for your work, open access options, and traditional and alternative metrics for demonstrating impact through discussion of real-life cases.

This session is part of Information in Action: Getting Buy-in for Your Knowledge Project brought to you by the Nova Scotia Health Authority (NSHA) Library Services, the MSSU, and Dalhousie Libraries.

Creation of a data analyst team (MyCHILD ALBERTA) to facilitate the evaluation of KT and Quality
Photo of Dr. David Johnson
Thursday, November 14, 2019, 1:00 pm - 2:00 pm

Learning objectives
At the end of this presentation the audience will be able to:
  • Understand that extraction of data from electronic medical records is complex and not straight forward
  • Learn about ‘late binding’ approach to creating data repositories
  • Learn about potential for patient-level costing data to improve value-for-money

Speaker: Dr. David Johnson is Senior Medical Director for the Alberta Health Services Maternal, Neonatal, Child and Youth Strategic Clinical Network; a pediatric emergency physician and medical toxicologist; and a Professor of Pediatrics, Emergency Medicine, and Physiology and Pharmacology in the Cummings School of Medicine, University of Calgary.

Are you going to be in Halifax? Join us in Room 214 at the Centre for Clinical Research, 5790 University Avenue where we'll be tuning in.

If you'd like to join online, email Meghan Storey ( Meghan.Storey@unityhealth.to) to register.


Watch Past KT Canada Seminars Online
Data Access Privacy Training

The MSSU provides regular data access privacy training for our staff and collaborators who are working with or intend to access administrative data through Health Data Nova Scotia (HDNS) and the New Brunswick Institute of Research, Data and Training (NB-IRDT). These sessions are typically held on the last Wednesday of the month, with the exception of December.

Upcoming sessions
 
For HDNS data users
  • November 27, 2019, 9:00 am - 10:00 am 
  • December 18, 2019, 9:00 am - 10:00 am 
 
 
For NB-IRDT data users
  • November 27, 2019, 10:30 am - 11:30 am
  • December 18, 10:30 am - 11:30 am
 
Pump-up Your Searching Skills with Peer Power

Searching Clinical Questions & Using the Peer Review of Electronic Search Strategies (PRESS) Guideline Statement 

Friday, November 29, 2019, 9:00 am - 3:00 pm

Join the Maritimes Health Libraries Association/Association des bibliothèques de la santé des Maritimes (MHLA/ABSM) for an all-day, interactive session delivered online by Dr. Jessie McGowan, MLIS, PhD, AHIP. The morning portion of this session will cover the process of asking a clear clinical question and translating that question into a logical search in biomedical databases. PubMed will be used as an example. In the afternoon, the focus will be on understanding the PRESS Guideline Statement and using it with colleagues to review the integrity of search strategies.

TUTOR-PHC: Transdisciplinary Understanding and Training on Research - Primary Health Care

Unique one-year certificate training program offered online by Western University 

TUTOR-PHC is a one-year, pan-Canadian, interdisciplinary research capacity building program that has been training primary and integrated health care researchers and decision-makers from family medicine, nursing, psychology, epidemiology, social work, occupational therapy, education, policy and many other disciplines since 2003.

The innovative curriculum of this one-year certificate program in primary health care research skills and interdisciplinary theory & processes includes:

  • An on-site Symposium in the Spring of 2020
  • Two 3-week online research skill development workshops
  • Two 7-8-week online interdisciplinary discussion groups
  • Fall: present your own research project and receive interdisciplinary feedback
  • Winter: work with an interdisciplinary team to create a research proposal

Application deadline: December 2, 2019

Funding and Job Opportunities
Image of books
NBHRF & CIHR-SPOR-MSSU Studentship/Fellowship
The NBHRF & CIHR-SPOR-MSSU Studentship/Fellowship offers funding opportunities to New Brunswick-based graduate students pursuing a Masters or PhD degree and Postdoctoral Fellows holding an MD or PhD.

