March 11, 2016

SAVE THE DATE
October 15 & 16, 2016
Washington D.C. 

PANDAS-PANS
Conference

PANDAS Network is partnering with Georgetown University to host our annual conference.

Registration opens in March for this exciting parent/provider
conference. 
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PANDASnetwork.org
655 Oak Grove Ave #1373
Menlo Park, California 94026
pandasnetwork@gmail.com
 
Simple Events Amazing Results


 
In the coming months we will share stories of PANDAS and PANS families who are taking action on simple ideas and making a HUGE impact for our community.
Kirk Lord, along with the help and support of his Mom Tricia and Dad Duncan, decided to use his pogoing talent to raise money and awareness for PANDAS and PANS.
The idea was simple, Pogo for PANDAS....
ALL THE WAY across the Golden Gate Bridge.  On February 28th this fourth grader put his idea into action.  In 35 minutes he bounced ----- his way to improved awareness, raising over $6,200 with 4000 bounces!
To complement his event, he created a t-shirt and passed out postcards that clearly communicated the signs and symptoms of PANDAS and PANS.

Kirk Lord is accepting donations to the end of April. Here is the link to his FirstGiving Page.

Watch the video here of Kirk jumping across the Golden Gate Bridge.

 
So what fundraising ideas do you have?
Email your ideas to dbryan@pandasnetwork.org so we can share them in our next newsletter.
 
Here are a few of our own

MAY

 

Derby for PANDAS - host a Kentucky Derby viewing party at your home, asking attendees for a donation to attend, or host the party at a local restaurant or bar, asking for a percentage of sales to be donated to PANDAS Network

 

JUNE, JULY/ SUMMER

- Ice cream, snow cone and Lemonade stands- great way to get our kids directly involved! 
- Car wash
- Biking event "pedal for PANDAS"- partner with your local spinning studio or bike around the block asking for donations per lap.
- July 4th Fundraiser
- Dog washing
- Movie Night for charity- backyard movie night or many local movie theaters are willing to partner.
- Field Day with outdoor games 
- Ice cream social
-POOL for PANDAS- pool party at local clubhouse, etc.

Remember- As a 501 ( C ) ( 3 ) Non-Profit all donations made are 100% Tax deductible! 





International Conference Partnership a Big Success!
 

The September 2015 conference in Lake Como Italy was attended by over 300 guests and physicians.  The conference included never before heard lectures and candid comments about treatment successes and failures.  You will find the full content of the  lectures by Drs. Susan Swedo, Madeleine Cunningham, James Leckman (Yale, Tourettes-OCD expert), Elizabeth Latimer, and former Ex. Dir. Diana Pohlman here
 
Italy continues to be the most progressive country in the world, thanks to parents like Loretta Falcone, PhD, and Guiliana Galardini of PANDAS Italia who have planned several Italian events.

The neurology and pediatrics communities are increasingly ----- open to PANDAS/PANS.  Over the weekend of February 14th, a meeting was held for new physicians to learn about PANDAS from Dr. Agalliu Skyping and his research at Columbia.  His work was highlighted and applauded by the 50+ doctors attending.
 
WAY TO GO ITALY!!