September 18, 2024

IN THIS NEWSLETTER

In Pursuit Podcast

  • Expanding Cystic Fibrosis Treatment and Testing

Science Showcase

  • Colleen Badke Receives NIH K23 Award

News from the Manne Research Institute Pillars

  • Offering Peace of Mind: Peanut Immunotherapy Clinical Trials at Lurie Children’s
  • Number of Pediatric Inpatient Psychiatric Beds in the U.S. Did Not Increase 2017-2020 Despite Youth Mental Health Crisis
  • Thriving Grandparenting: FCHIP's 2024 Grandparent's Day Report

Manne Research Institute in the Media

During more than three decades of her career in pediatric pulmonology, Susanna McColley, MD, has seen the average life expectancy for children with cystic fibrosis advance from teenage years to age 61. In this episode, Dr. McColley details the evolution of cystic fibrosis diagnosis and treatment and discusses how she is addressing the ongoing disparities in CF research, education, and care.

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SCIENCE SHOWCASE

Colleen Badke Receives NIH K23 Award

The Eunice Kennedy Shriver National Institute of Child Health & Human Development of the National Institutes of Health recently presented a Mentored Patient-Oriented Research Career Development Award (K23) to Colleen Badke, MD, an attending physician in critical care at Ann & Robert H. Lurie Children’s Hospital of Chicago. The total funding of the grant is $815,400 (award period August 2024–July 2029). 


Dr. Badke’s long-term career goal is to develop and implement physiology-based prediction models that improve outcomes for patients at risk of clinical deterioration. The grant will support work to derive, validate, and design for the implementation of longitudinal prediction models of clinical deterioration that incorporate high-frequency physiological monitor data and electronic health record-based clinical variables. Additionally, the grant will provide Dr. Badke with mentored research training in data-driven predictive analytics and machine learning model development, advanced statistical methods, and user-centered design and implementation science.

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NEWS FROM THE RESEARCH PILLARS

Families of children with food allergies are constantly on high alert. Meticulous avoidance of the child’s allergen is their daily reality. Allergies to multiple foods demand even more attention in efforts to keep the child from ingesting even minuscule amounts of allergens.


Unfortunately, accidental exposure to a food allergen is all too common and it can lead to severe, potentially fatal reactions. It can happen from eating food cooked or processed on shared equipment with the allergen, and it can occur in just about any setting, from playground to school to birthday parties.


So far, there is no cure for food allergies. The vigilance required to keep a child with food allergies safe is a huge emotional burden on the entire family. To boost safety and mitigate some of this stress, research has focused on reducing the risk of severe allergic reactions from accidental exposure.

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U.S. pediatric inpatient psychiatric bed capacity did not change 2017–2020, despite increases in pediatric mental health emergency visits, according to a study published in JAMA Pediatrics. Researchers also found substantial geographic variation in inpatient psychiatric bed capacity per 100,000 children, ranging from zero in Alaska to 75 in Arkansas. Over 90 percent of pediatric inpatient beds are in urban centers, raising concerns for youth living in rural areas.


“Access to psychiatric inpatient care for youth is insufficient to meet the growing demand, forcing patients to wait for hours or even days in emergency departments or on medical units until a psychiatric bed becomes available,” said senior author Jennifer Hoffmann, MD, MS, emergency medicine physician at Ann & Robert H. Lurie Children’s Hospital of Chicago and Assistant Professor of Pediatrics at Northwestern University Feinberg School of Medicine. “It is also critical to ensure that access is equitably distributed across the country, as well as available in rural areas where we found a serious shortage of psychiatric beds for youth. Every child deserves access to psychiatric care. The lack of psychiatric beds for children in some areas places a significant burden on families, emotionally and financially.”

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Thriving Grandparenting: The Family and Child Health Innovations Program's 2024 Grandparents Day Report

After highlighting both mothers and fathers in reports earlier this year, the Family and Child Health Innovations Program (FCHIP) turned to the subject of parents of parentsgrandparents. To coincide with Grandparents Day on September 8, FCHIP released its report "Thriving Grandparenting." The report explores how the “new image of the aged” is reflected in engagement with grandchildren and shows that involvement and influence in improving the lives of children can be multigenerational and ongoing. 

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MANNE RESEARCH INSTITUTE IN THE NEWS

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