Funding for 2020 competition
Post-Doctoral Fellowship (M.D. and/or PhD) for 2 years at $50,000/year     
PhD Studentships for 3 years at $24,500/year   
MSc Studentships for 2 years at $17,500/year

Application deadline : January 6, 2020


CIHR Funding for Patient-Oriented Research
Fellowship: POR Awards - Transition to Leadership Stream - Phase 1
The aim of the Patient-Oriented Research Awards - Transition to Leadership Stream is to support the timely career launch of the next generation of patient-oriented researchers.

Application deadline : November 14, 2019



Training Grant: SPOR National Training Entity
The aim of the SPOR National Training Entity (NTE) is to support capacity development in the broader patient-oriented research community by leveraging existing training efforts, supporting the career development of patient-oriented researchers in a systematic manner, and supporting implementation specialists who will integrate patient-oriented research into the health system.

LOI deadline : December 10, 2019

SPOR SUPPORT Unit Phase II Funding Opportunity
CIHR Tier 2 Canada Research Chair in Healthy Aging
UNB | Fredericton, New Brunswick | Application deadline: December 13, 2019

The Faculty of Arts, Department of Economics, at the University of New Brunswick (UNB) in Fredericton, NB invites applications for a CIHR Tier 2 Canada Research Chair (CRC) in Healthy Aging, with a specialization in health economics, labour economics or related disciplines. In addition to being appointed in the Department of Economics, the successful candidate will be a research affiliate with the New Brunswick Institute for Research, Data and Training (NB-IRDT).

Publications and Resources
Recent Peer-Reviewed Publications

The following research was supported by the MSSU:

Abi Nader P, Majed L, Sayegh S, et al. First Physical Activity Report Card for Children and Youth in Lebanon. Journal of Physical Activity and Health 2019; 16(6): 385-396. ABSTRACT >

Charlton P, Doucet S, Azar R, et al. The use of the environmental scan in health services delivery research: a scoping review protocol. BMJ Open 2019;9: e029805. FULL ARTICLE >

Doré I, Sabiston CM, Sylvestre M-P, et al. Years Participating in Sports During Childhood Predicts Mental Health in Adolescence: A 5-Year Longitudinal Study. J Adolesc Heal. 64:790–6. ABSTRACT >

Brandelli YN, Chambers CT, Tutelman PR, et al. Parent Pain Cognitions and Treatment Adherence in Juvenile Idiopathic Arthritis. Journal of Pediatric Psychology 2019; 44(9):1111–1119. ABSTRACT >

Trenaman S, Willison M, Robinson B, Andrew M. A collaborative intervention for deprescribing: The role of stakeholder and patient engagement. Research in Social and Administrative Pharmacy 2019. ABSTRACT >
We can help spread the word! If we've supported your research and you've published your findings, let us know by emailing communications@mssu.ca. We'll include your paper in our next newsletter.
Resources

NIHR Knowledge Mobilisation Research
A curated collection of literature that covers both knowledge mobilisation and implementation.

KT Pathways
KT Pathways is an online self-assessment tool and resource guide to help you to identify and improve your knowledge translation (KT) skills. It was developed through a Michael Smith Foundation for Health Research (MSFHR) initiative with support from academic and health system partners across British Colombia.

SPOR Community Updates
BC SUPPORT Unit | The POR Pathways Project
The BC SUPPORT Unit's Patient-Oriented Research (POR) Pathways Project has developed a tool to help patient partners and researchers to assess their readiness to engage in POR and find resources to help build relevant skills. 

PORLET graphic
SCPOR | Patient-Oriented Research Level of Engagement Tool (PORLET)
The Saskatchewan Centre for Patient-Oriented Research (SCPOR) has released training videos and an interactive glossary to help people to use the Patient-Oriented Research Level of Engagement Tool (PORLET), which measures the degree to which a project meets the definition of patient-oriented research described by the CIHR Strategy for Patient-Oriented Research (SPOR). 

Want to know more? Check out the SPOR newsletter!
MSSU Updates
Meet our new Patient Engagement Coordinator, Yvonne Hanson
Photo of Yvonne Hanson
We are pleased to welcome Yvonne Hanson as the MSSU Patient Engagement Coordinator. Yvonne returns to Halifax from Saskatchewan where she was the Executive Director of CHEP Good Food Inc, a community-based, charitable organization. Prior to that, Yvonne was the Provincial Network Manager for the Saskatchewan SPOR Network. Yvonne has a Master of Education from the University of Saskatchewan and a Bachelor of Arts from Mount Saint Vincent University in Halifax.
The MSSU PEI team is growing

The MSSU in PEI has welcomed three new members who are already making valuable contributions to several projects with the Centre for Health and Community Research (CHCR) and the MSSU.
Amanda Brazil – Research Scientist
Photo of Amanda Brazil
Amanda has extensive experience in the fields of mental health, addictions, corrections, and firefighters’ workplace health and safety. Amanda was previously the Director of Programs and Policy at the Canadian Mental Health Association in PEI, and prior to that worked as a Project Manager for Addictions Research with the Correctional Service of Canada. Amanda is also an associate researcher with FIREWELL, a national team of firefighters and researchers working together to advance firefighters’ workplace health and safety. Amanda has completed a PhD in Education at UPEI, where she conducted qualitative research exploring informal learning and critical incidents in the volunteer fire service. She also holds a Master of Arts in Adult Education (Mount Saint Vincent University), and a Bachelor of Arts in Sociology/Psychology. 

As a qualitative social science researcher, Amanda is applying her skills in collaborative research and program design, and participant and stakeholder engagement towards several CHCR and MSSU collaborative and patient-oriented projects. Amanda is currently leading CHCR’s research and evaluation of a CBT4CBT eHealth initiative (computer-based training program for cognitive behavioural therapy), while lending her expertise in mental health, addictions, and emergency services to components of several MSSU projects.
Matt Munro – Research Coordinator
Photo of Matt Munro
Matthew joins the team as a Research Coordinator working across several CHCR projects, with a focus on qualitative research and evaluation. He has a Master of Applied Health Services Research and a Bachelor of Arts in Psychology from UPEI. Matt has worked in a variety of research roles on campus, including Senior Research Assistant with the Young Lives Research Lab, and Research Coordinator for the Comprehensive School Health Research Group. His research interests include the youth mental health system in Atlantic Canada, evaluating social emotional learning in schools, and researching the role digital media plays in young people's lives.

Matt is already using his research skills and experience to support several MSSU projects including mixed methods research on high-resource patients in PEI, and the evaluation of PEI’s Mobile Integrated Health program. He is also working closely with Amanda on CHCR’s evaluation of CBT4CBT.
Linda Young – Administrative Assistant
Linda brings a wealth of administrative and accounting experience to our team, with a career that has included several administrative roles at UPEI and 25 years at CBC radio. She started her role with CHCR in October, and with her organization skills and initiative, she is already an indispensable member of our team!
Trying to reach an MSSU staff member?
Civic address change for the MSSU Moncton Office (effective Nov. 18)

From November 18, the street address for the MSSU Moncton office will change to: 

Room 2002, Pavillon J.-Raymond-Frenette
50 de la Francophone St
Moncton, NB E1A 7R1

PLEASE NOTE that the mailing address remains the same: Université de Moncton, 18 Antonine-Maillet Ave, Moncton, NB E1A 3E9.
Nouvelle adresse civique pour le bureau USSM de Moncton (en vigueur à compter du 18 novembre)

À compter du 18 novembre, l’adresse civique du bureau USSM de Moncton changera à :

Salle 2002, Pavillon J.-Raymond-Frenette
50, rue de la Francophonie
Moncton, N.-B. E1A 7R1

PRIÈRE DE NOTER que l’adresse postale demeure toutefois la même : Université de Moncton, 18, avenue Antonine-Maillet, Moncton, N.-B. E1A 3E9.